Return to Children with Diabetes  

Go Back   Children with Diabetes Forums > People with Diabetes > Adults with Type 1

Reply
 
Thread Tools
  #11  
Old 03-04-2012, 11:34 PM
mylemonadelife's Avatar
mylemonadelife mylemonadelife is offline
Approved members
 
Join Date: Jan 2012
Location: Wisconsin
Posts: 32
Default

Quote:
Originally Posted by DsMom View Post
How have your roommates reacted to your D? I often wonder how my son will handle that one day...if roommates will resent or get upset about alarms going off at night? I'm sure after freshman year, your roommates are your friends and want to support you. I wonder about how, during freshman year when you are assigned a roommate who does not know you...you handle it?
Quote:
Originally Posted by emm142 View Post
I'm interested in this as well. In the UK roommates are really uncommon and I only had the choice of a single room. I was happy with this because I like alone time and because I'd feel bad waking someone up with my CGM (it does alarm pretty much every night, often more than once). On the other hand, perhaps I'd be safer with a roommate - who knows? But yes, definitely interested in how people deal with this.
I don't want to derail this thread, maybe we should start a different one or I could PM you?
__________________
~Rae~
Previous username: s0ccerfreak
21, dx'd 3/1998
Pumping untethered: MM 722 and Lantus
CGMS 11/2007
"Don't tell God how big your mountains are, tell your mountains how big your God is."
Reply With Quote
  #12  
Old 03-13-2012, 09:59 AM
DsMom DsMom is offline
Approved members
 
Join Date: Nov 2010
Location: Pennsylvania
Posts: 1,700
Default

Quote:
Originally Posted by mylemonadelife View Post
I don't want to derail this thread, maybe we should start a different one or I could PM you?
Thanks for your good manners. This was my thread, though, and I think it's run it's course...but feel free to comment here or PM.
__________________
Julie
Mom to Rachel, 13 yrs old; Joey, 10 yrs old; Daniel, 8 yrs old, dx 9/08 (One Touch Ping, 11/09) and dx ADHD 12/10
Aunt to adult nieces Samantha, dx at 2 yrs old; and Abby, dx at age 25
[/COLOR]
Reply With Quote
  #13  
Old 08-02-2012, 10:00 PM
Ronin1966 Ronin1966 is offline
Approved members
 
Join Date: Feb 2010
Location: N.E.
Posts: 219
Default

Hello Julie:

Unfortunately I fear we are a "minority" in this regard. Even so I am not phased by it, not in the least.

Lows happen, highs happen, and nothing we do will prevent them. There are too many who fret, and make themselves completely nuts wringing their hands demanding answers for something that at times have no answers. Demand this nasty beast behave according to their program and I fear, completely unrealistic idealism.

They put themselves in a padded room doing so... and chain us (their diabetic) in that room with them. It is tragic to do so... Do not submit to it, if you can prevent it.
__________________
Merely my opinion, I could surely be mistaken...

Stuart
Reply With Quote
  #14  
Old 08-05-2012, 05:03 PM
Christopher's Avatar
Christopher Christopher is offline
Approved members
 
Join Date: Nov 2007
Location: Illinois
Posts: 5,818
Default

Quote:
Originally Posted by Ronin1966 View Post
Hello Julie:

Unfortunately I fear we are a "minority" in this regard. Even so I am not phased by it, not in the least.

Lows happen, highs happen, and nothing we do will prevent them. There are too many who fret, and make themselves completely nuts wringing their hands demanding answers for something that at times have no answers. Demand this nasty beast behave according to their program and I fear, completely unrealistic idealism.

They put themselves in a padded room doing so... and chain us (their diabetic) in that room with them. It is tragic to do so... Do not submit to it, if you can prevent it.
I know this is a relatively old thread that was revived, but I will still comment. I feel I need to based on the overwrought, dramatic tone of the post.

I disagree that there is nothing that can be done to prevent lows/highs. Getting a good handle on how your body reacts to certain carbs, knowing how to manage exercise, getting your basal's right, getting your I:C ratio right, all things that are manageable and can possibly prevent lows/highs. Checking often at night can also mitigate the danger from lows/highs as well.

I don't fret, wring my hands or make myself nuts with managing my daughters diabetes. I don't demand that diabetes behave. I certainly don't put myself in a padded room or chain my daughter there with me.

What I do is be diligent, continue to learn and explore better management techniques, teach my daughter to be diligent and independent in her care. And I do check every night, because I feel it is a good management technique. And most importantly, I strive for balance, making sure she is a kid first and a kid with diabetes last.

Do I think my daughter will check herself every night when she is an adult? Probably not. But I do hope she takes a reasonable, informed approach to her diabetes management that will give her the right balance between good health, safety and a happy life.
__________________
Chris
Dad to Danielle, 14 years old, dx 8/17/2007, MDI (Humalog and Levemir)
Reply With Quote
  #15  
Old 08-05-2012, 05:11 PM
Christopher's Avatar
Christopher Christopher is offline
Approved members
 
Join Date: Nov 2007
Location: Illinois
Posts: 5,818
Default

And now if I may ask a question. Since it seems that many adults don't check at night, why is that? Knowing the dangers from lows and the damage from highs, why not check? Are adults diabetes more "stable"? Or is it just too difficult to function as an adult while waking several times to check? Or do most adults use a CGM and only wake for alarms?

Thanks in advance.
__________________
Chris
Dad to Danielle, 14 years old, dx 8/17/2007, MDI (Humalog and Levemir)
Reply With Quote
  #16  
Old 08-05-2012, 07:13 PM
Tricia22's Avatar
Tricia22 Tricia22 is offline
Approved members
 
Join Date: Jun 2008
Location: Indiana
Posts: 645
Default

For me, I was diagnosed in 1994 and spent 12 years going to an AMAZING diabetes clinic at a nationally recognized children's hospital. While growing up, my diabetes medical people put a lot of emphasis on trying to get things right, but also not fretting on when things go wrong, knowing things will go wrong, etc. I was also brought up with the mindset of doing basal testing maybe 3 or 4 times a year, and aside from that, unless sick, exercising a lot, or other extenuating circumstances ensue, not checking overnight - and this was before CGMS existed for the public.
I have always been one that wakes up at night from lows, and if I ever get up in the middle of the night to pee, I check as well. I also focus a lot though on making sure I'm comfortable with my pre-bed BG and that I don't have much if any insulin that's still active from boluses, corrections, etc.
I have had a CGM for a few years now, and wear it about half the time...
That's what works for me, and this has led to NO diabetes complications 18 years in, never having a low I couldn't handle, and only being hospitalized once since diagnosis for something diabetes-related, and that was from a really flukey pump failure that we didn't catch right away... No, my A1Cs might not be the absolute BEST they can be, but I'm happy and healthy and working a CRAZY stressful job that doesn't always play so nicely with my diabetes... I'm cool with it, and so it my diabetes team... I have never been told I need to consistently check at night, or asked by my care team why I don't...
Now, wanting kids in the future, I'm sure my mindset about nighttime checking will change dramatically - at least while trying to get pregnant and while carrying a baby, but that's a whole other topic for a different time and thread...
__________________
Tricia

26, dxd D @ 8 (9/1994)
Current Diabetes Accessories: Dexcom Seven + (9/2009); OmniPod (3/2012)
Nurse
Reply With Quote
  #17  
Old 08-06-2012, 10:53 PM
Timmy Mac's Avatar
Timmy Mac Timmy Mac is offline
Approved members
 
Join Date: Feb 2010
Location: Virginia
Posts: 232
Default

I can't trust myself willingly to get up before 6 or so. Because of this, I normally try to make absolute sure that I'm stable before going to bed. Even if that means staying up till 3, I'll do it. However, sometimes a low will still happen, but I have always been able to count on myself waking up if it gets serious.
__________________
I can't let Diabetes get the best of me. I have MUCH bigger problems than a 6mm needle

20y/o and in college
Dx'd Sep 21, 1997 @ age 5
Currently on MDI with Novolog and Lantus
Reply With Quote
  #18  
Old 08-07-2012, 08:10 AM
Scribe Scribe is offline
Approved members
 
Join Date: May 2009
Location: Washington, DC
Posts: 179
Default

I have been T1 for 50-plus years and I have never tested at night. Not once.
I've never had a problem; never gone to the hospital for a D-related event, never endured a situation I couldn't address on my own. I have no complications and I find living with D easy and stress-free. (There have been times when I arrive home 2 am, 3 am or later and test then but I'm not counting those instances.)
My one and only meter stays downstairs and I have no food on my bedside table. Why? Because I have a system and discipline and experience that's served me well. And yes, when I was young we didn't have meters so that explains some of it. But today my control is so regular and D presents so few surprises there's simply no need. I always test before going to bed and not again until I wake in the morning.
This is just me. I know others are different. That's not only fine but understood and appreciated. The beauty of D is there are multiple paths to the same place. This is the one I choose and the one that's worked best for me.
A longer explanation can be found here for anyone who's interested.
__________________
T1 for 53 yrs; no complications; White House reporter, soccer referee; fabulous quality of life. Never sweat the small stuff and always remember, just about everything is the small stuff.
Reply With Quote
  #19  
Old 08-07-2012, 08:22 PM
misscaitp misscaitp is offline
Approved members
 
Join Date: Jul 2007
Location: Maryland (Fort Meade and Frederick)
Posts: 1,016
Default

Quote:
Originally Posted by Christopher View Post
And now if I may ask a question. Since it seems that many adults don't check at night, why is that? Knowing the dangers from lows and the damage from highs, why not check? Are adults diabetes more "stable"? Or is it just too difficult to function as an adult while waking several times to check? Or do most adults use a CGM and only wake for alarms?

Thanks in advance.
I don't check overnight unless I'm up or I think something is up. Just like parents wouldn't expect their 13 year old child to wake up, Im just not setting an alarm to wake up as college students need all the sleep they can get. Plus I consider setting an alarm would be particularly rude to my roommate. I make sure I go to bed above 90, no insulin on board. For highs I know my correction factor is right, so it doesn't require another test. Also it helps that I can detect my lows when I'm asleep, even though I don't usually realize till under 60.

I used a CGM for maybe 1 month, I personally didn't get a real big use as I'm relatively stable, I just liked seeing the spike and the gradual decline after eating. Also I do check 2 times before I go to bed, around an hour before and right before I climb into bed, just to see if there is any drops going on. I also keep food on my nightstand, along with my PDM, and phone.

I wouldn't say that we are more stable, there are some adults who can drop or rise real quick. I don't happen to be one of them, but I know plenty that are.

I consider myself lucky as in 7.5 years I've never had a seizure, a hospitalization (other than diagnosis), or ER visit due to diabetes even during my times of being less than meticulous.
__________________
Caitlin, 20
Type 1 Diabetic
dxd March 28, 2005 at 12 years old
Love-Hate relationship with Omnipod since July 2011

College Student '15, Majoring in Psychology
(with the expectation of going to Graduate School for School Psychology right after obtaining my B.A.)

"Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky." - Rabindranath Tagore
Reply With Quote
  #20  
Old 08-08-2012, 12:53 PM
Christopher's Avatar
Christopher Christopher is offline
Approved members
 
Join Date: Nov 2007
Location: Illinois
Posts: 5,818
Default

Quote:
Originally Posted by Scribe View Post
I have been T1 for 50-plus years and I have never tested at night. Not once.
I've never had a problem; never gone to the hospital for a D-related event, never endured a situation I couldn't address on my own. I have no complications and I find living with D easy and stress-free. (There have been times when I arrive home 2 am, 3 am or later and test then but I'm not counting those instances.)
My one and only meter stays downstairs and I have no food on my bedside table. Why? Because I have a system and discipline and experience that's served me well. And yes, when I was young we didn't have meters so that explains some of it. But today my control is so regular and D presents so few surprises there's simply no need. I always test before going to bed and not again until I wake in the morning.
This is just me. I know others are different. That's not only fine but understood and appreciated. The beauty of D is there are multiple paths to the same place. This is the one I choose and the one that's worked best for me.
A longer explanation can be found here for anyone who's interested.
I think that is great for you, but from everything I have read and heard, your experience is the very rare exception. And I would not want a parent to read your post and think it was OK to never check their child at night. So I appreciate you adding the caveat at the end.
__________________
Chris
Dad to Danielle, 14 years old, dx 8/17/2007, MDI (Humalog and Levemir)
Reply With Quote
Reply

Bookmarks

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -5. The time now is 05:23 AM.


Forum Reminder
You registered and accepted the terms of use before joining this forum. Please note that this is an open forum, which means messages are posted live--with no review prior to posting. Messages are the opinion of the person posting, and posts may or may not be accurate. By using this site, you agree to our Terms of Use, Legal Notice, Privacy Policy, and Safe Harbor Policy.

© Children with Diabetes, Inc. 1995-2013.