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Anyone else seeing this trend lately???

Discussion in 'Parents of Children with Type 1' started by Heather(CA), Oct 30, 2009.

  1. emm142

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    And I agree with the sentiment. But sometimes I feel like it's taken a bit far.. Just because someone is trying to get a lower A1C, that doesn't mean they are being obsessive or damaging themselves or their child. But that's just my opinion. (NB. I am a little sensitive on this issue, so take what I say with a pinch of salt. I have been accused by medical professionals who don't even know me, let alone have a specialism in diabetes, of being "devoted" to diabetes and "obsessed", because I test 12 times a day, and it might have made me a bit touchy on this subject... Everybody should do what they feel they need to do.)
     
  2. AlisonKS

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    I've read a few snips about things like that, along with anti-mdi's. Whatever. My kid is happy, the endo is cool with his numbers. She really pays more attention to the logbook-thats where you can see what's really going on.
     
  3. frizzyrazzy

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    I see that too Heather - and I've felt it myself. We've been in the high 6's we've been in the low 7's. My dr keeps telling us that we're doing great - someone else mentioned it - the great majority of patients that these dr's see are getting a1c's probably in the 8's and 9's. I think all of us here operate from a completely different set of standards that other diabetes parents, and one thing I think we're right in the middle of seeing is the shift in thinking from "under 8 is good" to "under 7 is good". So we're caught in the middle. On one hand all the current research says that for young kids under is 8 is good..but yet we all know that with the newer tools we can probably get under 7, so we're stuck trying to feel like we HAVE to get under 7.

    My guess is that in 5 years or more when most kids are wearing cgms and pumps we're going to see that shift change completed, and 6.5 will be the new 7.5 and we'll probalby look back and think OMG I can't believe we thought an a1c of 7.5 was good! LOL. So I think that's where some of the pressure comes from now.
     
  4. GaPeach

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    Bumping this post up. :cwds:

    This is worth a re-read. Tricia has lived with D - most of us have simply lived with a child with D.

    Consistancy makes a huge difference in the daily life and overall health of the one with D.

    Our 11 year old daughter starting having a long run of highs due to a myriad of factors. We did lots of adjustments over time but never had a problem with sudden lows. (I:C, basal, ISF, TDD) It has taken a while to get her down below 200 consistantly. Her A1C this week was 8.1. She had grown 1 inch and gained 6 lbs since her last 3 month visit. can you say - MASSIVE GROWTH Spurt!

    I knew that her A1C would be around 8. I was OK with it because for the last 3 weeks her meter average keeps trending back down. She feels horrible if we pull her back down too quickly. Current meter average is 169 which is about 7.5 A1C. :) With diligent management, we expect the trend to continue downward without risking sudden lows.

    The school nurse has noticed that several of her D students are trending higher than normal this year in middle school. :confused: She has been the middle school nurse for many years - so she has seen lots of D students through puberty. She has a theory that some of the higher numbers may in fact be due to their immune system fighting the H1N1 flu strain that is running wildly through the school system. I'll take an elevated BG due to an active immune system over contracting the flu anyday of the week.

    My perspective is that I will do everything possible to aid my child in having the healthiest life possible. I will not become neurotic in doing so. Life happens.
     
  5. GaPeach

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  6. Gaia

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    Im not trying to, I promise. I know what Caspi meant and I agree with her because sometimes it does feel that way. Sometimes, not always.

    Maybe I shouldnt have replied it this. I wasnt in a good head when I read it. Sorry. :eek:
     
  7. kpoehls

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    I think the post that is referred to here was mine. The reason that I posted was because it seems that many folks here on CWD would NOT be satisfied with 7.3. I don't even know if it is true that I see "room for improvement". I was just wanting insight from those with more experience.

    Please know that I, as a "newbie" am not beating myself up. At this time, I don't have a "target" for A1C. All I am concerned with is keeping her in range (80-180) 80% of the time.
     
  8. Gaia

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    Well like I said before, Joeys endo wants him between 6-8%. I know, in my common sense brain, that 8.6 isnt really too high above that and if I set my mind to it - test every 3 hrs so we can control the highs better - we can get his A1C below 8. My illogical brain - the one that stresses and worries and has lousy self esteem - thats the one telling me Im not doing good enough. I need to listen to my common sense brain. I do better w/ step by step instructions ( test every 3 hours, cover if high, double check all carbs, check ketones if over 300 ect) rather than vague ( check often, keep between 100-150, ect). Stacy ( Joey's endo nurse) never says ' you need to do a better job' . She says 'ok, this is the pattern I see, so do this, this and this - give it X days, then we'll re-evalute and adjust again if needed'. She also says I can do this on my own, that I dont have to check with her first but I can if Im not sure. She's great, answers all my emails and calls patiently and is great for 'talking me down'.

    Heather, I didnt mean to sound 'snarky' or anything about this. Like I said, I wasnt in a good frame of mind over things going on at home. Im sorry if you or anyone else took what I said that way. I know, deep down, that Im doing the best for my son, and thats all I can do. :cwds:
     
  9. wilf

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    I've always found that the Hanas A1C guidelines are reasonable and sensible. :cwds:
     
  10. mom2two

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    Great thread Heather! I hope newbies read it and realize not everyone has an a1c in the 5's or 6's and people who do have them in the 7 & 8's work just as hard! Everyone is different, everyone manges different. We shouldn't put a number on our kids or our parenting.
     
  11. 2type1s

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    My endo is thrilled with an A1c in the low sevens, but she is more thrilled with our understanding of the disease, the girl's attitudes and empowerment, and their overall health! She hugs them and tells them how wonderful they are at every visit. I feel badly when the a1c creeps up, but she NEVER chastises us, and always makes me feel like a good mom. She knows it's hard work, and even with very hard work, frequent checking, and constant monitoring, you might get an 8. No one should feel bad about that.
     
  12. mom2two

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    WOW never heard that one!!! That's just wrong!!!
     
  13. saxmaniac

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    Only 80%? Getting 80% is as amazing as getting below 6.0...!
     
  14. Jen_in_NH

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    I have noticed a bit of "your A1cs have to be under 7, or you're not doing it right" I think the thing is - there's no "right" in diabetes.

    As far as A1c targets, I'd love to get Christopher as low as possible. The target I'll use is what our endo sets out for us. I chose our endo for her knowledge of diabetes, and how to help us care for our son. She certainly has spent longer learning about diabetes than I have. Even though I live with it every day now, that can give me a very skewed look at how to manage it. I can manage diabetes for Christopher very well. I probably couldn't manage diabetes for anyone else's kids nearly as well.

    Another thing I've noticed related to A1c's is people being annoyed with endo's who aren't pushing pumping and CGMS. I think many don't (particularly right off after diagnosis) because they need a better understanding of the patient, their family situation, and their ability to handle it. The endo doesn't know at the first or second visit with a kid if they're going to be completely overwhelmed and need a few months or years to get used to the diagnosis, and basic management, or if they'll learn everything quickly and want to move in that direction immediately. There seems to be a frustration here with endos who aren't pushing A1c's under 7, pumping from diagnosis, and CGMS immediately.

    Anyways, sorry for the rambling. That seems to be how my brain is running today ;)
     
  15. Heather(CA)

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    Your post is one of the ones that I was referring to (Concerned me) NOT because of anything you did wrong but because as you just said "The reason that I posted was because it seems that many folks here on CWD would NOT be satisfied with 7.3."

    I don't think 7.3 is a bad A1c at all, and it concerns me the message that's being sent, the message you got. I think we should all strive to do the best we can, our kids are in different stages, all with their own challenges for ratios etc...

    I'm glad your not beating yourself up, you did seem untrusting of your docs when they were giving you good news. Trust that ok:cwds:
     
  16. Heather(CA)

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    HI Emma, I think your confusing your issue with mine. Again, my concern is that I have seen some posts that are unhappy with low 7 A1c's. This has nothing to do with how many times you test yourself per day. I'm concerned with the message that's being sent (See post above) :cwds:
     
  17. Heather(CA)

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    I didn't take it "Snarky" I just didn't want this to turn into something different than it is...I saw yours and others frustration which in general is the reason I posted this in the first place;):cwds:
     
  18. kpoehls

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    Yeah, right... as I said... it is the GOAL. I use the 80% goal often when I run into bs readings of 534 (like today before lunch). I guess I can only do what I can do.:cwds:

    Heather, don't read into my posts that I am unhappy with the AIC of 7.3, just that the reaction of the endo team seemed to be quite different than the posts I read here. (They tell me we are doing great and other posts seem to suggest that 7.3 is not doing THAT well.)
     
  19. mollgirl

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    I have to chime in here. In the 15 months since dx my son has been all over the place with A1C's. I have also been made to feel negligent in his care because of high #'s. We do the best we can with what we have. I'd love to see an A1C of 7 or 7.5. It is sad that people can not help others without attacking their D management.
     
  20. wilf

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    Can't say I've seen any posts anti-MDI, more the case of very pro pump. :rolleyes:

    MDI is a great way to manage the D, and works well for many people.. :cwds:
     

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