Eating disorders and D

[Kaylas mom]

I just want to know if anyone else has dealt with an eating disorder and also D. If I look it up online all I get are references to skipping insulin, eating and running high. We are dealing with no eating, little insulin because of no eating (basically just basal) and starvation ketones almost constantly. We see the endo tomorrow, but I just wanted to get a feel if anyone else has dealt with this.

It has been all consuming of our energy and time. We were just told she couldn't go on the Disney trip and since the trip is in a month we are out $1400 because the money has been spent. I am so tired and more overwhelmed than I have ever been since dx.

[Brenda]

It's called diabulimia. I think that's how it's spelled. No experience with it.

[C6H12O6]

Originally Posted by Kaylas mom

I just want to know if anyone else has dealt with an eating disorder and also D. If I look it up online all I get are references to skipping insulin, eating and running high. We are dealing with no eating, little insulin because of no eating (basically just basal) and starvation ketones almost constantly. We see the endo tomorrow, but I just wanted to get a feel if anyone else has dealt with this.

It has been all consuming of our energy and time. We were just told she couldn't go on the Disney trip and since the trip is in a month we are out $1400 because the money has been spent. I am so tired and more overwhelmed than I have ever been since dx.

Anorexia and bulemia alone are more common in young women with diabetes (w. no omission or manipulation of insulin / diabulimia )

Sorry to hear that Kayla is struggling with this (not to say that it means she is developing ED)

Who said she can't go on the trip ?

Here is a facebook group where you could maybe ask more about this
http://twitter.com/diabeticswithed

[Kaylas mom]

Originally Posted by Hamtaro

Anorexia and bulemia alone are more common in young women with diabetes (w. no omission or manipulation of insulin / diabulimia )

Sorry to hear that Kayla is struggling with this (not to say that it means she is developing ED)

Who said she can't go on the trip ?

Here is a facebook group where you could maybe ask more about this
http://www.facebook.com/pages/Diabet...41567432550545
http://twitter.com/diabeticswithed

The NP from the endo clinic, her therapist and her GP.. along with Kayla, her dad and I have all agreed that this trip will do more harm than good. She has no friends going on the trip, no nurse that is D trained. It is just a safe environment for her right now. Thanks for the link.

[Ellen]

There is information here and this treatment program has a very good reputation http://www.centerforhopeofthesierras...the_cause.html

[fredntan2]

My older dd had bulimia shortly after her sister was dx.

I had thought sara might have ben getting this, but don't think she is.I've got her in therapy anyways
Aren't teenagers wonderful

[PatriciaMidwest]

No direct experience, just wanted to say I hope you are able to find some good resources. I'm sure it was hard to say no to the Disney trip, but I bet your mother's instinct is right. Hang in there.

My daughter learned about diabulemia at camp. There were several girls talking about it (some admitted doing it) and the counselor ( RN & T1) explained how inappropriate/unhealthy it is. My DD knows it is wrong, but I hate it that she knows there is a link between running high and losing weight. Scary.

[Christopher]

Sorry you are dealing with this. It is hard to be sure from your post, but your daughter is purposely not eating? Have you discussed this with her? Has she admitted she is doing this, has she said why? Does she think she is fat? Or is there another reason.

As for the trip, it seems odd that a NP or endo would be deciding what trips your family goes on. It also sounds like you also made the decision not to let her go, so you weren't really "told" she couldn't go, you choose not to let her go, which makes more sense to me. That is a lot of money to lose, did you not realize up front that no nurse was going, or that none of her friends were going, or that it would not be a safe environment? Is there any way of getting the money back, or at least a portion of it back?

[Colleen]

This behavior sounds more like anorexia than diabulimia. I have been in recovery for about 7 years. It was a long 15 year battle. I would recommend getting in touch with a psychologist who specializes in eating disorders and diabetes. See if there are any ANAD meetings in the area. Those meetings are usually free or cost just a couple of dollars in donations to attend. Eating disorders are usually about being able to control something in your life when the rest of your life is out of control. Of course, there are many other reasons for eating disorders. If you need any more info or if I can help you in any way don't hesitate to PM me.

[Kaylas mom]

Originally Posted by Christopher

Sorry you are dealing with this. It is hard to be sure from your post, but your daughter is purposely not eating? Have you discussed this with her? Has she admitted she is doing this, has she said why? Does she think she is fat? Or is there another reason.

?

Thanks for your input. Yes she is aware of what she is doing, she claims she is not doing on purpose but has an overwhelming fear of being sick (throwing up) which raises her anxiety and then gets ketones and so she really does feel sick, it is an endless cycle. She doesn't think she is fat, she has said numerous times she knows she needs to eat, she is too skinny and she can't help it.

You are right, I guess we were not "told" she couldn't go but when we are told it is not a good idea and we are in a situation where we are in contact with the endo's office and the therapist each day trying to keep her out of the hospital, I can't imagine sending her on a trip.. you know?