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Design graduation project: I need your help!

Discussion in 'Parents of Teens' started by rlv, Aug 4, 2013.

  1. rlv

    rlv New Member

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    Hi,

    I'm Ronan, a French industrial design student and I am currently preparing my graduation project about "Diabetes management". I'm currently in London for few months, and would like to know if it was possible to talk and share with you on the subject of diabetes, or if you had any recommendations to give me? I think there's still some improvements to done regarding diabetes management, and I find this subject quite interesting!

    I'm still at an early stage on my "design process": have to define the user (I was thinking of children, because products are not really designed for their needs and it's quite hard for a child to manage this disease.) - but I'm still open to any suggestions.

    I have to identify problems and opportunities, and I think that you can really help me with that, because you are directly concerned! I hope to get feedback on problems you are faced to, products that do not work, your concerns about the consequences of bad management, what you would change and so on. If it also possible to meet some of you, to observe the way you manage your treatment, that would help me a lot! My goal is not to change the shape of an insulin pen, it's more than that - I can't cure the disease, but I can try at least to make it more "human" and integrated into your everyday life - if that makes sense?

    Thanks in advance, looking to hear from you soon

    Ronan
     
  2. Jeff

    Jeff Founder, CWD

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    Please keep us posted on your project and report back when you are finished.
     
  3. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    Hi, you might want to keep an eye here on the 12th when the announce the "winners" of this competition and see what proposals they put forth.

    http://www.diabetesmine.com/2013/06...smine-patient-voices-scholarship-contest.html

    As to your question: I'm not 100% sure I understand what you need from us. Can you be more specific about your project goals, type of end product, etc?

    Off the top of my head I'd say that data integration is my biggest pet peeve. My kid is on an insulin pump, there's data there, she's on a cgm, there's data there, she has an i:phone where she might looks up carb counts, data there and she uses a bg tester to calibrate and confirm the cgm info, there's dtat there but I have no way of blending these data streams and making them accessible to me in a meaningful way. So, yeah, without knowing more about your project that's the best I can come up with. :cwds:
     
  4. mmgirls

    mmgirls Approved members

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    What is your major? I do notknow exactly what "industrial design" is???
     
  5. wilf

    wilf Approved members

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    I'm game, tell us more about how we can help.. :cwds:
     
  6. rlv

    rlv New Member

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    Hi everybody,

    Very sorry for the late reply!

    To answer your questions:

    -I'm preparing a master degree in product design; Product design is about creating new objects, such as furnitures, bicycles or toothbrush, to make it simple. It's quite open! I'm specialised in Responsible Innovation, which means that I have to addresses new challenges brought about by ongoing social evolutions, and design solutions for the well-being of the user. It's user-centered, and in my case it's about children who have diabetes, but also their parents.

    -So right now, as I said previously, I'm still at an early stage in my project. I can't say right now what's going to be my final project, but I need your help to build this project. I think it's always better to be in touch with people faced with particular problems, to able able to solve them as better as possible. I'm looking to meet parents and their children; 8-12 years old maybe, as it seems like it's the average age when children are more or less autonomous regarding the management, but younger one would be good also. I'm based in London right now, but I'm going to travel from France to UK for this project. I need to meet people to be able to observe the way you manage diabetes, to ask question about your feeling, when you're making injections or blood-sugar control, and so on. It could also include some "workshops" with children; Make them involved in the process development of the project, through sketches, games, paper model test and so on, to get feedback from them. This observation is the key point of my research, and the starting point of my project actually. So if you're interested, don't hesitate to get back to me, and if you live far away from London, I'm still interested to have feedbacks from you!

    And if it's not clear enough, feel free to ask any questions!

    Have a nice day,

    Ronan

    (Hope my english is ok?)
     
  7. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    Hi Ronan,

    I just wanted to say that, yes, your English is fine, but I admit, I'm not sure just what it is that you are doing or how we can help.

    I don't believe that you are being ignored, I just suspect that folks who are not in London don't know quite how they can help.

    It may be that you come across as someone who knows very little about the nuts and bolts of managing a Type 1 kid's health. Most 8-12 year olds, for example, are not independently managing their care. It's not a simple disease to manage, and most of us adults struggle with all the factors, both those that are measurable and somewhat predictable and the many, many that are not.

    I hope you get to complete your project, but I just don't know how we can help you get there with what you've posted.

    Good luck :cwds:
     
  8. Ali

    Ali Approved members

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    You might try making an appointment with an Endocrinilogist or Diabetes educator at a clinic that you can visit. Try visiting three different clinics. Also go online to Amazon and order some basic books on T1 Diabetes. Good luck
     
  9. Joretta

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    What about a gizmo to boost the CGM alarm vibration to a sound omitted loud enough to wake a teen and a sleep deprived parent.
     
  10. mmgirls

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    Something that I have run into more recently is language barriers.

    I am a clinical aide in the school system and am helping children that 1st language is not English, and parents and I do not speak the same language and are having to use either the child or a person unfamiliar with diabetes to translate.

    We have standard forms that we fill out that have a ton of information that would help a parent know why there BG is what it is after school. Yet these are the school forms, and unless the parent comes to me and asks this "data"" is lost and is just filed away.

    I wish there was a way to transmit this info in a meaningfull way to parents in real time. And there be the possibility for conversation and understanding.

    Another issue that I personally have been having with trying to transition my daughter to being more independent is those first steps to I dependence which should have adult over site.

    I do not want the nurse/clinical aide go to her, nor do I want to charge the classroom teacher with the over site of the decisions that need to be made. YET, we can not move forward without each piece of the puzzle feeling like she is safe.

    So we need some sort of device that the child and the responsible adult charged with overstate can communicate not only verbally but visually that does not require a cell phone plan/ data plan! Or at least have the capibilty to have more than 2 devices that can talk to each other.

    I hope that all makes sense.
     
  11. Joretta

    Joretta Approved members

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    I am not sure why your asking for a walkie talkie to communicate that already exists but costs way more than cell phones. Most school have an ESOL coordinator who can provide software that translates and ADA I am sure has material in most languages. There is also Skype but it would be disruptive. I am also partially confused that you don't want the nurse nor the teacher to help her gain independence. Have you sent your child to camp that is the perfect place to learn independence. The child could also use a computer and blue loop site to transmit numbers, but no matter what you use the adult there would need to make sure information is being entered accurately. I am not trying to shoot down your idea just clarify.
     
  12. mmgirls

    mmgirls Approved members

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    Lets see if I can clarify;

    First off, it is not hat I do not want the classroom teacher to be involved it is just that we have a great school nurse and clinical aide at the school that know her just as well as mom/dad/grammy.

    Sometimes I think the clinical aide makes better judgement calls that I can over the phone because she is "seeing and hearing" my daughter as apposed to me knowing what her number is, how long it has been since the last bolus and the clinics discription of what they see/hear.

    I want her teacher to be watchfull but not charged with making diabetes related decisions becuase we already have a great team there to help her.

    My dd can use the phone system in the school to talk to others in the building but what I really ment to say to have the ability for her to talk to someone aoutside the school building, Like mom or dad at work or Grammy that is out shopping. The ability for it to be video too like skype would be great.

    Yes there are cell phones and apps for that. But I want something that is like a cell phone but not. I want a dedicated Diabetes device for when she is learning to be responsible and gaining independance. It would be a "god send' if that device could upload the info from her other devices like her CGM and PDM and transmit them.

    She went to camp this year and gained so much independance and knowledge. Yet she is 8years old and we are starting to transition age appropriate tasks to her while at school and home. She can and will do her nightly injection of Lantus, she can and will apply a new POD and start it up (cant quite get the cartridge filled up).

    We started this school year with wanting to implemet so much more independant tasks at school but we just could not get a good system going that had everyone feeling like all the bases have been covered.

    I guess my biggest issue is that I want Diabetes devices that are "mine/hers" not the shools phone or computer or computer connetion. I want her to have these devices with her at all times whether that be school ordance class or at a sleepover. I want consistancey in the system that we use to for upto date communications.

    I have to go but will come back to clarify other points.
     
  13. Joretta

    Joretta Approved members

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    Thanks for clarifying I understand better now. Sorry for not getting it at first. Maybe a wireless chip and mini camera added to her pump,meter,and CGM with a program to automatically send video feed and data to a set receiver. Wow that would awesome.
     
  14. mmgirls

    mmgirls Approved members

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    I just want something that is Designed for Diabetes management! Not us trying to figure our how to "Jerry Rig" off the shelf itmes and make it work.

    I know this is totally not safe but I would love to be able to control her pump remotely!
     

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