Discussion in 'Parents of Children with Type 1' started by Diabetesdad, Feb 4, 2011.
In no more than 3 sentences---please. Kindly define what a cure means to you?
No more poking, counting, measuring, treating, insulin, pumps, meters, lancets, strips, alcohol wipes, tapes, glucose tabs, glucagon, syringes, special bags, pouches, medical ids, and endo visits.
Whats that ok for you?
Complete remission for a long period of time.
A normal functioning pancreas with no ongoing therapeutics.
EDIT: ... but I'll gladly take what I can get in the meantime.
I agree with Swellman here... and it worries me (just a bit...).
Personally, I don't believe that a "cure" will happen in my daughter's lifetime (she's 10). I'd be happy, but I don't think for a second it will happen.
A normal functioning pancreas
A reasonable facsimile organ which does the same thing, and that requires no rejection drugs and is not the AP.
Something that will allow me to function for the rest of my life with normal blood glucose, without me needing to do anything (beyond the initial procedure).
I wouldn't consider remission to be a cure, but it would be awesome. I have similar feelings towards the AP.
Yeah. What she said.
A cure IMO would mean my child would never have to do anything or have anything attached to her body etc that people without diabetes don't have. No finger pokes, shots, pumps, cgms, carb counting, pills etc. No more endo visits or any other specialist visits. None of this ever again.
I asked Lia if she still had to check her blood sugar say once a day or take pills would she think of that as a cure and she said no. I asked her what she thought she would have to do if she was cured and she said nothing. That's what a cure is.
Other things would be great, I'm very excited about the idea of the artificial pancreas. But I certainly wouldn't call it a cure.
Sorry I went well over two or three sentences but I'm not good at keeping things short.
I'm with swellman on this one.
A cure to me would mean that the pancreas starts producing insulin and Ashleigh would not have to be on a pump or take MDI.
1) When my son can eat/play/sleep without having to check or treat or
2) When his pancreas functions normally without medication.
But like others have said, I'll take any improvement I can get. Take a pill once a day? I'm on board. BG checks without a poke? Yep. I'd love it. A machine that takes a smidge of food and accurately calculates the carbs? I'll take two, please. Any advances that give my child more freedom and less pain would be much appreciated.
My Definition of cure
No Diabetes, and mental freedom 24/7/365.
When my little guy can wake up, eat, go to school, eat, do homework, eat, play hockey, eat, go to bed and sleep soundly through the night. All that and never ONCE have to think about blood sugar levels - aka life before diabetes :cwds: That's a cure for me.
To live complication free lives untethered to any machines, pills or pokes would be a cure.
The day where I believe we could wake up in the morning eat whatever we want, go in the car for a trip with just the clothes on our backs and not worry about what we have packed or where the nearest ER is...the feeling of freedom would occur quickly after a cure.
What he said.
In three words
No more insulin.
Mindless and apparatus-free, healthy pancreatic function.
Yes, this says what a cure is to me as well.
But...taking a pill or even a shot once-a-day for euglycemia would feel like a cure (to me).
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