Crappy Day... (long)

So our DS who just turned ten has been reporting leg pain off and on for about 2 years, usually following intense activity (football track skateboarding alot) and usually at night. He is about 5-3, grew alot lately, so we attributed to growing pains. We have noticed this pain increasing quite a bit lately ( to the point of hysterically crying at night). Ibuprofen (nurses phone advice) doesnt seem to help. Anywhoo, DH and DS were sitting on the couch horsing around and DH was tickling him to see if he was "girl crazy". All of a sudden he yells for me to come check on DS leg! I felt what he felt and it felt like a bone on the inside of his mid-thigh poking out!

So Im freaking out..called peds office and today was the soonest they could get him in. DR. starts poking and prodding his leg, bending, stretching, asking about falls accidents, then he tries to casually ask about bone abnormalities and the cancer history of our family. I think I just about passed out.... Sends us directly to the xray place for xrays. He calls us and says that what showed up was something that looks like an extra bone going from the knee joint to mid thigh.

He will contact the specialists in Omaha at Childrens and call us back right away in AM. Since its causing pain it has to come out. No mention of what is causing it or anything.

I am freaking out! I sit here and brace myself for worst case scenarios while trying to be positive,

I tried searching on BING but cant find a single reference for a double femur bone anywhere and when I type in symptoms I keep getting pages for bone cancer! Ugggh!

Sorry to vent its just been another rough day at our house. Makes me wonder what else could go wrong medically!

Thanks all!

 

Hugs! I will be praying. I have heard of someone having extra bones in their feet and they had them removed at Childrens in Omaha.

 

I'm so sorry!!
Please keep us posted

 

Ugh Candi, I'm so sorry for this going on. When in Omaha, if you want company/someone sitting with ya, let me know. If I'm in town, I'll be more then happy to drive over. Hugs and prayers to you all.

 

my DD has an extra bone in her ankle - it bothers her sometimes, but they told us it's no big deal, just a genetic aberration. Hopefully that will be the same with your son's - just that his needs to come out because it hurts him more. Keep us posted!

 

Oh how scary for you and how scary and painful for your poor DS . Just thinking about it tugs on my heart . I hope that whatever it is can be resolved swifty and completely.... Sending lots of healing thoughts your way...

 

Thanks ladies for your thoughts..now that the kids are in bed I can sit here and cry like a baby b/c it wont scare him.....been scouring the net for info but keep drawing a blank.....


Michelle..As soon as we know when I will get ahold of ya!

 

My brother has extra bones throughout his body. The doctor said it's not uncommon, although it can be annoying. Hoping this is the case for your son.

 

Thinking of you and hoping it's just an extra bone and nothing else to worry about. Maybe with his growth spurts, the bone is not growing like the other and is just in the way and needs to come out. Hope you get positive news, hang in there. And maybe not search the internet too much anymroe, sometimes, no -- most times it can make us all crazy with self-diagnosing! (personal experience of course! I admit, I'd be doing the same thing tho ) Even I have extra bones, two extra ribs!

Best wishes, thinking positive thoughts for you!

 

I have learned that it's rarely helpful to Google (or Bing) symptoms when you're unsure of a medical problem. WebMD should come with a warning! Seriously, there's not a single symptom you can put in there that WON'T come up with cancer as a possibility. Runny nose? Cancer! Dry skin? Cancer! Sore foot? Cancer! Run!!!!

Regardless, it sounds like your son has had a rough time, hopefully surgery will take care of it and he'll be back to normal in no time!

 

I hope it's easily resolvable. I'm so sorry.

 

Heard from ped this am...had radioloy report. They are saying its a 6x3x1 osteochondroma growing from the growth plate of his femur. Meeting with a visiting ped ortho here on mon at 7:45 am for surgical excision. Due to rapid growth of tumor investigating osteosarcoma with MRI..... Wish we could catch a break. Pretty painful today with all the poking and prodding yesterday.

Thanks for your support all, It makes me feel less alone even though this is totally not D related!

 

(((((MikailasMom))))) praying that they just remove it, and that will be the end of that.

 

Same here, Good luck to you and hope that your little one feels better soon.

Kathy

 

we have known severale people who had extra bones in their legs/feet they just had surgery wore a cast for a bit and then moved on with their lives. don't get me wrong its to fun and thats pritty scary but I hope and pray that thats all that will happen to your son

 

OMG!!! I am praying for you. I know it is a scary time. We are here for support.

 

Sending positive thoughts that when it is all taken care of he will no longer have the pain and all will be well again. So scary and what a terrible surprise to have to deal with, but at least you are finding answers and it sounds like you have some good medical care there! Waving my magic wand to at least erase some anxiety. Praying that God will take care of the rest. (((huggss)))

 

I'm very sorry for the dx, and hope that once taken out, it'll be the last of it.

 

Stay Positive

Sending positive good thoughts you way. We all hope you will let us know how it is going...=) Stay strong.

 

Sending positive thoughts and prayers to you. I hope it gets resolved with surgery and he is back to himself soon!