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speakup4kids
Last Activity:
Oct 4, 2012
Joined:
Nov 23, 2007
Messages:
173
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16
Location:
California
Occupation:
mother

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speakup4kids

Approved members, from California

speakup4kids was last seen:
Oct 4, 2012
    1. Lisa P.
      Lisa P.
      So, short version is (so you can ignore my long rambles below) thank you for helping us figure out a way to make her feel a little better each day and possibly helping us down the road to making her feel much better soon. Clare is getting the same thing you described in your posts, lots of "it must be this, take this med instead" or just hints that she's kind of exaggerating or making it up, it was great to see numbers on the CGM to be able to show folks there is something physical going on. I don't want a seizure to be the turning point for us.
      Thanks.
      Lisa
    2. Lisa P.
      Lisa P.
      The spikes up are extremely spikey, she's never up there for long, which makes me think it's not diabetes because she's bringing it down immediately on her own. I don't know if nondiabetics rebound, but I'm thinking it's a rebound from a low or fast drop.

      In any case, I'm pretty convinced we've hit on at least a big part of her problem. I'm actually hoping this is hypoglycemia caused by hypothyroid because it's so persistent that I don't see how we can treat it just with diet. We're testing again for thyroid today, she had one slightly low T4 number the last test. They will test for antibodies today and I'm actually really hoping they'll find them so that I can talk them into trying her on synthroid, I'm really, really hoping this will take care of the problem.
    3. Lisa P.
      Lisa P.
      Since the thread you helped me on we've been keeping her on a diet that is closer to a hypoglycemic diet, more frequent meals, complex carbs, protein. I can really see a difference in her whole day if she has a high carb snack. On the CGM we tested her with popsicles. I'm not sure how to interpret the results, I know a CGM can be well off for a kid her age and size, so I don't automatically trust the numbers, but I think the trends were right. After a meal she'd go from even sometimes straight down, sometimes up and down a bit, always jogging under the line, though, never just coming back to even. At the two hour mark she often shot way up and then way down, and there were times at two hours or right after a meal that she stayed far down. The machine said high as 250 and low as 43, but we never got the meter to test her anywhere near that high or low. I'm thinking, though, that maybe she's going higher and lower than the meter says but she's not there long. (breaking)
    4. Lisa P.
      Lisa P.
      Hi,
      Don't know how often you're around but wanted to thank you again for the info on hypoglycemia. I'm pretty convinced she's got kind of a perpetual yo-yo going on that gets wider with meals. We finally got the CGM on her and the ups and downs correlated with eating, 2 hours postprandial, and her stomach aches. I could look at the machine and "guess" how bad her stomach hurt. I'm thinking she is having glucagon reactions from insulin bringing her low, and at some point that failsafe might start to work poorly, I don't want to keep pushing it all the time. (breaking for room!)
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  • About

    Location:
    California
    Occupation:
    mother
    Who has diabetes?:
    One child
    Does your family have celiac?:
    No

    Signature

    Heidi, mom to Taylor (15), Zach (13) dx'd at 7, Regan (10) and Cassidy (7):D
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