I also would not have wanted my daughter tested, and didn't really worry too much about it happening to her. With her disability I just couldn't imagine how we would cope, so I had to put it out of my mind. At that time they were doing trials with using small doses of insulin in hopes of preventing diabetes, but I found out years later that it was unsuccessful anyway. Her diagnosis was about 6 years later, and by that time she was two years past the age that her brother was diagnosed and I didn't even have it on my radar.
She is coming up on 10 years next month since diagnosis. The only diabetes in the family was my father's mother, and we are not certain that it was type 1, but she was on insulin.
Mom to Melissa, 29, using Dexcom, 24/7 since 4/10, and Omnipod since June 09. Michael, 34 using MDI's and Dexcom. Melissa is intellectually challenged and needs a lot of help from us to manage her diabetes.