My child is Type 1 but drops on his own at times with high carb meals to normal, MODY?

[tysherry]

My child was dx in Nov 2007 Type 1. He is antiGad negative. My child drops very low when on sulfa drugs like Bactrim. In fact when he was on Bactrim, he required little to no insulin at all. Then last week he was sick and we gave him some pedialyte strips for rehydration and same thing. He required no insulin at all even with 50+ carb meals. His carb intake was high. When I thought he should be 300 he was 50. I would think that 1 1/2 years into this nightmare, that would not be happening. Then other times I give him the proper Novalog and he will be 300 and he will raise to 396 then I give another dose and he only lowers to 260. We try a new bottle and same thing. It is not the insulin, it is him. We have absolutely no control. Then some days when he is sensitive to insulin 1/2 unit will lower him from 300 to 50. Has anyone been experiencing this? His Ha1c has been consistently 7 to 7.1 but we check him 8-16 times per day. He is on 5 units of Lantis given in am due to his dropping very low at night. We give on demand dosing with Novalog based on food intake. Help??? Anyone else experience this? We follow all the rules but rarely do we get the results we are supposed to.

[Reese'sMom]

Originally Posted by tysherry

My child was dx in Nov 2007 Type 1. He is antiGad negative. My child drops very low when on sulfa drugs like Bactrim. In fact when he was on Bactrim, he required little to no insulin at all..

I may have some experience with this...Reese ran high bgs during cancer treatment while on steroids....so he had Lantus while taking steroids. After steroid-week, his bgs returned to normal. He stayed on Bactrim for 7 months during and after chemo while his immune system was down. Shortly after ending bactrim, his bg started running up again and he was finally dx'd type-1. I wonder if the bactrim was somehow keeping his bg normalized????

[MamaC]

Possibly the antibiotic affects the absorption of food (many people have GI symptoms like diarrhea while on antibiotics) while the insulin is still functional but now has less carb absorption to cover.

[grantsmom]

Hi!

How old is your son? Mine is 13 and we are 14 months into our DX. We are experiencing the exact same thing. There is NO rhyme or reason. It is very frustrating.