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More 504 stuff

Discussion in 'Parents of Children with Type 1' started by Charliesmom, Feb 17, 2011.

  1. Charliesmom

    Charliesmom Approved members

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    I met with the principal and nurse today. I found out some things that I thought were being done, aren't being done. The principal also told me that the federal law makes him eligable for a 504 but it doesn't mean he qualifies for one (then smirked). I didn't know how to respond so I didn't say anything.

    What are some things that should be on a 504 for kindergarten? He has free access to water and bathrooms.

    I want him to have fast acting sugar with him at all times but the nurse says they can't ask the encore teachers to give him juice if he appears low...

    At this point, I am feeling like I should have just waited until next year because school will almost be out by the time it gets in place. And we will have to go through it all again next year?
     
  2. Beach bum

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    NO! NO! NO!
    Do it now so that they know you mean business and will not be d#$^@* around.
    Definitely contact the ADA to get your ducks in a row.

    As for what to have on the 504, here's some of what we had:
    Unlimited access to water/restroom
    Nurse is to come to her if she feels low. If nurse cannot come to her, an ADULT (not a student buddy) must escort her.
    If she acts out of character, test bg first, discipline later.
    Emergency supplies of glucose/juice will be stored in the art/pe/library/computer rooms.

    Once you get the 504 hammered out and set in place, it will not be as difficult to go through the proceedure on an annual basis.

    Again, I strongly suggest you call the ADA and just talk with them about your childs rights and get some tips in dealing with staff. It seems the principal is going to be the squeaky wheel in all of this.
     
  3. hdm42

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    Keep going. You can get it put in place this year to cover next year. We did our first one in May/June for the following year.

    "The principal also told me that the federal law makes him eligable for a 504 but it doesn't mean he qualifies for one (then smirked). I didn't know how to respond so I didn't say anything."
    Your principal sounds like an a** How does he not qualify for one if the federal law makes him eligible?
    Talk to your endo and have them write a letter for you. I believe the criteria for a 504 is that major life functions (including but not limited to learning) have to be impacted by their condition. Have your endo point out that both physical and cognitive function can be negatively impacted by D and that your son absolutely needs a 504 plan in place.

    I would also go into the meeting with a draft plan written out with everything you want. I used a number of sources when putting ours together. I looked here, at ADA, and at JDRF. I basically chose the parts from each that fit my son's needs and I put it all together in one document.

    If you have a good nurse, work with her in the meantime. I talked to our nurse and showed her my plan before going into the meeting. That way, she knew what I wanted and was in my corner.

    Good Luck! We're behind you. :cwds:
     
  4. txmom

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    This is for the 504 veterans.....

    My son is 16, diagnosed last year. I do not have a 504 in place, the high school he is in does a great job and are happy to comply with anything I have asked for. Including the hockey and golf coaches.

    But, as I start to think about him going away to college I wonder if I should have a 504 plan in place now so that colleges cannot say he has gotten by without one this long, clearly he doesn't need one.

    thoughts?
     
  5. AlisonKS

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    we have all of the above, plus that his kit has to go with him wherever he goes-library, playground, music class, etc. your principal is d-bag. the teachers can't give him juice? would they rather he has a seizure?
     
  6. thebestnest5

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    Call the ADA and start communicating with a legal advocate, asap.
     
  7. PatriciaMidwest

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    My understanding is that 504's in college are less "accomodating". You might want to make another post about this to spur some more answers, it is a good question. I guess we all have to hope our kids are handling things well on their own by the time college rolls around.

    Here is some info I found on college 504's:

    No reduced assignments; extended time on
    assignments is very rare; no grading changes,
    no test format changes other than providing
    equal access (such as providing extended time
    or providing a test in large print or Braille); no
    extra attempts at tests unless promised
    accommodations were not provided during the
    first attempt


     
  8. luvmyboyz

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    Unbelievable! I'm sorry you are going though this. It shouldn't be this hard considering you know for a fact that at least one other student in our school district has a 504 in place for Type 1.
     
  9. PatriciaMidwest

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    Don't give up...

    Ask your principal how the teachers handle peanut allergies. How many people are trained to deal with this? Are there written instructions and training for the teachers? You are simply asking for those same kinds of accomodations for your child's medical needs.

    Calmly ask him what happens if your child has a seizure and goes into a coma or becomes brain damaged because you wouldn't let the student carry glucose or let a teacher give him juice? He has a legal obligation to provide a safe environment for your child.

    Our school wasn't listening at first either. Stay on them and get the ADA involved.

    It may be time to talk to the school district instead of your principal, especially knowing there is another 504 in the district. There should be someone at the district level who handles the 504's.


     
  10. Charliesmom

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    I just don't understand it, either. The nurses big thing is what if he doesn't need it. Well, then you can give him insulin after you get to the room and check him. She just didn't understand. Now I am worried about tomorrow. He has PE and today they took the PE classes out into the far fields to play since the weather is so nice. I guess I will lower his afternoon basal to play it safe.
     
  11. Charliesmom

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    I actually went in to meet with her today because I was hoping it was just a misunderstanding. Now I feel as if they are going through the process just so they can tell me they tested him and he doesn't qualify for a 504.
    I am contacting the ADA. =)
    Is your principal moving to the new school? HaHa never mind. I just read your other reply. I was told he is great! One of Charlies friends is moving to the new school and his mom is excited because she has heard such great things about him.
     
  12. AlisonKS

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    for that young of a kid, the teacher should be trained on how to test and treat. My sons kindergarten teacher is, along with two office ladies and the principal. His teacher has a child w/type 1 before in her class a long time ago so that helped, she knew that it could be dangerous. They would rather know then have a fat lawsuit on their hands when something goes wrong. The only problem we've had this year was a sub refused to let him eat his snack because she thought it would take too much time and he went really low-I brought up the seizure thing would take a lot of time with the whole ambulance and scared classmates thing:rolleyes:
     
  13. PatriciaMidwest

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    She didn't say insulin, did she? Please tell me she said she'd give him juice.


     
  14. PatriciaMidwest

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    What is their process? You have a right to be at every 504 meeting along the way so tell them you want to be included.
     
  15. luvmyboyz

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    I thought he was great. He is insulin and glucagon trained too. One time everyone who was trained was out so he had to administer Aaron's insulin. Of course that was prepump. If you need to see our 504 it would be no problem. I have everything from our 504 meeting including the eligibility summary.
     
  16. Charliesmom

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    Sorry, I was confusing. He isn't allowed to carry a meter and, of course, the encore teachers don't do blood sugar testing. She said she doesn't want to have the teachers to give him juice if they thought he was low (without testing bg) in case he didn't need it. I tried to explain to her that the teacher could give him juice while someone was getting the nurse. If he was not low after all then she could just dose accordingly. Better safe than sorry. She thinks he should be tested first before being treated.
     
  17. mamamccoy87

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    Too bad you don't live in Illinois. They just passed legislation that all school staff be trained in diabetes care and signs and symptoms of lows/highs and how to treat.

    We are lucky - we have a nurse at our school the whole time (we have 5 type 1s). I am the sub nurse. But our principal is very open to learning - we have a problem getting other nurses to sub so he's instructed in how to give glucagon, injections - so is secretary. We don't have a 504 in place but are considering since we are going through rollercoaster numbers with many missed days of school.

    I see your son is in kindergarten - I started having my daughter carry a purse in 3rd grade - I was worried if the nurse was not in the office, dd outside at gym - whatever. So she carries a purse with a meter, glucose tabs, gel and a follow up snack. Also her cell phone - i want her to be able to call me in case of emergency (lock down, etc). We had a tornado drill one day where she ended up being low and didn't have anything on her - thank God it was a drill. Now she carries a purse. Mb your son can carry a fanny pack or bag.

    Good luck on the 504 issue.
     
  18. Flutterby

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  19. deafmack

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    The principal doesn't know what he is talking about. Your child definitely qualifies for a 504 plan and you definitely need to have one set up.
    Another thing is that you don't have to set up a new 504 plan for each year your child attends school. The same 504 plan can follow your child throughout his school years and you can make adjustments to it as needed.
    You stick to your decision to get a 504 plan. We are all supporting you.
     
  20. Mik's Mom

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    Its sad that we as parents have to fight so hard to keep our kids safe while they are at school- but we do.


    Sorry your having to deal with this. From my personal experience, it is best to get the 504 in place now- it is easy to update yearly. But you need to let the school know that this is a serious issue and they are required by law to provide your child with a safe environment to receive his education.

    I have glucose tablets in every one of my daughters classes and the gym teacher was given an emergency kit with glucose tabs, juice boxes, snack and glucose gel. If they leave the gym to do an activity outside, he makes sure to bring her emergency kit with them. This is something you could add to your 504 plan.

    Sadly I found that the school responded better when I had someone go to the 504 meetings with me. We have a great organization in our state called "Partners in Health" and one of the representatives went with me to the 504 meeting and I couldn't believe the difference just having someone there to offer support to my ideas made.

    Its sad that we as parents have to fight so hard to keep our kids safe while they are at school- but we do.
     

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