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buggle
Last Activity:
Aug 23, 2015
Joined:
Mar 24, 2008
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Location:
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buggle

Approved members, from Colorado

buggle was last seen:
Aug 23, 2015
    1. zoesmama
      zoesmama
      Hi, I just wanted to thank you for all of your help! Couldn't get through this without your advice, I really appreciate it! :)

      Jessi
    2. Lisa P.
      Lisa P.
      Yeah, that makes sense. We were thinking there might be enough lag time there and the process might be noninvasive enough, basically a weekly shot to keep your betas up, that sort of thing. But even if that wonder scenario would work, seems there is too much inconsistency, you'd be constantly ebbing and flowing, each person would be different.
      I do think Faustman seems on target, but she seems like such a pioneer that I guess I'm thinking it will be so many years before this new field she's opened up gets explored enough to have practical applications. But that's o.k., we'll wait.
    3. Lisa P.
      Lisa P.
      Re research article: My sister and I were speculating, if this panned out, and it was "as easy as all that" to regenerative the cells, could it just be an ongoing treatment until a cure for the autoimmune component could be found? Not a cure, but better than insulin? Guess it's hard to know what could come down the pike. . . .
    4. Lee
      Lee
      Your so nice! Blunt is a very polite way of saying I have no filter :> Email me anytime!
    5. Lee
      Lee
      Hi Buggle - I just wanted to say - I hope I didn't offend you today - I guess my panties where in a bunch!
    6. Lisa P.
      Lisa P.
    7. Lisa P.
      Lisa P.
      Just amazing how this works, and how people can figure stuff out. Interesting to read.
    8. Lisa P.
      Lisa P.
      So do they think other autoimmune diseases have some T cell connection, too?
      Do they think this is some strategy of the virus itself, or just a random oops on the part of our bodies?
      Won't pick on you more, you're not my personal encylopedia! It really is just very interesting. I love the Faustman stuff because I've had an interest for awhile in other areas in which there are new approaches that work with natural systems instead of trying to manipulate or make an end run around them. Will keep watching for your posts.
    9. yeswe'rebothD
      yeswe'rebothD
      don't wanna hijack the thread.. hadn't seen that before. Makes perfect sense to me, though I myself never visibly honeymooned. Grace had high BG's sporadically for a couple of weeks when she was 3, but then everything went back to normal for about 16 months. I was still testing her on/off, but all were great. She started having some lows upon waking the fall she was about to turn 5, then little sis had chicken pox over Thanksgiving week, two weeks later (when it would have developed in Grace if she hadn't had the vaccine) Grace had the classic drinking tons/peeing tons show up in, I'm not kidding you, one afternoon. We were away from home, when I got home I checked her and waved "HI" back to my meter... We went to ER, she was 453, no ketones... and dx finally.

      Now I'm afraid because I see the same process in Mercy, I can't shake the feeling she'll be dx... Had the same feeling with Grace all along..
    10. MamaC
      MamaC
      Thanks for asking! Hard to say if the antibiotics are helping. At followup the doc says the lungs still sound clear, but he keeps getting what I can best describe as a muscle spasm occasionally, often at bedtime, involving his upper abs. Kept him from getting much sleep last night. Tonight he gets Flexeril from yet another doc (both of his regular ones as well as the sub we say yesterday, are on vacation)!
    11. Lee
      Lee
      Thanks for your nice message! I really hope I am not being pushy - but I went through the same thing in January - exactly like what you are saying, so I hear you about how frustrating it can be!
    12. twodoor2
      twodoor2
      Sounds like you're a good step ahead by eating such high quality vegetarian food and complex carbs.
    13. Mama Belle
      Mama Belle
      Yes, I would like that very much. Somehow I missed the C-Peptide thread and was just catching up on it. I really think you are on the right track with this and I would like to talk with you about it some more. I know grass roots things are hard, but I would be willing to do some legwork and have some ideas in that regard. Let's talk. Feel free to email me anytime at heidi dot eikenhorst at gmail dot com.
    14. Lisa P.
      Lisa P.
      Do you think it would be useful to start with something small that relied on word of mouth, and grow it from there?
      I think you are really grabbing a lot of peoples' imaginations with the idea of personal funding of independent research, but your audience here is a bunch of folks who are likely to be short on money and time and a little scared to commit. But please don't think somehow that there isn't interest there -- maybe you could start a thread with a poll, if you haven't already, to see how many would be interested in the kind of work you are proposing to lead?
    15. theramosfam
      theramosfam
      Hello!
      Was wondering if you knew about IGF? Recently, we'd switched basal insulin's from Lantus to Levemir due to a rep from Novo who scared the hell out of me. I was in line with my children at an JDF event in Illinois..waiting for our food, as we passed the few vendors who sponored the event. One was from Novo, when I'd asked what the difference w/Lantus vs. Levemir was...she ubruptly said, "oh, Lantus will more than likely cause cancer due to it's extreme IGF factor." I was dumb founded, frozen, and confused. When I went back to ask her what she meant for if she had a card, and she said no (of course). Then I saw her at the Diabetes Expo in Chicago no long ago and she was in tears when I approached her about what she'd said to me...and of course denied ever saying it, and in tears. I did call the coordinator that worked with this rep at the JDF in Chicago, and she said that was her BFF. Then I called the pharma's to tell them, and really they didn't do much.

      Anything you can share about it, if you know...would be greatly appreicated. :)
      thank you.
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  • About

    Location:
    Colorado
    Who has diabetes?:
    One child
    Does your family have celiac?:
    No

    Signature


    Rella, mom to Brendan -- 15-yrs-old, dx'd March '08 at 8 years old
    Navigator CGM: 11/08 to 1/11
    Dexcom CGM since 2/11, G4 as of 10/12
    OmniPod since 7/09


    Help Cure Childhood Diabetes
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