Triplet boys, 2 with T1, 1 with ASD
Busy Mom of 3, youngest is T1D.
I am the President of the College Station Evening Lions Club and I am looking for kids to sponsor at the Texas Lions Camp.
Diagnosed in 2014...Now I'm 18 and preparing to go off to college next fall!
Diagnosed in 2014
Thank you for all the info Brenda. Yeah, I am just learning about celiac by reading the forum hear and some of the books I have also include some info on this, I just wanted to take one thing at a time. LOL! I sure hope he doesn't come down with anything else, but I guess none of us would be on this site if we could choose. Well, thanks again and take care. Nice to meet you, Brenda.
Was looking at your profile to see where you live to see if I might know a therapist there, but I do not. Noticed you said you did not know what celiac is (per your profile). Celiac disease is an allergy to wheat gluten. Another autoimmune disease, it can happen to those with type 1. Make sure your diabetes team does a TTG test (transglutaminase) maybe once a year (every year, every two years--ask them about the frequency of testing). It's just a blood test. If positive, some opt for a confirmatory endoscopy, but that's a pain. I have heard that the blood test is pretty accurate (a positive is a high number--just heard a teen say hers was 800, which is very high). If you are interested, we, CWD, hold an annual conference in July in Orlando Friends for Life), at which we offer free celiac testing. Preliminary info will be on this site in a month. Dates are July 5-10. There should be scholarships through the Diabetes Scholars Foundation (check in Jan) to help pay the conference fee.
Hi, sorry, check in every once in a pretty long while, I don't write on the forum any more, and didn't see you'd left a message until now. We're doing fine, hope you are all doing great, miss you all and thanks so much for checking in!
How you doing?
hi there, I saw that you have a 9 yr old son named Austin! I have an 8 yr old named Austin also t1. He would love to find a boy around his age to become pen pals with!!! Would your Austin be interested? We live in Northern CA close to the oregon boarder. Let me know :)
Jonah that is very interesting, thank you. I will try it again. Really had enough of looking at the CGM in the morning and seeing overnight #'s between 100 and 120 with no alarm.
Hey Darryl, I was thinking about how calibrating 20 mg/dl lower wasn't working and it occurred to me- you'd need to calibrate a percentage lower and calculate it that way in order to have it be consistent, not an absolute number lower. The G4 does its calibrations with a best fit ratio based on the latest three calibrations (which are matched to SG from fifteen minutes before the calibration- I think), according to their published data.
May I ask which endocrinology practice you go to? I am looking to move back to Illinois / Wisconsin to be closer to family, and my ultimate career goal is to be a CDE in a pedi endo clinic, so I'm trying to network and connect with anyone I can at local practices.
On its way
I was trying to open the blood glucose cheat sheet but I can't for some reason.
Can you email it to me please?
WittsEnd... I believe your best course of action is to go to a family therapist. It's usually not my first response..but when we attended the Friends for Life conference this year I met two wonderful therapists who were also diabetes educators and they work with families dealing with issues involving chronic conditions. You might want to search for this kind of therapist. I don't believe any child should have therapy by themselves but go through it with one or both parents and possibly with siblings as well. Hope things improve.
Sometimes with out-of-control yeast infections within the body, the fugus can release toxins that affect the brain and behavior. With the high sugar issues of diabetes, it might be a possible cause of some of the behaviors.
I am not a parent. I am an autistic man from an autistic family (myself and four brothers diagnosed; parents undiagnosed but diagnosable) who has done a lot of parenting for my autistic younger brothers, and who has experience working with children (plus a teaching degree).
I also have the experience of having had special needs not addressed in school (or elsewhere) and exploding at home, and I also attempted suicide before the age of ten (as well as at the age of eleven, but not since).
I'd rather not post this in the forum (I'd rather put it in a private message or email, but you haven't enabled those). Here are my thoughts about your post:
How much of this do you think has to do with diabetes?
Has she ever attended a diabetes camp or been around other people with diabetes + celiac?
I do think switching to needles would likely not be as bad as you think.
Have you tried a behavior plan? If so, how does she respond to it?
What you are describing, if it is happening with lots of different triggers, sounds to me a lot like a very overwhelmed child who does not have good strategies for calming herself down, and who also has learned over the last few years that tantruming at home (by threatening the insulin pump) gets her what she wants, at least to some degree.
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