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Endocrinologist versus diabetes center

Discussion in 'Parents of Children with Type 1' started by Williamsville mommy, Jul 24, 2013.

  1. Williamsville mommy

    Williamsville mommy Approved members

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    Hoping you all can shine some light in something for me. Please don't judge me for this question, I really am looking for insight
    We take our 4 1/2 year old daughter to Children's Hospital, in our town , endocrinology department since dx. Now, I have people telling me that we are doing her a disservice and should be taking her to a diabetes center. The closest one to us is the Josslin Center in Syracuse NY. That is 3 hours away. Of course I am willing to do whatever is the best for our little one, but just uneducated I guess in the difference or if it is necessary



    Please help me
     
  2. TheFormerLantusFiend

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    From being on CWD, you should have a pretty good sense of if you're doing well with the diabetes, relatively speaking. If you feel that you're getting good care where you are, and the diabetes is controlled enough, you like the diabetes team you have and your daughter likes them... why change?
     
  3. Amy C.

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    Unless you are dissatisfied with the care your daughter is getting, there is no reason to switch.

    What are the reasons these people give to switch? Do they live with diabetes?
     
  4. Williamsville mommy

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    Only through the contact with my daughter.
     
  5. Sarah Maddie's Mom

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    What would you hope to gain? What do these people think you would get, that would be of value to you and your daughter, by switching?
     
  6. Brenda

    Brenda Junior Member

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    If you are satisfied with the care you are receiving, you should not feel pressured to change.

    Who are these people? Are they other parents who were dissatisfied at your local Children's Hospital? People with type 2 who are clueless about type 1? Relatives?
     
  7. hawkeyegirl

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    I have read some things on here that would frankly make me pretty reluctant to take my son to a Joslin Center, but it's hard to make a decision like that based on a few anecdotes.

    The one thing that the big diabetes centers appear to have that our endo's office does not is the opportunity to be involved in studies and trials. I'm not nearly interested enough in doing that to seek out a big diabetes center, though.

    Frankly, at this point all our endo does for us is to write prescriptions. I'm The Decider when it comes to my son's D care, and I can't imagine what more a center could do for us that I can't already do myself.
     
  8. mamattorney

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    Now I'm going to plead ignorance. What's a diabetes center?
     
  9. Beach bum

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    We go to Joslin in Boston, and with the affiliates, you don't necessarily reap the same benefits as going directly to the center. But, it doesn't mean it's not good. Many of the satellites don't see pediatric cases either. There is one 5 minutes from our home and they don't. The endo is also a dud, while the nurse is good. IMO. Worth driving to Boston for us for a good doc and nurse.
    However, if you feel you are receiving good care and that you work well with the team, why change? Just because a doctor isn't working at a children's hospital or a recognized diabetes clinic, it doesn't mean they aren't an exceptional doc. They could have their own reasons for staying in a small practice.

    IMO. Who cares what others say? If you and your child are happy, then don't try and fix something that's not broken!
     
  10. Beach bum

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    It is a clinic that has soup to nuts. Nurse, endo, eye doc, dietician, social worker. Scientists doing research, studies to participate in. Most are affiliated with a hospital and medical school. Example, we go to Joslin. They are affiliated with Harvard Med and Beth Israel Hospital. You get docs who teach a fellows doing research.
    I like going to the Clinic because of new things going on and the ability to participate in studies.
     
  11. Mish

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    We are close enough to Boston that it would be easy to transfer our care to a large center like Joslin, however, we're much closer to UMass and they have a great children's medical center, with a pretty good sized pediatric endo department with all the same things that they have at a larger diabetes center. We have access to the endos, nurses, nutritionists, social workers, etc. So just because your Children's hospital isn't called a Diabetes Center, doesn't mean you're getting substandard care. I heard similar things early on, and frankly there was nothing that Joslin could offer us that we didn't get at home. And quite a few things Joslin wouldn't offer us that we did get at home.
     
  12. mom24grlz

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    we take Ashleigh to our children's hospital also. They have a diabetes and endocrinology department. so they don't just focus 100% on diabetes. We've always been happy with the care we receive.
     
  13. Beach bum

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    Ya. If we weren't happy with our Joslin team we would have definitely have looked into using UMass. I've only heard good things about the level of care offered there.

    I agree. Center or clinic does not need to be part if the name to offer one stop shopping. Children's Hospitals and even regular hospitals offer a lot of the same and sometimes even more.

    Clinics/centers are pretty much dedicated to diabetes and in some cases other endocrine disorders.
     
  14. redheadmom

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    I live in Syracuse. I intentionally do NOT go to the Joslin Center here. I opted instead for an endocrinologist who practices in town, and I have been very satisfied with the personalized care I have received from my endo and his staff. He has fought insurance battles for me, has been my "coach" and "cheerleader" over the years, and has always listened to my concerns and let me try new things.

    Furthermore, I have a friend who just switched from the Joslin center over to my endocrinologist's practice because she was not satisfied with the level of care she was receiving at Joslin. She felt like a number and not like a patient. So I'd say if you are receiving the attention and quality of care that you need where you are, then there is likely no advantage to switching.
     
  15. Beach bum

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    Sadly, this is what I've heard about Joslin. Some of the satellites definitely do not offer the same level of care that the main facility offers. We've been going for 8 years and never once have we felt like a number. My friend on the other hand, tried the local satellite and had a horrible experience.

    We are strong supporters of Joslin and it saddens me to think that their name is affiliated with some mediocre doctors at the satellites. Not saying all are bad, but the few that I have heard about are just...OK.
     
  16. ChristineJ

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    IMO, Children's Hospital (at least ours) has everything that a diabetes center has. Endocrinologists, DNE's, dieticians, social workers... The added benefit for my son is coordination of care with his other specialists, since they all work within the same hospital system. If you have been happy with the care where you are, like others have said, I see no reason to switch. :)

    Christine
     
  17. Williamsville mommy

    Williamsville mommy Approved members

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    Thank you for all the replies. I take all the knowledge that you all give to help me.
    Erin does have some other issues, but no one knows if they are diabetes related or not.
    Which I understand not everything has to be related. I guess we will go once see what they can offer, if anything, and go from there. I am happy with the care we get in our home town so I wouldn't be disappointed if I was not impressed.
    Thank you all again!!
     
  18. Beach bum

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    IMO, that is a plus, especially if you are dealing with other issues, related to diabetes or not. For example, if your kid is diagnosed with Celiac, then you can bridge right over easily to the gastro dept. I often wonder too if, because you are a patient of that particular hospital, your appointments are expedited. Meaning, you may only have to wait one month for an appointment as opposed to 3 months.

    Either way, you know what's best for your child and family. Go with your gut.
     
  19. Mish

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    Bingo, this too for us. We see one specialist outside the umass system and it's sort of a pain (even though I wouldn't trade our eye doctor for the WORLD!) For everything else, any doctor can just pull up his records and see what this or that doctor found. It's really helpful when you have complicated situations and you don't want the pediatrician or endo repeating tests that another doctor just did.
     
  20. missmakaliasmomma

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    What I've learned is most people just want to say something to say something, not because it actually has any meaning. There's no reason to go to a diabetes center. An endocrinologist is an endocrinologist. I agree that if you're not happy with the doctor you have THEN you should switch but not because people tell you to.
     

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