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Hello - Toddler Diagnosed with Type 1

Discussion in 'Introductions' started by Emcole320, Dec 4, 2017.

  1. Emcole320

    Emcole320 New Member

    Joined:
    Dec 4, 2017
    Messages:
    2
    Hello all,

    My 2.5 year old daughter was just diagnosed with type 1 last Monday. As I imagine is common, it was a complete and utter shock to us and has been an emotional roller coaster. But we are home now and trying to create a new normal - trying to stay positive. Luckily we have had wonderful care and a lot of support. Hoping to use this community to connect with other parents of kids with type 1 and learn as much as I can about this disease so I can prepare her as best I can.
     
  2. MomofSweetOne

    MomofSweetOne Approved members

    Joined:
    Aug 28, 2011
    Messages:
    2,712
    Welcome to CWD! I'm very sorry about your daughter's diagnosis. That first year is so hard and such a whirlwind of learning.

    Did your doctor tell you about Dexcom? or the other cgm? They are a game-changer that gives our kids the most normal life possible. If they didn't, call Dexcom and ask them to start the procedure. Every T1D should be offered one in the hospital to come home on IMO.
     
  3. Christopher

    Christopher Approved members

    Joined:
    Nov 20, 2007
    Messages:
    6,741
    Welcome, but sorry you have to be here. The early days are very tough and the best advice is to just take things slow, one day, one meal, one blood glucose (bg) number at a time. There are many parents on this site who have children who were diagnosed as toddlers so I am sure they will chime in with great advice for you.

    Here are a list of books you may find helpful:


    Type 1 Diabetes: A Guide for Children, Adolescents and Young Adults -- and Their Caregivers
    by Ragnar Hanas, M.D. Published by Marlowe & Company, New York,
    http://www.amazon.com/Type-Diabetes-.../dp/1569243964


    Understanding Diabetes (aka The Pink Panther book)
    by Dr. Peter Chase of the Barbara Davis Center at the University of Colorado.
    http://www.childrensdiabetesfdn.org/publications.html

    Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin
    by Gary Scheiner, Barry Goldstein
    http://www.amazon.com/Think-Like-Pan.../dp/1569244367

    Sweet Kids: How to Balance Diabetes Control & Good Nutrition with Family Peace
    by Betty Page Brackenridge, MS, RD, CDE & Richard R. Rubin, PhD, CDE. Published by the American Diabetes Association, 2002. 250 pages. Softcover.
    http://www.amazon.com/Sweet-Kids-Bal.../dp/1580401244

    I would also recommend creating a signature with your relevant information so when you do ask a question, people can better understand your situation. In the upper right hand corner of the page click on "Settings". Then on the left hand side of the page click on "Edit Signature".

    Hang in there!
     
  4. Emcole320

    Emcole320 New Member

    Joined:
    Dec 4, 2017
    Messages:
    2
    MomofSweetOne and Christopher - thank you so much for your kind and helpful replies :)
     
  5. StacyMM

    StacyMM Approved members

    Joined:
    Oct 22, 2010
    Messages:
    1,039
    Welcome. Same thing happened here - my daughter was diagnosed at 2 and it was a complete shock. She's 14 now and rocking the diabetes life :)
     
  6. johnyaya

    johnyaya Approved members

    Joined:
    Aug 6, 2016
    Messages:
    9
    From my experience: it gets easier. Diabetes for our family was an all-consuming exercise for the first few months, with calculations, shots, and sleepless nights filled with worrying. Then we developed a routine, and things became more automatic.

    A bit of silver lining for T1D families today - diabetes is so prevalent globally now that there are many companies and organizations working to make inroads into easing the daily management of diabetes. As far as the next few years go, the tools and resources at your disposal to help administer care will rapidly improve. This is something positive to look forward to.
     

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