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emm142
Last Activity:
Mar 20, 2016
Joined:
Sep 7, 2008
Messages:
6,883
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1
Trophy Points:
38
Birthday:
Nov 10, 1992 (Age: 25)
Home Page:
Location:
Cambridge, UK
Occupation:
Student

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emm142

Approved members, 25, from Cambridge, UK

emm142 was last seen:
Mar 20, 2016
    1. Sarah Maddie's Mom
      Sarah Maddie's Mom
      Hey there, haven't seen you around lately - just hoping things are ok. Pop in and say "hi" when you can.
      Best, Sarah, Maddie's Mom
    2. StillMamamia
      StillMamamia
      Hi Emma, haven't seen you around in ages. Hope everything is ok with you.
    3. Serenia
      Serenia
      Just read your signature. You have to deal with depression and diabetes and hypothyroidism - poor you. I am glad you have it all mostly under control - well enough to blog about it anyway. While Australia is a long way from the UK, It is not that bad - this from a Kiwi born and raised in New Zealand!!
      Xmas is summer time so if you want to visit - you can visit at Xmas and experience Xmas with NO SNOW!! (gasp).
      Thank you for your reassuring posts to my posts... :)
    4. Lisa P.
      Lisa P.
      Hmm.
      Last stupid idea after reading new stuff on your thread --the salt thing. . . Clare (nondiabetic daughter) has her blood pressure regulation issue that means she doesn't have enough oxygen flow to her brain and digestive system unless she's on a high salt diet. I mention it not just because it's all about me (;)) but because before diagnosis she had lows and highs -- tested her once after lots of glucose and her bg on the meter went from 70 to 190 and back, the CGM clocked her in the 40s (don't know if that was wildly inaccurate). Just did another informal test and her bg did 90 to 120 and back, like you'd expect.
      Here's a semi-hinky site that might have some info.
      http://www.mitralvalveprolapse.com/whatisdysautonomia.html
    5. Lisa P.
      Lisa P.
      Thanks for letting me ramble! Have a great one.
    6. Lisa P.
      Lisa P.
      And one other thought, after reading your thread about having to "prove" pumping gives you better health outcomes, it's tempting to compare
      1. How my outcomes were before the pump
      with 2. How my outcomes are on the pump
      Or compare
      1. How my outcomes are on the pump
      with 2. What I expected my outcomes to be on the pump.
      But what you really want to compare is
      1. What my outcomes are on the pump
      with 2. What my outcomes would have been if I weren't on the pump.
      I know it's hard to do that because how are you supposed to know that? But I think it's fair to look at examples of other young adults, and it seems to me it's a time of very high bg's as a rule. I don't buy that most diabetics are careless, etc. I would suspect average A1C among young adults with good care is far higher than yours. My endo suggests the preferred A1C for kids like Selah is 8.4 -- I would think if you are below that safely without lows you might consider your program wildly successful.
    7. Lisa P.
      Lisa P.
      Another theory I had with our failure in pumping was that with the pump and the CGM what was happening was that I was addressing bg's too often, putting too many inputs into the system, and that now that I don't have the option of changing basal rates or correcting a 150 I've simplified things and that has taken the inconsistency and unpredictability away. I tried on the pump to address that and saw no improvement, but who knows what happens subconsciously. So my only other thought (barring something outlier-ish like an insulin allergy) is that maybe you could put LESS work into it and see if that paradoxically helped. I don't really buy that one myself, though.
    8. Lisa P.
      Lisa P.
      Hmm, I think even if there were an extreme change in activity, etc. (like a camping trip) I'd still have seen a drastic improvement once we got off the pump, so I'd guess it's not that. We did go semi-untethered first. It sure seems to me like you have to work as hard as we do for your good numbers, or harder, and I'd like to think that at some point it should get more straightforward for you.
    9. Lisa P.
      Lisa P.
      Didn't want to look like I was pushing anything by posting on a thread, but just a note after reading your last few threads, the variability and unpredictability Selah had (which looks a lot like what you describe) has resolved itself now that we're on MDI again. It has its disadvantages, but now I can know that if I inject half a unit it will have X effect on her -- we haven't been "stuck" high since going off the pump and the CGMS rarely has the double arrows up and down, while that was probably where we were 30 to 40% of the time before. I don't think the pump was delivering consistently for us (I think it was probably absorption, but it could have been the pump). Maybe totally not something related to your concerns, but I was correcting one way or the other 4 to 5 times almost every night, now it's once tops. Good luck finding your answers.
    10. StillMamamia
      StillMamamia
      Just a quick update that the ketone strip packaging isn't hard to open at all. I was looking for a slit to open it, but you actually just pull the packaging apart from the top. Really easy, LOL, but you know how it is...why make it simple when you can complicate it, LOL.
    11. StillMamamia
      StillMamamia
      Ok, hi again. So, the ketone strips come packed individually. I found the packaging a bit hard to open. :/
      The meter is a bit clunky-looking, but it does its job, LOL.
    12. StillMamamia
      StillMamamia
      The BG strips were in a tub. :D The meter itself is not too streamlined, physically. I mean, it's not the best aesthetics, kwim? The case is a bit old-fashioned, LOL, and the place where the meter goes is two black extensible rings holding a plastic cover, LOL. The poker didn't hurt Ian at all (setting 1).
    13. StillMamamia
      StillMamamia
      Ok, so there were no sample ketone test strips in the box, UGH!! I so needed them NOW! Anyway, I ordered a box and it normally contains 10 strips for about 50 Euros, so cheaper than the Precision Xtra strips. I'll let you know how they are packed next week when they arrive (Easter vacation and all that). The pharmacy never has a stock of any of the ketone strips anyway, since they expire fast and I think I may be the only one using them around my area, LOL.
      I did test BGs with the sample strips and compared that with the Bayer Contour. The previous read 350 and the Contour 351. (I know, crappy BGs, but waiting for the Emla to work to do the site change).
    14. StillMamamia
      StillMamamia
      I'll let you know as soon as I open the box, LOL. I didn't need it yet and was busy today, so I didn't get the chance to look it over. I'll let you know.
    15. StillMamamia
      StillMamamia
      Hi Emma, I just was given this
      http://www.diabetes.co.uk/blood-glucose-meters/glucomen-lx-plus.html

      It's a meter whoch also tests ketones. Never heard of it before, but the pharmacist gave it to me, since the Precision Xtra ketone strips have been out of stock here for a while. Thought you may like to know. Not sure if available in the UK, though.
    16. Sarah Maddie's Mom
      Sarah Maddie's Mom
      Your PM box is full, so I'll leave my note here '-)

      Hi Emma,
      Guess what we just found? :rolleyes:

      Your sweet Christmas card! I don't know how, but it ended up not so much on top of the entry table as behind it!

      In our defense we just finished renovating the house and we've been living like gypsies since last summer. But it was a lovely card and Maddie said, even before knowing it was from you, " what nice handwriting this person has" :cwds:

      She sends her love.

      So, "merry, merry to you" on this first day of spring.:cwds:

      Sarah
    17. ecs1516
      ecs1516
      Hey Emma I wanted to send you a PM but your box was full.
      Carol
    18. hawkeyegirl
      hawkeyegirl
      Hey Emma! I read this, got interrupted, and then forgot to respond entirely!

      It's good to be back and to see that some things never change, LOL. Hope you are well too! Thanks for the sweet PM! :)
    19. Lisa P.
      Lisa P.
      Thanks again for the well thought out and well communicated thoughts in the difficult thread. In addition to learning something new, it's always good when I am reminded that it's Selah's diabetes, not mine -- even as a small child, it "belongs" to her and I need to be careful to always look at it that way. Thanks.
    20. StillMamamia
      StillMamamia
      Heya, I haven't forgotten you. ;) Things have just been a tad busy around here. :) Thank you for the PM with the info.
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  • About

    Birthday:
    Nov 10, 1992 (Age: 25)
    Home Page:
    http://www.sugarrollercoaster.blog.com
    Location:
    Cambridge, UK
    Occupation:
    Student
    Who has diabetes?:
    I do (type 1)
    Does your family have celiac?:
    No

    Signature

    EMMA - 21
    diagnosed T1 6th july 2007
    pumping with MM522 since july 2008
    MM523 since august 2012
    MM CGMS since november 2009

    cetirizine hydrochloride for solar urticaria dx'd in 2002
    levothyroxine for autoimmune hypothyroidism dx'd 13th may 2010
    venlafaxine, mirtazapine, lamotrigine and diazepam for bipolar disorder
    studying psychology at university

    twitter @emm142​
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