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Thread: Easy to say, hard to do

  1. #1
    Join Date
    Jun 2008
    Location
    Twin Cities, MN
    Posts
    226

    Default Easy to say, hard to do

    Endo yesterday. Dad took him because I had a work meeting I could not miss. Stepped out of meeting to phone conference with Dad and Endo. To my surprise, A1C up, not down. Not what I had expected given the numbers we'd been seeing.

    Feeling very emotional about this - feeling like we are failing him. Also very frustrated that the level of effort expended does not seem to correspond with results.

    Turns out I'm great at saying that A1C is just a number until it's the number for MY child . . . . .

    Thanks for listening.
    Barb
    Mom to Simon, age 5, diagnosed 11/07 Pumping with MM522 - Minnesota Twins skin! periodic user of CGMS
    Ellen - age 7, dancer and reader extraordinaire
    Aurora - age 1 - funniest baby on the block!

  2. #2

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    I don't know if this will make you feel better, but from what our endo tells us, while A1C is a good indicator, if you've been seeing good numbers, in a tight range, that's more important overall.

    I mean, you can have a low A1C, and still see daily ranges from 60-400... I'd rather know our control was good, and fluctuation was minimal, than have a "good" A1C and be all over the place.


    I hope that makes sense, I haven't had enough coffee this morning.

  3. #3

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    Quote Originally Posted by manda81 View Post
    I mean, you can have a low A1C, and still see daily ranges from 60-400... I'd rather know our control was good, and fluctuation was minimal, than have a "good" A1C and be all over the place.
    Very good point above, and I agree.


    Anyway, Barb sorry about the A1C, it is hard not to feel bad about it going up. But don't let it stop you from continuing to work hard. All that hard work DOES pay off eventually.

    My Uncle had a saying, "Somedays you get the bear and somedays the bear gets you".

    Keep working hard and next time you will get the bear
    Chris
    Dad to Danielle, 16 years old, dx 8/17/2007, MDI (Novolog and Levemir)

  4. #4

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    Ive read that A1Cs are considerably higher during the winter months and that makes sense to me. For those of us that live in the northern climates our kids dont get outside to exercise. They arent getting as much Vitamin D from the sun and of course the viruses that some of our kids get weekly during the winter. Im sorry that you were disapointed in your sons A1C but please dont feel like your failing him. You love him and try the best way you know how to keep his blood sugars in range. Being a parent is hard, being a parent and pancreas is alot more so.
    Becky, Mom to Steven 12, dxd 7/04 MDI humolog and Lantus, Harry 14 non-d My 2 awesome boys

    Right now three things remain: Faith, hope and love But the greatest of these is love. 1 Corinthians 13:13


    "There is no rightness in diabetes. Just sometimes, you're less wrong." by Jacobs Dad

  5. #5
    Join Date
    Dec 2008
    Location
    Hamilton, Canada
    Posts
    1,903

    Default

    Quote Originally Posted by simom View Post
    Turns out I'm great at saying that A1C is just a number until it's the number for MY child . . . . .
    I know this feeling exactly!! There are so many more emotions involved when it's your own child.

    Hang in there! You are not failing your child - not by any stretch. Failing would be not caring about the rise in A1c. Or not putting in all the work you have.

    And I'll echo what Becky said - being a pancreas is hard!!
    my extra sweet girls:
    Amanda age 11 dx'd Nov. 29 2008 (age 7) pumping with a Medtronic Veo & CGM

    Chloe age 11 dx'd Dec 7 2012 (age 11) MDI Lantus/Apidra

    My other great (non-d) kids:
    Colin age 16, Liam age 13



  6. #6

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    Quote Originally Posted by simom View Post
    Endo yesterday. Dad took him because I had a work meeting I could not miss. Stepped out of meeting to phone conference with Dad and Endo. To my surprise, A1C up, not down. Not what I had expected given the numbers we'd been seeing.

    Feeling very emotional about this - feeling like we are failing him. Also very frustrated that the level of effort expended does not seem to correspond with results.

    Turns out I'm great at saying that A1C is just a number until it's the number for MY child . . . . .

    Thanks for listening.

    HUGS!!! I know what you mean. Only recently did I go to see the endo without thinking I was going into the principal's office and get some detention time.

    That said, sometimes we have to step back and reconsider a different way of handling things. Hopefully you guys have some strategy on where to go from now.

    The A1c is all we have to see "efforts" but it doesn't reflect them. Did this make sense?

    Have a good scream (or an ice-cream), and hopefully tomorrow you'll feel renewed strength to fight this beast.
    Mom to 2 boys (9 and 10), oldest dx in Oct. '06
    Pump MM522 w/ Sure-Ts infusion sets since July '10
    Cgms
    Previously pump Deltec Cozmo w/ Contact-Detach sets

    "He attacked everything in life with a mix of extraordinary genius and naive incompetence, and it was often difficult to tell which was which." ~ Douglas Adams

  7. #7
    Join Date
    Aug 2007
    Location
    Hamilton, Canada
    Posts
    9,274

    Default

    An A1C that's gone up when you're expecting down is just an indication that you've got more work to do. Any idea about any time of day that there may be "hidden" highs happening?

    Anyhow, I know how much we look forward to and/or dread those A1Cs (depending on how we've been doing in the months before the apt.). It IS hard - hope you get it figured out soon. Keep plugging away..
    ________________________________________
    Wilf

    Proud Dad of Amy (18), diagnosed Aug. 2006 and getting MDI of Apidra and Lantus..
    and Sylvie (13); very happy husband of Shirla!

  8. #8

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    Quote Originally Posted by JJsMomma View Post
    I read a science journal yesterday that stated this exact same thing. If you are testing every 3-4 hours and are keeping it within your target 60-80% the time, you are doing GREAT work for a child that age. I ALSO read that getting really low A1cs on a consistent basis means you may be experiencing too many hypoglycemic episodes, which can lead to hypo unawareness, which none of us wants for their children. AND you can have a low A1c and still have wild swings, which is VERY bad as it creates free radicals...so aim for tight control on a consistent basis and think of the A1c as just one of those numbers to aim for. Chin up! Hope tomorrow is better for you.

    Yea, I don't get the A1C- Like you said the low number could be from having to many hypo episodes, yet, the lower the number, the better the parent?
    I don't get it.
    What's the point of CGMS then?

  9. Default

    I hate endo appointments for just that reason. I always feel like I am 12 getting a bad mommy grade.

  10. #10

    Default

    I'm sorry that happened- I know it's frustrating.

    Once at the endo my DD's A1C came back MUCH higher than I expected. When I questioned it, the endo showed me a chart of what her average blood sugars would be at that A1C... and that chart was much higher than what we had been seeing. I pointed that out (log book and monitor in hand) and they redid the A1C... the second one was about three whole points lower! It might be worth having it double checked if your bg numbers really don't seem to add up with the A1C results.
    ~Amy~
    *daughter, age 9, dx Type I on 9/19/08
    - started on pink MiniMed 523 pump in September 2010, added a Dexcom CGM in May 2011
    *son, age 5, non-D
    ** visit our diabetes blog: http://sugarsharkfamily.blogspot.com/ **

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