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#1
05-12-2012, 07:43 PM
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Untethered is great!!!
Loving it!
we are still working on before activity carbs. It does take a bit more thought, but she is liking haveing un-covered carbs to deal with the constant Basal. I still have not figured out nights. we have had more that a few nights of hovering low, and more than a few of spiking but coming down. I think fat/protein spike are more evident without that variable basal. Of course the weather here has really warmed up. they have been in bathing suits for hours today already! So that is a big factor. But overall, she has been much smoother, I do not download the CGM but if I did I bet you the standard deviation would be cut in half! no real issue with school, because she is hooking up and unhooking herself, which gives her a smidge more responsibility even if it is benign. I am happy and she is too, literally doing cartwheels because she can without the fear of the pump falling out.
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McKenna DX 1/3/06 at 13 months now 8 YRS Pumping since 18 months and now PINGing Un-tethered DEXCOMing G4 Apidra & Lantus  Madison 5/08 Trail net Phase 3 positive for 4 of 4 auto antibodies normal OGGT 12/10, 6/11, 2/12 impaired glucose at 2hr mark  8/12 BG 166 4/13 BG 205 faith trust and pixie dust 
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#2
05-12-2012, 07:56 PM
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What does it mean going untethered?
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 Shirley Downey, CA DS Daniel 11, DX 7/11/11 age 10 MDI Novolog and Levimir DD Amanda 7 Non-D DH Vince
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#3
05-12-2012, 08:05 PM
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Quote:
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___________________________________ Lisa  12 year old DD T1 diagnosed 6/23/2011 MDI: Novolog & Lantus
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#5
05-12-2012, 08:29 PM
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Quote:
I am loving it, even with some trouble with getting used to a shot, since she has been on the pump since 18months and does not remember "shots". it was her choice and we felt we needed to try it for her.
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McKenna DX 1/3/06 at 13 months now 8 YRS Pumping since 18 months and now PINGing Un-tethered DEXCOMing G4 Apidra & Lantus Madison 5/08 Trail net Phase 3 positive for 4 of 4 auto antibodies normal OGGT 12/10, 6/11, 2/12 impaired glucose at 2hr mark 8/12 BG 166 4/13 BG 205 faith trust and pixie dust
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#6
05-12-2012, 08:56 PM
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So just to clarify, her pump lives with her meter, and after we test we hook her up and bolus and then dis-connect again until next time. so at school her pump is at the nurses office and at home it is in her D kit, not attached to her 24/7.
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McKenna DX 1/3/06 at 13 months now 8 YRS Pumping since 18 months and now PINGing Un-tethered DEXCOMing G4 Apidra & Lantus Madison 5/08 Trail net Phase 3 positive for 4 of 4 auto antibodies normal OGGT 12/10, 6/11, 2/12 impaired glucose at 2hr mark 8/12 BG 166 4/13 BG 205 faith trust and pixie dust
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#7
05-12-2012, 09:41 PM
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I've been seeing a lot about going untethered lately. I'm confused about how it is that different from MDI? Just that u don't have to draw up and give shots? When my DD was DC, people kept asking if we were going to get her on a pump like it's the greatest thing ever. But now when I see so many either going untethered or getting off it, I am thinking about waiting on looking into a pump until she is old enough to ask for one herself. Just wondering why instead of untethered, you don't just bolus with injections?
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Stephanie mom to Sage (2 1/2 yo) dx 12/11/11 MDI with lantus and Novalog
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#8
05-12-2012, 10:57 PM
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Quote:
Going untethered we are able to enjoy both worlds, the precise bolusing that calculated IOB and ISF for every BG taken and bolus given.
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McKenna DX 1/3/06 at 13 months now 8 YRS Pumping since 18 months and now PINGing Un-tethered DEXCOMing G4 Apidra & Lantus Madison 5/08 Trail net Phase 3 positive for 4 of 4 auto antibodies normal OGGT 12/10, 6/11, 2/12 impaired glucose at 2hr mark 8/12 BG 166 4/13 BG 205 faith trust and pixie dust
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#9
05-13-2012, 01:49 AM
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My 2 cents here. As a long time T1 many people/kids can manage with a shot or two shots of long acting insulin and using the pump for bolus doses-i.e. meals and corrections. Some of us need to use both a pump and a shot of long acting insulin to be able to disconnect for a few hours or to help even out site location issues/or bubbles in the tubing nd issues with insulin absorption. Some of us can do really well with pumping alone. Some of us can do really well with MDI and either simple use of insulins and shots or more complex use of insulins and shots. But as I am sure you can tell it really helps with T1 to think outside the box and to be ready to change the way you do things ever so often...if one way worked at age 5 it may not at 10, or 20, or 30, or 40 etc. or it may
 Even for me a T1 for over 40 years, getting stuck in one way of thinking is a constant battle I fight.   ali
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#10
05-13-2012, 07:44 AM
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So glad it's working well for you!
 We've thought about trying unthethered, but my daughter's basals vary so widely I don't think it will work for us. Instead we've been using omnipod in the summer/for swimming for the last couple years.
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LIBBY homeschooling mama to: Ella age 11 Dx T1 at 30 months (2/9/04). Hypothyroidism 4 years. Asthma 6 years. Evan's Syndrome 7 years. Celiac 10 years  Pumping with purple minimed since 9/07 Caleb age 8 Nick, age 6 ADHD, SPD, PTSD and mood disorder NOS (probable bipolar disorder) Lydia, age 5 SPD Adam, age 3 Allergic to everything Linnea-Claire, age 22 months
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