Welcome Nicole, to the club that no one wants to belong to. But since you had to join us, I will say this: This is an awesome group and many parents and grandparents here have been where you are now. I have no advice to add to what the others have given, but just wanted to welcome you and let you know you can also join us in the CWD chatroom for parents. My dd was dx'd at 13, is now almost 25, married and healthy. She played sports throughout high school and beyond. Your son can do and be almost anything he wants to. God bless you all.