- advertisement -

Do you still take your CWD to the endo every 3 months?

Discussion in 'Parents of Children with Type 1' started by DavidN, May 6, 2015.

  1. DavidN

    DavidN Approved members

    Joined:
    Sep 7, 2012
    Messages:
    744
    I was thinking recently that perhaps an appointment every three months may be a bit much. Then at our most recent endo appointment he said he really only needs to see my son every six months. Despite my previous thoughts, I was still a bit surprised. I thought an appt every three months was nonnegotiable. I was wondering what everyone else does. Thanks.
     
  2. sszyszkiewicz

    sszyszkiewicz Approved members

    Joined:
    Dec 24, 2013
    Messages:
    842
    Only about 18 months in. So still new.

    We go every 3 months. My DS likes to be fussed over and he likes his endo. We also have decent insurance.
     
  3. swellman

    swellman Approved members

    Joined:
    Jul 30, 2008
    Messages:
    3,544
    Yes, yes we do.
     
  4. DavidN

    DavidN Approved members

    Joined:
    Sep 7, 2012
    Messages:
    744
    As a follow-up, what are the most important reasons for going every 3 months vs 6 months? We try our hardest on the A1C front regardless of quarterly result. Said another way, what could our endo be missing in suggesting we go every 6 months instead of every 3 months?
     
  5. nebby3

    nebby3 Approved members

    Joined:
    Jun 5, 2007
    Messages:
    923
    We try to stretch it out to 4 months and I really don't think we need to go that often. I think it depends on the parent. If you are diligent -- and most people here are or they wouldn't be here-- and are staying on top of things, it's probably not necessary to check in so often. I'm sure some parents need a kick in the pants every 3 months or to be told how to change ratios etc. kids do grow quickly and if parents aren't changing things themselves they probably need that. Also red blood cells live 3 months so that's how often they like to do A1Cs.
     
  6. swellman

    swellman Approved members

    Joined:
    Jul 30, 2008
    Messages:
    3,544
    I'm a data head so I like to see the growth curve. A1c is my primary reason. We are transitioning through puberty so ... I will take everything I can get so far as support. Also, the endo talks with him and says things I say about being diligent and responsible and he can't hear to much of that. IMO. They examine site areas for the Dexcom and pods and I feel better that we're keeping up on possible site issues.

    At some point, and I don't know when that is, I suspect I would be fine with every 6 months. I'm thinking when puberty is all over and done.
     
  7. hawkeyegirl

    hawkeyegirl Approved members

    Joined:
    Nov 15, 2007
    Messages:
    13,157
    Our endo told us a while back that he only needed to see us every 4 months. Sometimes I'm just over it when the appointment rolls around and I reschedule, pushing it out a bit more. We do home A1Cs when we're not doing annual bloodwork, so the appointments are of limited use to us at this point.
     
  8. mamattorney

    mamattorney Approved members

    Joined:
    Apr 9, 2013
    Messages:
    1,076
    Just two years in here, and yes we go every three months. Except this time there were no appointments three months out, so I made it 4 months out. Now I realized I scheduled her appointment during D camp (oops), so I've got to get in and reschedule that. It will probably be 6 months between visits this time. A home A1C is a good idea. Maybe I'll do that at the three month mark . . .

    Quite frankly, the height and weight every three months is not my daughter's cup of tea. It's the worst part of the appointment and if I didn't want to touch base every three months with questions and A1c, I'd try to space it out a bit for her. She had two appointments in a row where she had substantial weight gain and didn't grow. Then between December and March she grew almost three inches and barely gained. I know that's Mother Nature's way sometimes, but it made her uncomfortable.
     
  9. Nancy in VA

    Nancy in VA Approved members

    Joined:
    Jul 16, 2007
    Messages:
    7,308
    We do every 4. We are at the point where we don't need it every 3 and I know the practice is overwhelmed with patients so I stretch it out. Sometimes we make no changes, sometimes we do. I have access to a CDE in between so I don't feel like I'm missing anything stretching it out. I imagine that when we hit puberty that we'll go more often.
     
  10. BarbDwyer

    BarbDwyer Approved members

    Joined:
    Jul 8, 2014
    Messages:
    181
    Every three months but we are also new to it (creeping up on one year).

    My kid would never ever make a change based on my input alone so we'll keep the three months, lol.

    We change ratios but to change other things or hopefully have a discussion about pre-meal bolus, CGM or pump someday, how to handle sports, etc. - that needs to come from endo.
     
  11. Snowflake

    Snowflake Approved members

    Joined:
    Dec 1, 2013
    Messages:
    482
    My dd was dx-ed just a little before the OP's child. We still do every 3 months and we will for the foreseeable future. Admittedly, a few visits have been nothing more than a pro-forma check-in, which can feel like a waste of time when the clinic is nearly an hour from our house.

    But I like always having an appointment on the calendar because we've had some real out-of-left-field issues arise where it's nice to know that we'll be soon be talking with an expert -- over the years that's included everything from bizarre bg patterns, to how to handle group ski lessons, to dealing with school resistance in 504 negotiations.
     
  12. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

    Joined:
    Sep 23, 2007
    Messages:
    12,521
    12 years in and we still go every 3-4 months. Why? At this stage it's primarily the keep DD's head in the loop and remind her that getting support is normal and good, and to some extent, to reminder her that she has a place and a professional who is in her corner and understands the hard work she does to stay heathy. When she's on her own and making medical decisions on her own I want her to have those ideas ingrained: your endo is there to support you and being in relationship with your medical professional is a good and healthy thing.
     
  13. MomofSweetOne

    MomofSweetOne Approved members

    Joined:
    Aug 28, 2011
    Messages:
    2,739
    Every three months, both for the reasons Sarah stated and also because she hopes to pursue a certificate that has very strict guidelines on diabetes management. Every three months is one of the requirements. We used to push them out to 4 months, and once was 6 due to a family death the day of an endo appointment.
     
  14. jenm999

    jenm999 Approved members

    Joined:
    Apr 30, 2014
    Messages:
    855
    Hey, Barb, just noticed your sig. Your D day is on D day! </off topic>
     
  15. LoveMyHounds

    LoveMyHounds Approved members

    Joined:
    Jan 31, 2012
    Messages:
    325
    Endo twice a year and the nurse educator twice a year.
     
  16. Jordansmom

    Jordansmom Approved members

    Joined:
    Aug 23, 2008
    Messages:
    2,172
    Our Endo told us we only needed to come in every 6 months after a few years. The endo wasn't really doing anything we weren't doing on our own. My DD and I were happy with that mostly. But she hit the typical burn out at a certain point and I don't know if it was better that she only went every six months or if it let her slip without that frequent Endo check in and reset we might have needed.
     
  17. Cheetah-cub

    Cheetah-cub Approved members

    Joined:
    Feb 18, 2014
    Messages:
    241
    How do you do home A1Cs? Do you have your own A1C device at home? If so, how can I get one? Do I need a prescription for it?

    We see our endo every 3 months. We like our endo, and hope to continue to see her (or her team member) every 3 months. It seems even people who had T1D for a long time generally see their endos every 3 months.
     
  18. LoveMyHounds

    LoveMyHounds Approved members

    Joined:
    Jan 31, 2012
    Messages:
    325

    http://tinyurl.com/n9gehfg or Walmart :)
     
  19. Cheetah-cub

    Cheetah-cub Approved members

    Joined:
    Feb 18, 2014
    Messages:
    241
    Nice! I had no idea that you can just go out and buy one of these so easily. Thank you!
     
  20. Beach bum

    Beach bum Approved members

    Joined:
    Nov 17, 2005
    Messages:
    11,315
    We do every 3-4 months for the exact reasons Sarah stated. Plus now the doc or nurse talk to the girls on their own, so I think it's really important for them to be aware of the process of care. Have I've felt it wasn't necessary to go? Sure. But I still do because I usually always get something useful out of the visit. Plus, my kids love visiting still with the child life specialists. We've known them so long we consider them friends.
     

Share This Page

- advertisement -

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice