I wrote this big long post on Ellen's post about the article and decided instead of hijacking her post I should post my own rant. Below is what I quoted and my reply. Take it or leave it, I just need to get this off of my chest. I have to agree with this. I wasn't going to post but feel it is important for newbies to understand that, even after 2 1/2 years, you can hate this disease. It DOES make life harder and it DOES rob my child of her CHILDHOOD! Someone said to me the other day "well, at least it is under control. It could have been cancer. She is better now" I bit my tongue and walked away but inside I was screaming "I had cancer, cancer was a moment in time, it was treated and now I am better. Yes, cancer was scary and painful and deadly but the Dr's cured it and I am alive and well today. THIS is FOREVER. My child will NEVER have relief from needles and pokes and blood and Dr's. F O R E V E R. With my cancer, I had radiation, I got sick, they did surgery, I took some drugs, and now I see a Dr 2 times a year for check ups, no blood draws, no needles, nothing. HTH DOES THAT COMPARE? I am sorry, I am having a really bad D day. My kid has to deal with BS that no child should ever have to. My child was one of two kids with a medical condition denied playing on the local volleyball league. I can't blame them, they are afraid of her care, they don't have to do it so why should they? If I wanted to push it I could but Hailey is happy just going along and watching She knows that the reason that she did not get on was because of D, just like she knows that the reason that she did not make it through cheer leading tryouts was because of D. When you have other parents and other children coming to you and saying "I can't believe Hailey didn't get in! There were girls that didn't remember their cheers that got on and Hailey did perfect. How unfair." These are parents and kids that I normally don't talk to but ah hell, what do ya do. Yes, it does change things for the worse. Maybe I feel it hard because my child has been held back by her D Sorry for the rant, bad day.