Ketones have started...

All I can say is that is crazy. Letting a child go so high and get ketones to reset her so she will feel her lows is ludacris. If my endo ever told me to do that I would tell them no and take my son to a new endo. I could possibly see letting them run a little high but that is dangerous. I realize in Canada you probably don't have a choice of what endo you take you son to. This is why I do not believe in socialized medicine.

 

Wow, bit of a leap to use this one piece of crazy advice to support your disbelief in socialised medicine.

I don't live in Canada but I do live in a different country with socialised medicine and I can tell you that I perfect rights to request a change in medical professional. And I have never been advised to run over 600 to reset my hypo awareness. What is happening in the OPs case is not the norm, which is exactly why I think they need to call the endo and demand that they be given safer advice and, if not given any, they should request a change in endo. Because something that they are doing right now is NOT working.

 

Ridiculous! Before you start making judgements about socialized medicine, do a little bit of research. Of course we can choose who we take our children to. And if I had an endo who was making choices like that, you'd better believe I would be looking around for somebody else.

 

Just an update, I called Endo on call last night and got a correction dosage for Z. She was down to a 25 by the time I called. She was a 14 by bedtime. No ketones still. We also got the lispro insulin which was stopped in am restarted to a 1/2 unit.

As for the all the highs and endo leaving her, the drs didn't know how her body would react to this new insulin dosages. They thought she would sit at a 15-16 through the day. It is probably the ear infection that caused them to go higher than what they thought they would. So when I called yesterday and explained all that was going on, the dr did restart her morning insulin and I am to call them today with numbers to see how she is.

As for changing endo, no, I can't. There is only one ped endo clinic here. There are 4 drs in this clinic. You didn't pick one. You see whoever is around the day of your appointment. Usually the endo's advice is right on track but Zoee's D is a little puzzling right now so they probably thought that they were doing right by that paln for her. Now they know they can't do that paln again for her.

 

I feel like I need to explain and defense the endo. The plan was not to give her ketones like stated in the last post by me.The plan was to high her abit higher like between 15-16. It was jsut b/c of her ear infection that the levels went higher than the endo thought and that was the last two days. As so as I called, they started the insulin again. It just has to be done slowly.

I posted this post to get advice, not to start a rant about socilaiazed medicine. Many times I have seen where soemone is posting for help for thier child and it goes into a different direction which gets the post locked. It is sad to see which is why I am always heistant to post on CDW even though I want to advice or help b/c you don't know if you are going to critized (sp) or your post is going to go into a different direction. All which is not helpful to the person who is trying to get help or support for thier child.

For the ones that did help, thank you!

 

Shannon, I am so glad that things are starting to turn around for Zoee. Infections like ear infections can definitely cause blood sugars to rise. The infection itself, the stress on the body, the lack of activity cause our CWD dont feel like being active when they are sick, all make for a rough ride I think youll get back on track now that the infection is probably getting under control with meds. Is she on antibiotics? That usually starts to help after a couple days. Are you giving something for the pain like Tylenol or Motrin? Sometimes the pressure that builds up can be really uncomfortable.

I do agree that your thread isnt the place to discuss or debate socialized medicine. There is the Hot topics section down further in the forums. That would be a better spot for those discussions.

 

Twenty some odd posts on point, one nutter. Not really fair to pull the "I hesitate to post" card, imho

 

I'm a little confused. You say that you called and the endo "started the insulin again." Was she off of insulin? Do you make your own changes at all?

Also, we are in the U.S., and our HMO puts some pretty severe restrictions on which doctors we can see. To use that as a reason to be against socialized medicine is pretty uninformed.

 

Sorry for contributing to the sidetracking. I understand your frustration about having a post go sideways when people get going. I think I was just a bit touchy this morning (I know, I know...never type angry!), and I wanted to set the record straight.

I am surprised that there is only one practice in Winnipeg--I would have expected at least 2-3. Reading your follow-up, I'm glad they are working with you to get the BGs down. I had the impression that they were resistant to doing that. If that had been the case, I would have been really concerned about your clinic. To me, failing to deal with what could be a serious situation in the short term in order to try to deal with a longer-term problem seems irresponsible. I think the retraining could certainly wait until the ear infection-related highs were cleared up. It sounds like they are prioritizing the highs, so hopefully you can get back on track. Between the infection and the ketones, your daughter must be pretty miserable--I hope she feels better soon.

 

Shannon, I understand your point. I will be thinking twice as well about posting as something similar happened in one of my posts. I don't come here to be attacked but rather for support. I take extremely good care of my daughter. I came here for advice on something specific and I felt very judged by people I don't know who took my post apart and decided to give me their "opinion" on the background info as opposed to the question I had. There were some very kind people however who helped me with my question and I appreciate that immensely.

Sorry your post turned this way because I think there is a lot of great advice here in general. These sort of things seem to happen on any board/forum that I've been on. Glad things are going better for your daughter now.

We all want what's best for our children and do our best to care for them.

Take Care.

 

You are right about that. I was very tired at 7am this morning when I posted that. I know better to post before my coffee has kicked in.

 

The endo stopped the lispro which would be her breakfast dosage due to the sevre lows she was having in the mornings. I do make my own changes but none of the changes I was making was working so that is where the endo and I are working together to figure out what is what with her.

Just want to add that i am thankful for the support that I have gotten from CWD. The advice has been helpful to me and give me some things to take to her next appointment or the next talk that i have with the endo. So thank you!

 

Fair enough I'm sure you were exhausted by yesterday. Hopefully things are improving today.:cwds:

 

Ok I'm coming in late, but running a child high should NEVER involve them going up into the range of blood sugars your child had. I question the competence of the CDE.

 

So why was the CDE telling you to stay the course when blood sugars were over 30?!