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My Research Blog

Discussion in 'Parents of Children with Type 1' started by joshualevy, Mar 26, 2010.

  1. joshualevy

    joshualevy Approved members

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    If you've spent time over at the Research forum, you probably have seen my postings about clinical trials aimed a curing type-1 diabetes. But here is an introduction here.

    I keep track of all the potential cures for type-1 diabetes that are in human trials, or will be soon. I've done this for years. When my daughter was first diagnosed with type-1 diabetes, I spent time reading news accounts of various "cures" that various researchers were working on. As with a lot of other people here, I quickly became frustrated by the difference between the incredibly optimistic news stories and the lack of useful results.

    My blog, which you can read here:
    http://cureresearch4type1diabetes.blogspot.com/
    And my web site, here:
    http://joshualevy.pbworks.com/DiabetesCureReadyForHumanTrials
    are my personal attempt to provide more informed news about possible type-1 cures.

    In general I only follow research which might lead to a cure for type-1 diabetes. There is lots of research into better insulin and treatments for various side effects, and lots of people follow that research, but I choose to focus just on a cure. Also, I only follow research which is being tested on people right now (called "clinical trials"), or is expected to be in the next year or two. So I don't cover animal research.

    These restrictions mean that I'm usually only following 15 to 25 lines of research at any given time, so I can keep pretty good track of them all. I also (occasionally, and as time permits) write up longer summaries of research issues in type-1 diabetes.

    For the research that I cover, I try not to be a "news clipping service". I try not to just copy a press release or news article (especially not the shallow ones that are just rephrased press releases themselves!) I view all press releases and most news articles (including blogs articles, and forum posts, etc.) as having three huge flaws. First, they only include good news; only what the researchers want you to know. Second they only include information on one treatment; the one that group of researchers are working on. And third, they have no historical context to the news they report.

    So in my blog and web site, for each piece of news I report, I try to include these things:
    • Both the good and the bad points
    • A realistic guess at how long it will take to finish testing and become available.
    • Comparisons with other lines of research.
    • Historical context of the line of research.
    • Links where you can learn more details, if you want to.

    In general, and especially right now, my blog site is more up-to-date than my web site. The blog is organized most recent posting on top, so it is easy to read to go back in time. I do try hard to have useful tags. If you are interested in one line of research, then I urge you to look at my tag list (right side of the blog) and click on the tags you are interested in. The web site is organized by line of research, so it is easy to see what the different researchers are doing, and the timeline of their progress.

    I'm always on the lookout for lines of research that are new to me. So if you hear about any research aimed a curing type-1, which is being tested on people, or soon will be, then please tell me about it! Finally, many of my best posts are written in response to specific questions that people have emailed me, so please do email questions that you have about research into a cure for type-1 diabetes.

    Joshua Levy
     
  2. KatieJane'smom

    KatieJane'smom Approved members

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    Thank you for the information.
     
  3. KathyMcDaniel

    KathyMcDaniel Approved members

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    Thank you!

    Thank you for the information.
     
  4. badshoe

    badshoe Approved members

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    Thanks.

    I find the information very useful and well presented. Good of you to do all that work.

    I appreciate having a resource for the science around T1. So much of what we do and write about is driven by deep emotions, many times alternating parental fear and hope. Those things live in a completely different time and space continuum than science.

    Having a bridge between those two is great.
     
  5. Ellen

    Ellen Senior Member

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    Oct 22, 2005
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    8,240
    I appreciate the information too. Can you share with us if you invest in the companies you report about on your blogs and if so where on the blog that may be disclosed? Thank you.
     
    Last edited: Mar 27, 2010
  6. joshualevy

    joshualevy Approved members

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    Dec 30, 2008
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    I think it is on both blog and web site, but just in case not, there are two things to disclose:

    First, I try to own stock in every company with human trials focused on curing type-1 diabetes. I don't buy stock all the time, so I'm usually behind, but my goal is to own stock in every publicly traded company doing human trials. I view owning their stock as a form of support, plus it means I get all their stockholder's literature. So you should assume that I either already own or am looking to buy stock in every company doing these studies. I view this as "putting my money where my mouth is".

    Second, my savings are mostly invested in the stock market, in a diverse portfolio. This portfolio sometimes includes companies in the medical world. I don't have any one stock as more than 4% of my portfolio (So it's not like I have all my money in one company and am pumping their shares.) I'm not going to tell you exactly what stock I own in my general portfolio, and even if I did today, it changes.

    Joshua Levy
     
  7. Toni

    Toni Banned

    Joined:
    Sep 14, 2009
    Messages:
    2,882
    Have members of CWD done this as well? I assume people will invest in a product if they have extra money, particularly if they have a personal interest in the product's outcome.

    Joshua, appreciate all you do. Found your blog after DN's honeymoon was over, much to my chagrin. Your blog would be particularly useful at dx, as you can participate in most of the trials only then.
     

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