- advertisement -

Can I just put him in a bubble?

Discussion in 'Parents of Children with Type 1' started by Charmed7, May 17, 2013.

  1. Charmed7

    Charmed7 Approved members

    Joined:
    Oct 18, 2007
    Messages:
    812
    More of a vent, only you will understand, post....

    But can I just put my son in a bubble and keep him there for my keeping? I'm so tired of the adults in his life just "messing" up by him constantly.

    He's going through a lot with other stuff right now which is a whole-other Oprah show, but last month he was hospitalized for mental health reasons and his A1C went from a 7.0 to an 8.0! I talked to the nurses responsible for his care and this was how the conversation went.

    RN: "He had a snack a little while ago. His sugars are 400 now."
    Me: "Did you give him insulin?"
    RN: "No the orders say to give insulin during meals. Not snacks."
    Me: "Well, food is food, carbs are carbs, and carbs break down to glucose which will cause his sugars to go up. So you really need to give him insulin for all 'FOOD' you give him. Make sense?"
    RN: "Yes, ok, we will have the orders changed to say food."
    Me: "Great!" <walk away in hopes they understand>
    Phone call the next day:
    RN: "He's sick and doesn't want to eat, so he just drank some hot chocolate and his sugars are 600."
    Me: "Did you give him insulin?"
    RN: "No, he didn't eat anything."
    <OMFG!!!>

    Now that he's home, his sugars are back under control. Then his school places him with a private tutor. He's with the tutor for 2 hours a day and both days he comes home with sugars over 200. I email the tutor and ask him if he's eating anything while he's there. His email back, "Yes, he had an icecream sandwich and chocolate milk yesterday; and cookies, chocolate milk and a poptart today. Are there any dietary restrictions due to his diabetes?"

    Are you kidding me? As my cube-rat mate said, "Are you dumb, or just plain stupid?"

    I'm becoming more and more speechless as the days continue.

    C7
     
  2. Mish

    Mish Approved members

    Joined:
    Aug 20, 2009
    Messages:
    1,393
    That sounds so frustrating! I know you're venting, so I'm not going jump in with advice, but in the grand scheme of things especially with all that he's got going on in his life, I think the jump in a1c is probably just a passing blip.

    Hang in there.
     
  3. Charmed7

    Charmed7 Approved members

    Joined:
    Oct 18, 2007
    Messages:
    812
    Yea, I know. It only bothered me when the social worker there called to tell me he won't be released until is diabetes is under better control. That's when I went up the ladder and prooved over and over that it was their fault his diabetes was not "under control" to which the dr responded, "I don't feel like this is the right environment for him and that the best place he can be is home." Thank you! Someone reasonable!
     
  4. Amy C.

    Amy C. Approved members

    Joined:
    Oct 22, 2005
    Messages:
    5,560
    It is frustrating that not all medical people know how to treat diabetes. You have to be specific with them.
     
  5. Mish

    Mish Approved members

    Joined:
    Aug 20, 2009
    Messages:
    1,393
    motherhubbard. What's wrong with people??
     
  6. CaitlynGrisham

    CaitlynGrisham Approved members

    Joined:
    Mar 12, 2010
    Messages:
    265
    Wow. That is so frustrating!

    I think, in this case, it might be best to take this opportunity to educate. Maybe, if you have the time, stop in and give a short education talk on diabetes, including food and insulin, etc.
     
  7. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

    Joined:
    Sep 23, 2007
    Messages:
    12,521
    Just sorry to hear that things are so rough right now.:( Hope things look up soon!
     
  8. theMad_D_Dad

    theMad_D_Dad Approved members

    Joined:
    May 14, 2013
    Messages:
    34
    I feel your pain! we have been fighting this same exact thing everyday since my daughter started kindergarden. Makes you wanna grab them by the neck, start shaking as you yell "WHAT IS WRONG WITH YOU!!!" We started keeping her home on days that we were afraid something might happen, but truancy officers don't tend to like that very much.
     
  9. sooz

    sooz Approved members

    Joined:
    Dec 4, 2009
    Messages:
    2,330
    Uggggghhhh.......:(:mad::eek:
     
  10. Lee

    Lee Approved members

    Joined:
    Oct 5, 2006
    Messages:
    9,633
    I was just thinking of you and your son this week! It is good to see you back, but awful for such a reason. I hope that they can remember to bolus for carbs - that is just plain stupidity there.
     
  11. Joretta

    Joretta Approved members

    Joined:
    Nov 7, 2009
    Messages:
    528
    I would not worry about a truancy officer. You need your 504 read for no penalty for medical absences. Then they can't touch you.
     
  12. quiltinmom

    quiltinmom Approved members

    Joined:
    Jun 24, 2010
    Messages:
    1,189
    So sorry you're dealing with this. (((Hugs))) It's one thing for a tutor to have no idea, but a nurse at a hospital? Even a mental hospital nurse should have an idea of the basics of type 1 diabetes, IMO. And *everyone* shoudl be expected to know that hot chocolate has carbs in it! I totally understand your frustration. Good luck getting it all sorted out!
     
  13. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

    Joined:
    Sep 23, 2007
    Messages:
    12,521
    How did you know which those days might be?
     
  14. momof2marchboys

    momof2marchboys Approved members

    Joined:
    Jan 26, 2012
    Messages:
    239
    We were in the same boat this school year - I could guess which nights we were going to have goofy numbers based on the "special" activites on the school calendar that came home each month - extra parties or activites - Whatever I told the teacher I think went in one ear and out the other b/c she didn't have to deal with the end results of her unwillingness to learn or comprehend what I told her.
    Hoping next year is better
     
  15. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

    Joined:
    Sep 23, 2007
    Messages:
    12,521
    So you kept your child home for those days? Any day with a special activity?
     
  16. momof2marchboys

    momof2marchboys Approved members

    Joined:
    Jan 26, 2012
    Messages:
    239
    No I didn't keep him home those days but prepared for the worst and actually the 1st half of the year the teacher sent him home either the day before or the morning of the activity by saying he was having "seizure" activity as he also has a seizure disorder - :rolleyes: she just didn't want to deal with counting his carbs, doing extra checks ect - my favorite was the one time they called me to come get him right before a party at school not knowing I was actually on my way to the party to help with it! He seemed to be just fine once I got there and was going to stay for the party but prior to that they seemed to think I needed to come get him and he go home for the rest of the day.
     
  17. Charmed7

    Charmed7 Approved members

    Joined:
    Oct 18, 2007
    Messages:
    812
    Aw, thanks! I wish I could come here more often. But work is often too busy to stop and check in, and at home I'm lucky if I get to sit down with a cup of hot coffee without a kid sitting on top of my head (or trying to drink my coffee!)

    So for the next act, I guess on Monday he "fell" down on the floor with the tutor and faked a seizure. The tutor responded, "Wow, that was weird how you just laid down and started shaking like that. Lets work on this assignment now." ha ha ha! I wish I was a bug on the wall! He reported the incident during a group therapy session with peers and they were all appalled that he would fake a seizure. We're hoping that will deter him from doing that again. Kudos to the tutor for not making a big deal out of it.

    <sigh>
    C7
     

Share This Page

- advertisement -

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice