Kidney biopsy this week.... Update

[EmmasMom]

Hello everyone! I know I'm never around these days, but I wanted to give you an update on little Emma.
We saw the nephrologist again on Thursday and everything is still the same...... :-(
They still think Celebrex is ~probably~ what caused the kidney damage, but they are becoming more concerned now since it's not improving after more than two months without meds. The concern that keeps coming up is the possibility of Lupus, which almost always presents with kidney damage. It's something I've been worried about for a long time because she's had so many of the symptoms, and she's never really fit the profile for "just" JRA, but it's still not likely. (kinda like getting D at 9 months, )
The biopsy will give us some very important info including; is this a disease process or an injury, how or if it should be treated, and most importantly will it get better or worse over time.........

So we just got home from Dallas and we are packing to return. She will be admitted early Wednesday and we will spend time with an endo and a rheumatologist that day, do more labs, start the IV etc. Then the biopsy will be mid Thursday, and if all goes well we will be able to leave the following day. It's not a major procedure, (they take several pieces of the kidney with a long needle), but she'll have general anesthesia (NPO for 18 hours!!!) and the biggest risk is bleeding so she'll have a pressure bandage and wont be able to move for 12 hours.........UGH!!!!!!!!!!!! I hope she doesn't fight coming out of the anesthesia like she did last time or we'll be in trouble!

As much as I'm dreading this I'm ready for some answers.

Oh, and we're moving too. Nick took a job in New Braunfels, TX, (near San Antonio) so he's leaving in two weeks and I need to sell the house and I have a gazillion outfit orders to sew first, and I can't because we're always traveling to see doctors and.................... OMG! I may lose my mind soon!

Keep her in your prayers this week!

[Abby-Dabby-Doo]

Thanks for the update Amy!
We'll be thinking and praying for little Emma.

I hope everything goes smooth and easy. Give Emma kisses from all of us, if she only knew how much people adore her on the forums!
Congrats to Nick with his new job, and good luck with the move. How far away from Papa are you going to be?

[mjtjmcouch]

Amy,

We will pray for Emma and for your family as you prepare for the next round of testing and your move. It looks like you'll be a bit closer to Dallas in your new location. I hope that is true and maybe takes a bit of burden off all of you when you need to travel there.

Good Luck and God Bless.

Jennifer

[MReinhardt]

Amy, the girls and I continue to pray for little Emma. She's such a cuttie. As its said to me many of times, take time to care for your self too. I know its hard to do, but you have to try. We'll just continue keeping you guys on our prayer list, and please keep us posted!

[Mama2H]

Wow Amy! That is a lot to handle. The girl's and I will keep Emma and your entire family in our prayers (((hugs)))

[Kaylee's Mommy]

Thanks for the update.. you guys must be so stressed, and to throw moving in the middle.. yikes! I will be thinking of you and little Emma.. I hope all goes well and you can leave that hospital, with answers, very quickly..

How is Brenden doing with all this going on?

[MamaC]

Amy,

Thanks for the update! I hope everything goes smoothly. The 18 hr NPO and the 12 hour restricted movement will probably be the worst of it!

Why don't you mention to the doc and the anesthesiologist that she fights coming out from under. They may be able to adjust what she gets or wean her off differently. (I'll just bet you alreaqdy have taken care of this!)

Jenn fights coming out of the anesthesia and it gets worse every time. You have a valid concern!

One of my friends lives in New Braunfels. Let me know if you want me to pluck her brain for any info!

[hmmmcormick]

Wow, that's a lot going on, Amy! I will be thinking of you all. Emma is always in my thoughts and prayers. Good luck with the move.

[caspi]

I will continue to keep Emma and your family in my thoughts and prayers! Congrats to Nick on the new job! I know how stressful and annoying moving can be, especially with everything else going on. Please remember to take care of yourself as well!

{{HUGS****

[andeefig]

We're thinking of your family.....I'm sure all you want right now is just some answers, whatever they may be.

I wish I could sew and help you out with those orders. I'm sure it's the last thing you want to do right now, but maybe it'll be theraputic. The rythmic sound of the sewing machine and accomplishing each piece as you go...

Good luck with the move. Wishing you all safe travels.