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  #21  
Old 05-13-2012, 12:22 PM
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Ellen Ellen is offline
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The book Pharmageddon is outstanding btw. I'm skeptical - of any claims including those of conspiracy theories, homeopathy, nutraceuticals, vitamin/supplement industry ..... endless.

I respectfully would like to know what proof you have to support the claim that the supplements you mentioned preserve beta cell survival and increase beta cell regeneration in a person with type 1 diabetes.
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  #22  
Old 05-13-2012, 01:23 PM
ecure ecure is offline
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Quote:
Originally Posted by Ellen View Post
The book Pharmageddon is outstanding btw. I'm skeptical - of any claims including those of conspiracy theories, homeopathy, nutraceuticals, vitamin/supplement industry ..... endless.

I respectfully would like to know what proof you have to support the claim that the supplements you mentioned preserve beta cell survival and increase beta cell regeneration in a person with type 1 diabetes.
Just one example but I'm sure some other members could find several researches on the natural compounds with beneficial effects on health..
Everyone is free to share the other researches. I posted firstly to have a friendly sharing with my diabetes community.

We are a community. We should share and avoid to attack us so easily and insult the other people without any remorses.

It's bad practice.. It prevents the people to express freely without any fears from those attackers.
Everyone should be free to express. We live in free world . I hope at least.. We should defend us against internet censorship.
Sometimes I feel so assaulted here. It's sad I just hope my fear will not grow too much and prevent me to express me.



I cannot due all your diligence but for your references I include two abstract about honey..

abstract:
Honey: a novel antioxidant.

Erejuwa OO, Sulaiman SA, Ab Wahab MS.


Source

Department of Pharmacology, School of Medical Sciences, Universiti Sains Malaysia, 16150 Kubang Kerian, Kelantan, Malaysia. erejuwa@gmail.com.


Abstract

The global prevalence of chronic diseases such as diabetes mellitus, hypertension, atherosclerosis, cancer and Alzheimer's disease is on the rise. These diseases, which constitute the major causes of death globally, are associated with oxidative stress. Oxidative stress is defined as an "imbalance between oxidants and antioxidants in favor of the oxidants, potentially leading to damage". Individuals with chronic diseases are more susceptible to oxidative stress and damage because they have elevated levels of oxidants and/or reduced antioxidants. This, therefore, necessitates supplementation with antioxidants so as to delay, prevent or remove oxidative damage. Honey is a natural substance with many medicinal effects such as antibacterial, hepatoprotective, hypoglycemic, reproductive, antihypertensive and antioxidant effects. This review presents findings that indicate honey may ameliorate oxidative stress in the gastrointestinal tract (GIT), liver, pancreas, kidney, reproductive organs and plasma/serum. Besides, the review highlights data that demonstrate the synergistic antioxidant effect of honey and antidiabetic drugs in the pancreas, kidney and serum of diabetic rats. These data suggest that honey, administered alone or in combination with conventional therapy, might be a novel antioxidant in the management of chronic diseases commonly associated with oxidative stress. In view of the fact that the majority of these data emanate from animal studies, there is an urgent need to investigate this antioxidant effect of honey in human subjects with chronic or degenerative diseases.
http://www.ncbi.nlm.nih.gov/pubmed/22499188


Abstract

Our study was a case-control cross-sectional study that was conducted on 20 children and adolescents suffering from type 1 diabetes mellitus and ten healthy non-diabetic children and adolescents serving as controls. The mean age of patients was 10.95 years. Oral sugar tolerance tests using glucose, sucrose and honey and measurement of fasting and postprandial serum C-peptide levels were done for all subjects in three separate sittings. The glycemic index (GI) and the peak incremental index (PII) were then calculated for each subject. Honey, compared to sucrose, had lower GI and PII in both patients (P < 0.001) and control (P < 0.05) groups. In the patients group, the increase in the level of C-peptide after using honey was not significant when compared with using either glucose or sucrose. However, in the control group, honey produced a significant higher C-peptide level, when compared with either glucose or sucrose. In conclusion, honey, because of its lower GI and PII when compared with sucrose, may be used as a sugar substitute in patients with type 1 diabetes mellitus.

http://www.ncbi.nlm.nih.gov/pubmed/19941014



Even If I would put 100 researches about honey, we will still have some attackers like we have.. Some people(companies) will attack the natural compounds till the end.. Who are they ? It's the ones who sell engineered synthetic drugs. It's not a conspiracy.. It's a reality of our industry..
Why are the doctors afraid to prescribe natural compounds instead of synthetic drugs? They could lose their job if they are out of box . The pharma industry imposes the norms to believe is a waste of time 99.9999% of time to treat with the natural compounds..The doctors are indoctrinated to believe it .


We are lucky some rare researchers still do from time to time some researchers on the natural compounds.

I know the mentality changing progressively . It's a slow process.. We cannot reverse indoctrination of a big industry in one day.
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Last edited by ecure; 05-13-2012 at 01:50 PM.
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  #23  
Old 05-13-2012, 01:48 PM
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Ellen Ellen is offline
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Please don't assume I'm an attacker. What I am is an advocate for persons with diabetes and I simply would like to see some factual evidence when it comes to claims that something increases beta cell survival or is capable of causing beta cell regeneration.

You may be interested to know that the CWDFOUNDATION has funded DHA and Vitamin D for prevention (I'm VP and the website needs to be updated). I sincerely believe in Dr. Claire Salzler's work and dedication to same with NIP etc.

That said, I don't believe it's working to regenerate beta cells.

Dr. Norma Kenyon has often shown data that is magnificent in rodents, and then her next slide will say that her daughter is not a rodent. ;-) so I don't believe any rodent study will necessarily translate to humans.

With respect to the small ( n=30, 20 w/type 1, 10 without) honey study above-" In the patients group [those with type 1], the increase in the level of C-peptide after using honey was not significant " The conclusion in the abstract is simply that you can use honey instead of sucrose... But how do you draw the conclusion that it enhances beta cell survival?

Last edited by Ellen; 05-13-2012 at 02:01 PM.
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  #24  
Old 05-13-2012, 02:23 PM
ecure ecure is offline
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Quote:
Originally Posted by Ellen View Post
Please don't assume I'm an attacker. What I am is an advocate for persons with diabetes and I simply would like to see some factual evidence when it comes to claims that something increases beta cell survival or is capable of causing beta cell regeneration.

You may be interested to know that the CWDFOUNDATION has funded DHA and Vitamin D for prevention (I'm VP and the website needs to be updated). I sincerely believe in Dr. Claire Salzler's work and dedication to same with NIP etc.

That said, I don't believe it's working to regenerate beta cells.

Dr. Norma Kenyon has often shown data that is magnificent in rodents, and then her next slide will say that her daughter is not a rodent. ;-) so I don't believe any rodent study will necessarily translate to humans.

With respect to the small ( n=30, 20 w/type 1, 10 without) honey study below -" In the patients group [those with type 1], the increase in the level of C-peptide after using honey was not significant " The conclusion in the abstract is simply that you can use honey instead of sucrose... But how do you draw the conclusion that it enhances beta cell survival?
You know other people in the forums are attackers . I didn't say it's you specifically.. So you presumed it. You will recognize it. The attackers are those who are violent and insult the people. It's not your case I know but you know some members are like this..

Sure more researches on honey are required but you should recognize it's hard to find the funding to complete large scale study on the natural compounds.

I firstly posted to obtain a list of all the potential compounds beneficial to diabetes type 1. My intention was not draw any conclusion.. My intention was only to open sharing thread to exchange all the potential beneficial natural compounds to diabetes type 1. You assumed it again..

Sure we don't know yet at which scale honey may beneficial but it's still interesting compound to continue to research.

The problem is the funding are very tight regarding the natural compounds..
Could you recognize it? It's hard to find a certified general practionner Phd who's fan of natural compounds and use them in his medical practice frequently? Will you recognize it?

Another research about Honey.
quotation: The results demonstrated that honey inhalation was safe and effective in reducing blood glucose level, in normal and diabetic subjects, it could improve glucose tolerance test, elevate plasma insulin and C-peptide and PEFR, and reduce elevated blood pressure in hypertensive patients.
source:http://www.ncbi.nlm.nih.gov/pubmed/12911866

funding is critical to obtain the results..How the treatments of tommorow are determined? MONEY MONEY MONEY
It's reality in our capitalism system..
Even if you have some fundings, if one pharmaceutical lobby notices a threat in your research , your research could end up with a lot of impossible hurdles to surpass..

If we want to prevent this we should be more advocates and investigate deeply how our system works at core.

If you take time to investigate , you will realize pharmaceutical industry is less pink than you may think.. We heard several scandals in oil & gas industry. I'm sure you know them.. Pharmaceutical industry is not so far from them..
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Last edited by ecure; 05-14-2012 at 08:43 PM.
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  #25  
Old 05-13-2012, 03:42 PM
sheeboo sheeboo is offline
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Quote:
Originally Posted by Ellen View Post
The book Pharmageddon is outstanding btw. I'm skeptical - of any claims including those of conspiracy theories, homeopathy, nutraceuticals, vitamin/.......
I've been meaning to read it, thanks for the reminder.

Part of what makes the claims of 'alternative' medicines even more difficult to
to wade through is the lack of peer-reviewed publications. When our dd was first dx'd a friend sent me a bunch of research from the Weston Price foundation. Every single 'study' was conducted in-house. Then she sent info on the guy in AZ.....Gabriel Cousens, who claims to have 'reversed' T1 with no/low carb raw diet. Oy. Wasn't that the treatment plan before insulin? We all know how well that turned out.
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  #26  
Old 05-13-2012, 11:40 PM
Kimby Kimby is offline
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Andrew just takes insulin and a multi-vitamin. Sometimes, he will eat the Vitamin D gummies too. Kaitlyn, on the other hand, was diagnosed in March and takes a multi-vitamin, Vitamin D, DHA, and Glucocare. I don't think they are a cure. I do sometimes wish we could do c-peptides on her and compare the results to the control group of other studies. She started the supplements in December after talking to her doctor. He didn't recommend them, and "preferred the we follow the normal progression of the disease", but didn't think anything I wanted to try could harm her. In December, her ogtt was 257 at 2 hours. Her A1c was 5.0, which is normal, but it was higher than the 4.8 she has stayed at for most of the last four years. We also saw an occassional 200 at home after meals in December. She started the supplements December 29th. She has some 200 numbers on January 3rd, but not since. She had some fastings that were as high as 117 the week after a cold and just before her ogtt on March 1. Her 2 hour number, following the cold, was 200 and her A1c was back to 4.8. EVERY fasting BG since diagnosis has been under 100 and all post prandials are under 140. Obviously, she is having a fantastic honeymoon. Her numbers have fluctuated before, so it is really difficult to tell if the supplements should get the credit. She also had a toenail infection in late 2011. That's why I'd love to see a c-peptide after a mixed meal test to see if she is maintaining insulin production at any higher rate than a typical control group. In the meantime, it seems worth it for Kaitlyn. Andrew tried some supplements for awhile that did seem to reduce his insulin needs, and he had his lowest A1c. But he was still diabetic, still needed to do all the regular requirements, and hated taking the pills too. Then he would forget them, and we would have to decide if that should be a variable worth considering when looking at the numbers. In the end, we decided that it wasn't worth it for him.
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  #27  
Old 05-14-2012, 12:56 AM
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zuzinka zuzinka is offline
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I have been advised to use in winter :
Vit B
Vit C
Vit E
Zink
VitD
Calcium

Summer only Vit B
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  #28  
Old 05-18-2012, 08:58 PM
William William is offline
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I am interested in learning more about GABA. It is supplement mostly used, incuding kids, for calming purposes. However, in mice, it was quite beneficial (study is discussed in a thread below) so much that they intend to run a study at an Alabama university, iirc, with kids taking it as a supplement. In lower doses, it should not pass the brain barrier which might alleviate the calming worries.
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  #29  
Old 05-19-2012, 12:51 AM
Ali Ali is offline
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As a long time T1 I came into supplements as a way to try and compensate for the damage T1 was doing to me. Sadly the studies are not there for me to really know anything. I am low in Vit D per blood work so my Doc wants me to supplement and also calcium, mainly cause I am female and do no eat much in terms of milk products. My own personal concerns have been that as a T1 any time I eat I run high for some of the time so I figure I rarely get the full benefits of even the healthiest food I consume. I eat healthy but low carb and often with glucose tabs for some of my calories on a daily basis. It is hard to know what to do. I do my best by eating as much fruit and vegs as I can, eating lots of fish/esp tuna and salmon, exercising, and taking a few supplements, a daily without added iron, and a few others based on my eating habits. The hardest issues with being a T1 is that what you eat is partially destroyed by your BG values, and that we all live in an era where natural foods are not as nutritious as in the past and that being a T1 does damage that we need to try and compensate for. Not much to try and figure out...ali
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  #30  
Old 05-22-2012, 09:20 PM
ecure ecure is offline
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Ty everyone for sharing...Feel free to share more.. You're so kind to share with us.

So far, we have:

To add:
Vitamin D
Omega 3-6-9
Honey
Niacinamide (vitamin b3)
Lipoic Acid
Garlic
DHA
Glucocare(Ayurvedic herbs)
Calcium
Zinc
Vitamin E
Vitamin C (vessel damages prevention)
Gaba
Iron
Raw diet

To avoid:
Milk

gaba research :with gamma-aminobutiric acid (GABA) attenuates insulitis, preserves islet β-cell mass, and can even lead to β-cell regeneration and reverse established disease in experimental mice, researchers claim. Studies by a team at St. Michael?s Hospital in Toronto in different mouse models of type 1 diabetes, have found that GABA promotes β-cell growth and survival, and exerts immunoinhibitory effects that may protect them against autoimmune destruction.
source:http://www.genengnews.com/gen-news-h...dels/81245363/

Thank you
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