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Thread: When out in public...

  1. #1

    Default When out in public...

    We don't make a big deal about testing, bolusing, giving shots, or treat lows whether in public or at home. I've faced a few ugly responses to that, today my kiddos had a playdate at a friends house and Isaac wanted a snack. So, while checking his blood glucose the other kids became interested and I simply explained the purpose. I was a bit surprised that one of the girls had never seen a glucometer as her cousin has type 1 diabetes. When I reminded her that it's just like what her cousin does her mother said, "yes, but her cousin always takes care of it in private." I was mortified and bit my tongue to not respond as I wanted and instead said, "well, since Isaac needs to do this so many times a day we treat it just as we would tying shoes, or getting a drink of water...just something we do."

    So...am I wrong, should I not be doing this so out in the open? I often wonder if I take it lightly as it's our family's norm and has been since DH and I started dating, checking BG before a meal is just what happens at our home.
    How do you guys handle all of it when out?
    Sarah
    wife to TJ (t1d for 20yrs) MDI lantus/humalog
    mother to Ethan (non-d) 8 years old
    and Isaac (dx 11/09 at 19 months old) 6 years old, pumping on MM Revel (6wks post dx) with Novolog and Dexcom G4 (love it!!!)
    ~dx with Celiac Disease July 2013

  2. #2
    Join Date
    Dec 2009
    Location
    California
    Posts
    2,330

    Default

    We just do it openly where ever we are..at a restaurant, park, shops, where ever..someone's home..how rude of them even to say such a thing. Do they only wear their glasses in private? In my book it is the same thing. A body part needs a little help working. That's it. If their arm were broken would they only wear their cast in private? Our kids have broken pancreases and need help to get what they need. NO BIG DEAL..and other people can deal with it and be grateful that all they have to live with is a little curiosity on the part of their children.
    Susan
    Grandma to Hailey age 11 dx type 1 age 4
    pumping with Omnipod since 8/09
    and Faith age 7
    and now little Macey Ella age 1 year Dx with allergies to nuts, wheat, eggs, and soy

    True heroism consists in being superior to the ills of life, in whatever shape they may challenge us to combat.

    Napoleon I (1769-1821) Napoleon Bonaparte. French general.

  3. #3
    Join Date
    Jun 2007
    Location
    Near Fresno California
    Posts
    10,152

    Default

    Quote Originally Posted by SarahKelly View Post
    We don't make a big deal about testing, bolusing, giving shots, or treat lows whether in public or at home. I've faced a few ugly responses to that, today my kiddos had a playdate at a friends house and Isaac wanted a snack. So, while checking his blood glucose the other kids became interested and I simply explained the purpose. I was a bit surprised that one of the girls had never seen a glucometer as her cousin has type 1 diabetes. When I reminded her that it's just like what her cousin does her mother said, "yes, but her cousin always takes care of it in private." I was mortified and bit my tongue to not respond as I wanted and instead said, "well, since Isaac needs to do this so many times a day we treat it just as we would tying shoes, or getting a drink of water...just something we do."

    So...am I wrong, should I not be doing this so out in the open? I often wonder if I take it lightly as it's our family's norm and has been since DH and I started dating, checking BG before a meal is just what happens at our home.
    How do you guys handle all of it when out?
    The ONLY thing I would have done differently, would be to calmly say something that would have put that woman nicely in her place. (My tongue hurts when I bite it, I'm not good at it.) YOU are doing it right! We have never hidden that Seth has D> Neither does he, I'm so proud of him. He will even change his pod in class. The kids are GREAT!
    Last edited by Heather(CA); 04-06-2010 at 08:51 PM.


    Seth 17, dx'd at 7 (shots for most of 9+ years, has been on the Omnipod/Apidra for 1 year)

    Always always always....Trust your gut!:

  4. #4
    Join Date
    Mar 2010
    Location
    Simi Valley, California
    Posts
    5

    Default

    Quote Originally Posted by sooz View Post
    We just do it openly where ever we are..at a restaurant, park, shops, where ever..someone's home..how rude of them even to say such a thing. Do they only wear their glasses in private? In my book it is the same thing. A body part needs a little help working. That's it. If their arm were broken would they only wear their cast in private? Our kids have broken pancreases and need help to get what they need. NO BIG DEAL..and other people can deal with it and be grateful that all they have to live with is a little curiosity on the part of their children.
    I TOTALLY Agree! Insulin is life support for our kids_I'm not hidding or making my son go in private. That's what we do to keep him alive and well, if someone doesn't like it tough! they can leave the room (Ok I'm a bit mean here but my son was recently diagnosed and I already had to deal with a few moms who felt "uncomfortable" with me checking my son's bs in front of them) Sorry I'm a bit sensitive right now!

  5. #5

    Default

    I guess to me it's more okay than watching a mother clean green snot from her childs nose as my kid's BG testing won't spread a virus, but boy that nasty snot can definitely cause havok for us if it gives my son a cold. It just seems like they're trying to "protect" their kids from d when it's not contagious. I'm just wanting my son to feel like it's normal, even if it's just his normal.
    Sarah
    wife to TJ (t1d for 20yrs) MDI lantus/humalog
    mother to Ethan (non-d) 8 years old
    and Isaac (dx 11/09 at 19 months old) 6 years old, pumping on MM Revel (6wks post dx) with Novolog and Dexcom G4 (love it!!!)
    ~dx with Celiac Disease July 2013

  6. #6
    Join Date
    Mar 2007
    Location
    Auckland, NZ
    Posts
    1,360

    Default

    I am with the others on this - YOU are doing it right, SHE has the problem.

    I always remember at dx Tyler was told by a play specialist at the hospital that it was his D and if he wanted to keep it secret, it was ok. I immediately told Tyler in front of her that it was NOT a dirty little secret to hide away and that he had absolutely nothing to be ashamed of. He has just started to be a bit more private but I don't think it is because he is embarrassed. He sees it as no big deal and hates it when other people do.

    But in general, he is open about it and so are we. We do everything in relation to D in public and if people don't like it, they can look away. Of course being on the pump makes it less obvious. I have yet to have anyone be brave enough to say anything to us.

    In fact, at Tyler's new school, just last week one of his new friends asked if she could do his finger prick. I think it is cool that his friends are interested.
    Debs - Mum to Tyler aged 16 yrs, dx 29 Nov 06
    MM 722 since March 09

    Samuel, nearly 18, still hormonal
    Very happily married to Carl for 18 yrs

  7. #7
    Join Date
    Sep 2006
    Location
    Michigan
    Posts
    3,112

    Default

    That poor little cousin!
    Lynn
    Mom to Nathan
    Born 5-22-03
    Diagnosed 2-7-06
    Pumping with Cozmo

  8. #8

    Default

    I think you handled it very well. I do not hide the fact that I am testing my blood sugars, etc. If someone asks what I am doing, I take the time to educate just like you did.
    I have met people who tend to be more private regarding their diabetes care and that is fine with me as well, Just as long as they don't tell me to be the same way.

  9. #9
    Join Date
    May 2008
    Location
    Memphis Tn.
    Posts
    661

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    Quote Originally Posted by Heather(CA) View Post
    The ONLY thing I would have done differently, would be to calmly say something that would have put that woman nicely in her place. (My tongue hurts when I bite it, I'm not good at it. YOU are doing it right! We have never hidden that Seth has D> Neither does he, I'm so proud of him. He will even change his pod in class. The kids are GREAT!
    LOL ME too.....

    Michelle S
    son dx at age 8 on 8/15/07
    MDI Lantus and Novolog

  10. #10

    Default

    That was really rude of her to say! Sometimes I can't believe what comes out of people's mouth. My DD is pretty private about her D, and I try to respect that. She will be 13 in a month and wants to be like everyone else. However, there is nothing wrong with your child testing wherever they want. Geez...can't we all just be supportive?
    Mom to 3 Great Kids, Oldest DD 13,
    DX Type 1 Jan 2008
    Feb 2011 -- Omnipod and Dexcom
    April 2010 -- MM Revel Pump & MM CGMS
    Jan 2008 -- MM 523 Pump and MM CGMS Apidra

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