buggle

Thanks for the insight.
Honestly, I think these are the heroes today, the ones who persevere. I can storm a trench, but I've never been able to fight the long fight. I'm always amazed at those who can, and who will. I don't blame Dr. F in the least, I'm just amazed frankly at the things we'll put up with in this country right now, and at how hard we make it on those trying to do good things. But then, I'm a nut. I'm glad she's there, I really hope she makes progress but even if it turns out not to be the path I'm grateful to her for trying.
Thanks.

I apologize.
Thank you for the information. I genuinely did not mean to bring bad blood to the thread and appreciate all your education on the issue. I'll refrain from posting on all Faustman and JDRF threads in future, fyi.

Hello Rella - Just checking in to see how or if Brenda is back to pumping? Last week Manning had HUGE pod issues, couldn't get one to work longer then 24 hours. We were changing pods every other day, sometimes more. Thank goodness that is was school vacation week. Although Manning was to the point of frustration after day three. I called Insulet, gave them all the required info on the bad pods. Then told them my son was currently reading HIGH as a result of pod failures. I told them that I really think it was a PDM issue, they overnighted (Saturday delivery) a new PDM and a box of pod. Every thing is going GREAT with the new PDM, we are now getting 72+ hours out of the pods.

Thanks for the response, that was what I assumed you meant but I was hoping you'd clarify and you did. Not really interested in arguing over there, pleased no one has become argumentative, and afraid if I continue to comment I might inspire to argument, so I'm leaving off that thread. But I did want to thank you for your thoughtful response.

Have you ordered Brendan's Omnipod yet? Manning has worn his on and off over the past few weeks with saline, I wore it this past weekend with saline and DH will wear it this coming weekend. We go live with insulin Monday July 13th...I'll let you know how it goes.

Manning is very excited...he likes the techiness (our word) of the pump. He can't wait to be rid of the lantus injection. I can't wait to have a little better control with his nighttime numbers...heck at this point all of his numbers. I am however realistic and know that the pump is not a cure all but a great management tool.

We plan on getting Manning to the point where he can control his pump and be an active participant with his care, without over loading him with the HUGE management of D. We want him to feel comfortable and confident but do not want him to obsess or stress over D either.

We will keep you and Brendan updated...maybe once Manning starts I can have him send Brendan a little cyber note on his experience.

Rella - Sounds as though we will be starting the pump around the same time. We are going with the Omni Pod too. I am so very nervous...our pump class is this coming Thursday (June 11th), one day before Manning turns 8 :D. I hope to have the Endo sign off on the med form and have our order placed by June 17th.

Right now I am breathing deeply! :cwds:

Wanda

That's funny, I never even knew there was a separate channel for prescriptions until we had some problems with them! I think maybe since we were from out of town and didn't start with BD we got some wires crossed. Plus, if I had it to do again, I'd just ask to talk to the endo every time.

We're in Colorado Springs right now, we have a contract on the house in Florissant that should close soon. Hopefully things will settle down and if you ever feel like meeting up we can give it a run. Todd's email right now is tpowelltrout@yahoo.com, I come and go on the forum these days so email me if something comes up that will work, we need to visit Denver soon and see the botanical gardens, etc.

I didn't dislike our endo, we just only ever got diabetes 101 from him, and now he's farther away than our first endo. We hardly ever spoke to him, maybe once in person and once on the phone. I liked the desk staff a lot, and the nurse fine, but I just could never get the nurse to call me back on time -- several times at all. I called maybe tops once a month, and it was for stuff like adjusting basal for honeymooning or what to do when sick. I think they were just overwhelmed with calls from people in more urgent situations, but I still needed help.
I'm glad you're happy with them, though, not trying to badmouth them, I imagine habits depend on the specific nurse and doctor you get, and I don't mean to say anything negative except that they seemed very busy, which is not their fault!

I hope you guys feel a lot better soon, what a misery to get through. Hope the BD comes through with an appointment in a couple days so you don't have to make such a tough choice.

Best luck in your decision, when we had our BD appointment my other two kids had minor illnesses, we were coming from out of town and they had to come to the appointment with us. We kept them in the room with us and they didn't have direct exposure to any other kids, but there wasn't any mention of the possibility of rescheduling to prevent exposures. We have switched to our original endo from BD, they were nice enough but being so overwhelmingly busy really affected the care we were getting from them -- lots of not getting called back, etc.
So, I hope you can get another appointment soon, but I wouldn't be surprised if they tell you to come or wait for months. Can you get the blood tests done and sent to them without an apptmt., at a local lab? Or do them through your doctor? I am totally with you on not wanting to spread that around, I think you are (and I don't say this often) absolutely wonderful for taking the health of other kids so seriously. Stomach bugs spread SO easily.

I thought I'd try to learn the names of the top 50 or so CWD posters and I can't find yours. If it's a secret, that's fine, otherwise: what's your name?

Thanks, I've been around here and there, just not as much. Only have dial-up again... grrr.. Thanks for thinking of me ;)

That's funny, the stories.
We actually are planning to move the the Woodland Park/Divide/Florissant area. Gulp. So the Breckenridge cow story is very appropriate. I'm hoping not to lose my tail with this move!
Thanks.

Thank you very much! :)

My five year old was looking at a dinosaur book with her dad and I heard the conversation from the other room, "Yes, Clare, you're right. The dinosaurs that didn't eat meat could still be very tough." Thought of you! :) Must have just read a food post or something. . . . .

No, I'm a firestarter and I SWORE off posting this month and couldn't stop. Thought this would help but I bet now we'll just have 3+ fights going. . . :) But I'm an oldest, so I think even though I'm belligerent and adversarial I still want everyone to love me. . . . . !

Hope everything's going smoother for you, I understand your wild numbers tamed down a bit? Miss seeing your posts, they seem to have slowed down a bit, but I'm guessing you're busy and have a life, which I'm trying to acquire. . . .

Been watching your posts, but have nothing to add. But am so sorry this is so hard for you.

I know that this is normal, honeymooning happens even to these extremes, but it's freakng me out that you are such an advocate of the research about beta cells regenerating themselves naturally and now you are seeing these numbers. The body is an amazing thing. Of course, I'm easily freaked out and I do have great sympathy for how complicated your life has suddenly gotten!

I can't speak to how well it works out, but there are ways to run your own business and have health insurance, even with diabetes. I recently talked to someone in RMHMO about it. You need to fulfill certain requirements (e.g. two employees, pulling paychecks, working at least 24 hours per week each, etc.), and of course pay for it (but of course you're doing that now, anyway, just embedded), but it's something to keep in mind. Just a friendly FYI!

How's the Faustman, etc. project coming? Have you been able to make any headway? Have you seen elance, odesk, those sites? I have no idea if they are good or not, but you can hire a freelancer or contractor to do work for you. Don't know how expensive that would be, and I'm sure it would be time consuming to post and get bids, but was just brainstorming that maybe you could set up a simple blogger or etc. page to solicit small pledges to get a site built? Probably a little too complicated. . . .