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need some help

Discussion in 'Parents Off Topic' started by hmmmcormick, Jan 9, 2011.

  1. hmmmcormick

    hmmmcormick Approved members

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    I hope you all might be able to help me help my friend. Her daughter, Annabel, has trisomy 18, like Morgan. Annabel has severe digestive problems, including gastroparesis, which have forced her to be on tpn indefinitely. She has a central i.v. line inserted right now. The problem is with the site dressings and tapes to secure the line. Everything they have tried is causing skin issues for little Annabel (she is 5 yrs. old.) They have tried: tegaderm, IV 3000, Medipore plus Pad, and are currently using Sorba-View. Does anyone know of any other kind of tape or dressing that they could try? I know you all use a variety of things when it comes to your pump sites. Is there anything she could try, even if it wasn't specifically made for i.v. sites? They would be more than willing to make it work, if possible. Thanks in advance!
     
  2. Tricia22

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    Have they tried the tegaderm HP (the hypoallergenic version of tegaderm) or just the regular tegaderm? If I had some Tegaderm HP, I'd send some, but I'm using the regular tegaderm right now.
     
  3. albasmom

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    What about Hypafix. And do they use anything beneath the dressing? If not I'd recommend Cavilon. We use that beneath pump and sensor sites, and can really see a difference. I hope they figure something out.
     
  4. goochgirl

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    I have an embroidery design for a pad to put around feeding tubes. I can make a few and send them to you. I don't know if it is what she needs, but you can see if it works.
     
  5. hawkeyegirl

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    We use Opsite, which hasn't been mentioned. An advantage of Opsite if it works for them is that it is very economical. We pay $25.00 out of pocket for a roll that lasts us around 8 months. You can also cut it to the exact size you need.

    I hope they find something that works. Poor little bug. :(
     
  6. frizzyrazzy

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    we also like hypfix. :)
     
  7. goochgirl

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    Also Bard Protective Barrier Film. We got that to use under Dex sites where Yo is allergic. It worked. I can't say it was perfect, but we did see a difference.
     
  8. Heather(CA)

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    We used cover-roll stretch from BSN medical. I think it's the same as something else though and I can't remember what:confused: Hopefully someone will chime in.

    Also, the Tincture of benzoin spray by Smith and Nephew is supposed to provide better adhesive AND a barrier. I can't tell you how effective the barrier is though because Seth wasn't having any reactions. It DID help wiht keeping him pods on though and he just pulled them off w/o having to use anything when it was time to change it :)

    Let me know if your interested in either of these, I will post the links if you want :)
     
  9. Connie(BC)Type 1

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    Holly, I'm sensitive/allergic to all the tapes as well, so is my CDE, she disscussed it with a specialist at the hospital she works at and he advised her to only use 1 type of tape for 3 to 4 days, then change it. I now have 4 types of tape, and change them religiously. "Apparently" this tricks the skin. For the past 6 months, I've had no skin infections or irritation from the tapes. So it's been working for me.
     
    Last edited: Jan 10, 2011
  10. Mom2Will

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    This is interesting, thanks for this, Will is also seems to be sensitive to all adhesives, I'm going to try changing tape with every set change. I have many different types in the cabinet!
     
  11. sisterbeth43

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    We never used any special tapes, but just wanted to say I hope they find something that works for their special little girl.
     
  12. Connie(BC)Type 1

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    oops, I also use Cavalon Barrior Spray , the barrior wipes made me break out
     
  13. Kaylas mom

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    When Nick had a central line, we used opsite. He has a lot of tape/adhesive/latex allergies.
     
  14. hmmmcormick

    hmmmcormick Approved members

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    Thanks for all the replies :D
    I have passed the info. on to her and already received the reply that she and one of the home health nurses are going to be checking them all out today. I really appreciate your responses. Thanks again from me and Cathy and Annabel.
     
  15. Marcia

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    If your friend has a home health nurse, she may benefit from a referral to an ostomy care specialist from the home care agency. These nurses know how to protect skin extremely well using barriers that patients with ostomies use.
     
  16. Brensdad

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    How about something more low-tech like an ACE bandage?
     

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