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Follow the Endo?

Discussion in 'Parents of Children with Type 1' started by Dylan'sMom, Aug 12, 2011.

  1. Dylan'sMom

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    Brooke and Dylan's endo that they've been with for 3 years is moving to another practice. :( She is a good endo and is great with the kids but the practice she is moving to is almost 2.5 hours away. We would be passing about 4 pediatric endo's to get to her practice. We've built a relationship with her and I don't want to have to start building one all over again with a new endo. Not to mention, Brooke just started pumping and if we are going to start that relationship building with a new endo, it needs to start now. We have had visits with a few of the other endo's in her current practice when she wasn't available and they were okay but I wasn't exactly impressed with the way they interacted with the kids (they talked to them using adult terms that they didn't understand which is what I was trying to avoid by bringing them to a pediatric endo). We would love to keep her but 2.5 hours every 3+ months is just a little hard for me to wrap my brain around. Would you give other area endo's a try or just make the trek to her new practice?
     
  2. Amy C.

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    Having done this for 4 years and then relenting and switching to an in town Endo, I would think carefully about this. It is tough to do the trip that often.

    Your daughter is still young. Will you be willing to make that drive for the next 10 years?
     
  3. Lisa P.

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    I hang on to good doctors for dear life.

    I'd be more inclined to visit a good endo less often than a mediocre one more often. Maybe talk to her about doing phone consults and local lab draws between 6 month visits?
     
  4. Lee

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    Shop around before you decide. There is no reason you can't find an endo you connect with at the same practice or at some of the other closer ones.
     
  5. Hayden'sMom

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    I wouldn't trade my endo for the world, I would follow her anywhere!!
     
  6. 5kids4me

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    We drive 4 hrs plus. I say stick with the good doc.
     
  7. hawkeyegirl

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    We love our endo, but we're almost 4 years into this and at this point I don't care much who we see. I'd choose a closer-in endo.
     
  8. Helenmomofsporty13yearold

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    As the kids get older, they resent the doctor's visits more and more. I would guess that a 5 hour car ride each time, will only give them more reason to resent it, more classwork missed, more time with friends missed, boring drive, etc You can always talk to the doctors about how they address your kids. I have had to do that with interns who thought scolding a teenager was the way to go.
     
  9. Amy C.

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    This ended up being the deciding factor for us. At one point, I could schedule appointments far enough in advance to be on a day where my son wouldn't miss school. This meant scheduling 6 months ahead of time. The endo changed the policy to that you could only schedule an appointment when the last one was finished. This meant my son would see the endo every 6 months. (Maybe I should have considered it.)

    Diabetes is not the most important thing in the life of a teenager. Taking her away from school, when she has to make up all the work does cause resentment.

    It would be better to get a relationship going with an endo/CDE who are acceptable, but convenient now while your daughter is young.
     
  10. selketine

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    I agree - I'd try the closer ones and see if that can work out - you always have her as a last resort.

    I also agree with Helen that this trip will mean a lot of missed school time which is going to be hard on your 13 year old. It is such a pain to make up missed time when they are in the older grades.

    You could split them up and let the older one go local with the pedi endo who talks more "adult" and keep the younger one with her for awhile until you get settled with the pump - that way you don't have to pull him out of school as much.
     
  11. Michelle'sMom

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    We started with an endo that was a little over an hour away. She was not a good fit for us, & knowing the same policies/approach to care were shared with the others in the practice, we chose to not to give them a try. There is one other endo a little further away that we actually considered switching to, but my dd likes & trusts her current endo team...& I LOVE them. We've been driving 7 hrs (one-way) for almost 2 years. We use the drive time for girl talk & sometimes for extra help if she's having trouble with any school subjects. It's expensive (gas, food & overnight motel). And worth every penny.
     
  12. Seans Mom

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    Our endo is 2.5 hrs. away. We have had no local pediatric endos since Sean was dx'd almost 4 yrs. ago.
    We love her and would hate to lose her. However, if we were to get a local ped. endo, I would give them a try. The visits are a full day, between the drive back and forth and endo time.
    Sean loves the clinic, the child life specialist, everything except for blood draws and endo time. ;) So it would be a very tough decision that honestly might not stick. But still I think I'd at least give it a try, knowing I could switch back.
    Kind of like what we told Sean about the pump, you give a good try and if you don't like, you're not stuck with it, you can change back. :cwds:
     
  13. Jilleighn

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    We have been with our Endo for almost 3 years. When she broke the news to us in Feb that she was leaving to go to SC in May we were very saddened. AFter much discuss between my husband, researching other doctors we thought it was in the best interest of our kiddo to stay with her doctor. Loren is not fond of many doctors and she is very comfy with her endo. Her endo is now 6 hrs away and we will be driving back and forth to see her.
     
  14. MamaBear

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    I love our endo and have decided we will never move from the area we live in (even though I hate it) because I would hate for my son to not have the great care he is getting. But if our endo were to leave and move that far away, I honestly would try to find another who is closer, and try my best to work with him/her to make sure we get the kind of care we have grown used to.
     
  15. dvane

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    We go to Seattle Children's and we have a wonderful team that we see. You can PM me and I will give you their information if you are interested. We use the Everett and Seattle branch of Children's but she works at both places.
     
  16. danielsmom

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    I really like our endo...and without traffic it would take us 20 minutes to see him....but being that in California at any given time of the day traffic on our overcrowded freeways take us 45 minutes to get to him or longer..and then coming home even longer...I don't have the energy..so we are changing endos right here in our city, less than 5 minutes lol.....Same provider(Kaiser)..but I told hubby if I don't like her..I go back to the old one....(at least his on call 24/7)....
     
  17. PatriciaMidwest

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    I would try to find someone local. I agree as the kids get older it's hard for them to miss class time or activities. If you do stay with your current doctor, ask her if she could still be involved with your daughter's care if she was admitted to the local hospital.

    If you like your pump rep, call and ask them who would be a good replacement for your current doc. I was in medical sales, and I definitely had a list I would refer friends and family too.
     

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