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almost 7 yr old just diagnosed with T1 & celiac

Discussion in 'Introductions' started by tsoccer5, Jan 15, 2010.

  1. tsoccer5

    tsoccer5 Approved members

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    Hi, my name is Trish, mom to JT, 8, Kerry 7 Jan 24th and Landon - 3mnths old....

    we spent Dec 28---> 31st at the hosipital with Kerry being diagnosed with T1 Diabetes and then at our follow up appointment Jan 13th were told they are 90% sure she has celiac as well

    we were honestly doing well managing the diabetes so far... BUT the Celiac has thrown me over the top, we have not changed her diet yet because she is asymptomatic and we see the specialist the 21st for celiac

    looking for everything I can devour on the two subjects! while having a 3mnth old and having returned to work 20 hrs a week
     
  2. Becky Stevens mom

    Becky Stevens mom Approved members

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    Oh bless your heart Trish! Im so sorry about the diabetes diagnosis and the celiac on top of it. Youve come to the right place for support and comfort about both diseases. There are many members of the CWD family that have children with both. How are you doing? Are you getting enough rest? I know thats a dumb question with a little baby. Ask for help and accept help from anyone that offers it. People really do want to help out, makes them feel good:cwds: Come in here anytime with your questions or concerns or to vent. We are all good listeners. Once you get comfortable in here if you'd like many of us are also on Facebook.If you have a problem or question in the middle of the night there will usually be someone in here or in there.
     
  3. Flutterby

    Flutterby Approved members

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    I'm sorry you got both dx at once.. My daughter is also 7 (almost, feb 28th), has type 1 and celiac.. Do not change anything in her diet until you see the specialist.. I have heard of t1 antibodies getting in the way of celiac testing at dx.. they'll run more tests when you see the specialist.. do you know what her numbers where for the celiac tests?
     
  4. ecs1516

    ecs1516 Approved members

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    Did she have any symptoms of Celiac?
     
  5. 2type1s

    2type1s Approved members

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    So sorry for the diagnoses! Hoping for a negative on the celiac. You've come to the right place..many here have both. I had a 4 y.o. when I gave birth to Zoe (one month after Morgan was dx'd) and went back to work 20 hours a week 2.5 months later....sure is hard. I'll be praying for you all!
     
  6. tsoccer5

    tsoccer5 Approved members

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    The Celiac biopsy was positive....

    I was told "Diabetes is life threatening, Celiac is life changing"

    hoping the nutritionist calls us back soon to setup our consult
     
  7. WestinsMom

    WestinsMom Approved members

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    Welcome. I also have experience with both :( Since you do have a positive biopsy, we know that she does in fact have celiac and that there is damage happening. My son was also asymptomatic, as were a lot of our children.

    I am of the school that says take your time converting to a gluten free life style. It worked well for my son to work into it and eventually he was ready to give it up completely.

    Good luck and I am sure you will find a lot of information on this site to help you.
     
  8. Christopher

    Christopher Approved members

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    Hello,
    I just wanted to say welcome, but sorry you have to be here. You have found a great site for support and information. The early days are very tough, you are overwhelmed emotionally, sleep deprived, and scared. But over time you will become more comfortable dealing with all the things you need to do to live with this illness. You will find a "new normal" believe it or not and things will get into more of a routine. All the parents here are proof of that.

    As for the celiac, there are many parents here who I think will be of great support and help for you. If you have not seen it, there is a special forum for people dealing with celiac here:

    http://forums.childrenwithdiabetes.com/forumdisplay.php?f=5


    Here are some books you may find useful dealing with diabetes:

    The "bible" of childhood diabetes, Understanding Diabetes (aka The Pink Panther book) by Dr. Peter Chase of the Barbara Davis Center at the University of Colorado.
    http://www.uchsc.edu/misc/diabetes/books/ud11/ud11.html

    Think Like a Pancreas: A Practical Guide to Managing Diabetes with Insulin [ILLUSTRATED] by Gary Scheiner, Barry Goldstein

    Sweet Kids: How to Balance Diabetes Control & Good Nutrition with Family Peace, Second Edition by Betty Page Brackenridge, MS, RD, CDE & Richard R. Rubin, PhD, CDE. Published by the American Diabetes Association, 2002. 250 pages. Softcover. US$16.95.

    Type 1 Diabetes: A Guide for Children, Adolescents and Young Adults -- and Their Caregivers by Ragnar Hanas, M.D. Published by Marlowe & Company, New York, 2005. ISBN 1-56924-396-4. US$34.95


    Not sure what your school situation is, but here is a link to a thread that has a lot of info about dealing with schools.

    http://forums.childrenwithdiabetes.c...ad.php?t=20042


    Finally, in addition to the forums there is a chat room here where you can talk to other parents in "real time".

    http://www.childrenwithdiabetes.com/chat/

    Hang in there :cwds:
     
  9. Ellen

    Ellen Senior Member

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