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#1
10-24-2008, 09:52 PM
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Does this sound odd?
Ok, Ryan had an overnight field trip on Wed. DH went so we could be sure he was well taken care of. DH was talking with one of the teachers, turns out she is Type 1. She says she at one time was part of trials for inhaled insulin but the FDA took it off the market. So, she is getting it from Canada. Here's the clincher...she is NOT under the care of a doctor with this and she says her husband has gotten good with glucagon because she has at least one episode per month of dropping too low. Does this not make alot of sense to anyone else? This to me sounds just crazy!
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Cindy mom to Ryan (age 13), dx May 29,2007 At age 9. pumping with animas Jan.9,2008 Dexcom started July 2009 Kelsey (age 16) and wife to Bobby for 18 years 
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#2
10-24-2008, 10:18 PM
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Sounds crazy to me too, I never heard it was available in Canada, it usually takes longer to bring things out here! I understand not being under an endo care, I haven't a problem with that. The only reason I have one is so I can continue pumping, my insurance requires it now.
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 My 1st meter from the 70's
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#3
10-24-2008, 10:19 PM
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Sounds pretty nuts to me.
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#4
10-24-2008, 10:45 PM
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I wouldn't be taking anything from another country that was taken off the market.. it was taken off for a reason.. I didn't think inhaled insulin worked for T1s?
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K, 9.5yrs, dx 1/06 @35months Pumping MM 723 w/ Mio sets and Apidra Celiac dx 5/08 Cgms-ing 11/07 Podding for 'tubing' breaks 4/11
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#5
10-24-2008, 11:21 PM
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Quote:
But regardless, sounds crazy to me!
__________________
The bigger the hair, the closer to Heaven!
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#6
10-24-2008, 11:29 PM
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Quote:
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~Alyce - The Mama ~*~*~*~*~*~*~*~*~*~*~ "The Boz" dxd T1D 6/27/08 Pumping Blue Ping: Apidra dxd Celiac 3/10/10
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#7
10-25-2008, 04:14 PM
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I guess it makes sense that she'd get it elsewhere if it were taken off the market here and she really liked it. But not having a dr to oversee her care in general seems crazy. Oh, and going too low that often is crazy too!
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Barbie, Mom to Alex, 20, dx 10/05, minimed pump 10/06, dexcom 8/10
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#8
10-25-2008, 04:21 PM
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yes, sounds crazy to me. I thought that inhaled insulin was for T2, not T1 (maybe on the same idea as the pill for T2 and not T1)
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Max 12/13/04 (now age 7) Diagnosed at 12 months old 1/06 Pumping since diagnosis on Animas
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#9
10-25-2008, 04:53 PM
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I thought that a few cases of lung cancer had developed in some of the people on inhaled insulin. They were not sure if it was the insulin or coincidence. Guess she is gambling with her health.
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Colleen, age 37 Mom to: Erik,6, dx 6/21/06 pumping Animas Ping 8/21/06 Ryan,3, stunt boy Husband- Mike Hodgkins Survivor
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