http://forums.childrenwithdiabetes.com/ New members, please introduce yourself en Sat, 21 Nov 2009 22:30:22 GMT vBulletin 60 http://forums.childrenwithdiabetes.com/images/misc/rss.jpg http://forums.childrenwithdiabetes.com/ http://forums.childrenwithdiabetes.com/showthread.php?t=47255&goto=newpost Fri, 20 Nov 2009 20:28:22 GMT Just wanted to say hi to everyone. I am kind of a newbie here. As the parent of a T1 I have popped in from time to time looking for advice and... Just wanted to say hi to everyone. I am kind of a newbie here. As the parent of a T1 I have popped in from time to time looking for advice and understanding. Now, I am officially a poster and not just a reader!! ]]> Introductions SherryFromCAli http://forums.childrenwithdiabetes.com/showthread.php?t=47255 http://forums.childrenwithdiabetes.com/showthread.php?t=46999&goto=newpost Sat, 14 Nov 2009 22:19:20 GMT My 11 yr old DD was dx'd on Sept 15. We spent 4 days in the hospital, and things are still confusing and scary. There are so many aspects to deal with, and none of them are easy.

I'm a Pastry Chef, so fortunately, I had several weeks of nutrition classes in culinary school--that's probably been the only area where I don't feel completely stupid.

I am not particularly fond of our pediatrician... I chose her when we first moved here because the practice was conveniently located and since she was new to the practice, she was the only one taking new patients. My kids have always been very healthy, so I felt no need to keep searching when she didn't 'wow' me with her bedside manner. Little did I know how much of an issue it would become. :-( And since my DD is on our state's medicaid, it's nearly impossible to find another doctor who will take a new medicaid patient. She did have the good sense to refer us to a great pediatric endo, and I believe we'll come to really like him in time, but unfortunately he's over an hour away, so visits there will be a hassle.

And speaking of hassles, could there be anything more frustrating that the insurance/pharmacy dance? It's been one pain in the *** after the next--first we were prescribed test strips for a One Touch meter, but they sent us home from the hospital with a Bayer meter (which we discovered at 9pm on a Friday night, an hour away from home). Then they wanted us to test 5-7 times a day, but we only got a script for 100. Then Insurance #1 would only cover 150 strips, and Insurance #2 would cover 200, but the co-pay was 3x as much, and neither would cover the difference between the two. Now the Endo put us on a new kind of insulin, gave us samples in the office. They expire on Sunday. I called on Wednesday to tell them they hadn't given us a script. Thursday the pharmacy still didn't have it. Friday they called it in again. Today the pharmacy says I can only get one of them because the doctor has to get approval from the insurance company first. Sure, my kid will just go without insulin on Sunday while you do your paperwork, thanks.

And then my DD... I can't tell you how proud I am of her for handling this so bravely. It took her a couple of weeks before she'd even try, but she's able to give herself shots now, never skips testing, and so far has not tried sneaking foods she shouldn't have. Most of the time she has a matter-of-fact attitude about it, but once in a while she's just had enough of it and cries and wishes it would just go away. It breaks my heart for her, because there's nothing I can do. Last week a classmate of hers started telling her and all their friends that "diabetes makes you retarded", and started calling her "The Retard". My DD was so upset... I have never wanted to get violent on another person's child so much in my life. Her teacher is a gem, though, and agreed to buckle down on that kid to put a stop to the bullying. So far it seems to have been effective, we'll see how long it lasts...

I know I sound incredibly negative right now. It's been a very difficult couple of months; I hope with time we'll feel much better about things.

~~Sassypantz~~ ]]> Introductions sassypantz http://forums.childrenwithdiabetes.com/showthread.php?t=46999 http://forums.childrenwithdiabetes.com/showthread.php?t=46829&goto=newpost Wed, 11 Nov 2009 06:28:09 GMT Hi. My ten year old son was diagnosed with Type I diabetes three days ago. We spent the next two nights in the hospital; we were discharged last... Hi.
My ten year old son was diagnosed with Type I diabetes three days ago. We spent the next two nights in the hospital; we were discharged last night at 8:30 p.m. I don't know what to say. How do people do this? I know we're at the start of a steep learning curve, and thank goodness I have a supportive husband, and my son is a good kid- responsible, bright, already giving himself injections- and his 7 year old brother has been very understanding, but... I can't get my brain around this. When does the shock wear off? I'm giving shots, checking carb labels on foods, calculating Novalog doses, recording glucose readings, and I still feel like I can't wake up. Poor kid. Poor us. Is it awful to think that?
Thanks. ]]> Introductions ewd1 http://forums.childrenwithdiabetes.com/showthread.php?t=46829 http://forums.childrenwithdiabetes.com/showthread.php?t=46827&goto=newpost Wed, 11 Nov 2009 04:19:05 GMT My name is Mandie I'm 23 [I accidentally misspelt my user name so I had to send my old one with an email address I don't use]

My father was diagnosed 2 weeks after I was born in 86. We don't know who he had gotten Diabetes from because we know nothing of his biological father. His step mother was a Diabetic, and his great aunt became a Diabetic in 20002. My father passed away from cancer in 1996. I was dx'd at 984. I've had Diabetes since I was 13. My doctor continued to argue with me and tell me I was a T2 and T1.5 LADA I went to her for 6 years only because there weren't any other's who were free for new patients. I switched doctors in the summer of 05 where I went on my pump to which my Endocrinologist told me I was indeed a T1. I've been on my pump for the past four years now and I absolutely love it because it beats 8 - 12 shots a day. I'm again switching Endocrinologists because I'e been all over the medical spectrum of nothing going right, between moving and distance, to wanting someone closer to home who ended up moving, getting a new Endocrinologist who hasn't been so welcoming I'm soon to be on my fifth, then sixth Endocrinologist and I hope to have things settled. I just upgraded to the 722 model for MiniMed and I can't wait to get my sensors next year. I'm here to learn to grow and manage my disease, to hopefully become an advocate, but to learn new techniques when things don't go right. ]]> Introductions actualreality86 http://forums.childrenwithdiabetes.com/showthread.php?t=46827 http://forums.childrenwithdiabetes.com/showthread.php?t=46803&goto=newpost Tue, 10 Nov 2009 20:06:25 GMT Hi to all,

I just realized I posted my problem and didn't introduce myself. My name is Kathleen and I have 2 daughters Carmen (d/11) and Amy (7) we live in Va. Although I am new to the forum we are not new to CWD. We have attended FFL conferences for 3 years and hope to continue and go every year.

Kathleen ]]> Introductions Momov2 http://forums.childrenwithdiabetes.com/showthread.php?t=46803 http://forums.childrenwithdiabetes.com/showthread.php?t=46801&goto=newpost Tue, 10 Nov 2009 19:53:08 GMT OK it finally happened after living w/d for 7 years my little love has finally decided she doesn't like having diabetes. No surpprise there-I figured it would catch up w/her at some point. Unfortunatly now she has this whole "I can't remember" or "Oh, I forgot" attitude and the results are too many high numbers.
My Daughter is 11 (soon to be 12) and been a pumper for just over 1 year now. Today she didn't bolus for breakfast even though I reminded her and checked w/her twice b4 she left 4 school. When she did her pre-lunch test it was 580. My hands r in the air an I'm open for all types of suggestions.
I need HELP, seriously I know I 'm not the first parent to travel down this part of the road. I would like advice from others on different ways to handle this.

Thanks,
Kathleen in VA. ]]> Introductions Momov2 http://forums.childrenwithdiabetes.com/showthread.php?t=46801 http://forums.childrenwithdiabetes.com/showthread.php?t=46612&goto=newpost Fri, 06 Nov 2009 00:31:14 GMT Hello everybody, my name is Jack and I wanted to say hi. I am 5 years old and have type 1 diabetes. I love to play video games and I just started... Hello everybody, my name is Jack and I wanted to say hi.
I am 5 years old and have type 1 diabetes.
I love to play video games and I just started kindergarten this year. ]]> Introductions Jack Jack http://forums.childrenwithdiabetes.com/showthread.php?t=46612 http://forums.childrenwithdiabetes.com/showthread.php?t=46550&goto=newpost Wed, 04 Nov 2009 23:47:10 GMT Hello everyone, So, my husband thinks I am crazy because I am worried about our daughter. First of all, my mother got Type 1 when she was 9. I got... Hello everyone,
So, my husband thinks I am crazy because I am worried about our daughter. First of all, my mother got Type 1 when she was 9. I got Type 1 when I was 17. My grandmother also has Type 1 but I am not sure when she got it. My three year old daughter wanted to see what it felt like to check her sugar (like me) so I (just playing) checked hers this morning. It was a fasting blood sugar reading. It came back as 124. Two hours after eating it was 133. Should I be concerned? Or,.... am I just worried for no reason? I called her doctor but she was out of the office today so I will not hear anything from her until tomorrow and cannot just stop thinking about it.
Thanks so much!! :) ]]> Introductions mommytomaddy http://forums.childrenwithdiabetes.com/showthread.php?t=46550 http://forums.childrenwithdiabetes.com/showthread.php?t=46454&goto=newpost Mon, 02 Nov 2009 23:18:21 GMT My 6 year old son Andrew was diagnosed two weeks ago with Type 1. We are adjusting well to our new normal. Most of you know exactly what we are going... My 6 year old son Andrew was diagnosed two weeks ago with Type 1. We are adjusting well to our new normal. Most of you know exactly what we are going through. I have found a few answers to questions I had by lurking around and felt it was time to join and give a generic thank you.

I feel a little bit lucky to have lived with a diabetic roommate in school. It certainly helped in the diagnosis as I managed to get Andrew to the hospital before he had any ketones in his urine. His blood sugar was over 40. It was the frequent urination and constant thirst that triggered me into buying some urine strips at the pharmacy and finding that he had lots of sugar present.

We are currently using manual injection 3 times daily and 2 types of insulin NPH and Rapid. I feel I have been drinking from the firehose in trying to gain all the knowledge I need to have. I do have questions that pop up every now and then and would find it comforting to know I can post them here where there are so many people with similar issues. It seems the more I learn about what we are using to manage the disease the more alternatives I find and questions I have.

I didn't mean for my introduction to be so long. Hopefully we will see a cure in our lifetime.

Dave. ]]> Introductions Deal http://forums.childrenwithdiabetes.com/showthread.php?t=46454 http://forums.childrenwithdiabetes.com/showthread.php?t=46449&goto=newpost Mon, 02 Nov 2009 21:53:03 GMT Hi everyone. I'm Amanda and my 14 year old son Connor was dx'd with Type 1 on 10/9/09. I have been lurking here since about 2 weeks after diagnosis and I have already learned SO much. I actually think I've learned more from you guys than I have from our endo! Life with Diabetes has got to be one of the most complicated and unorganized things I have ever dealt with. I have already given the wrong insulin at the right time and vice versa and have forgotten totally to give a shot. I really do hope it gets easier than this. My brain is pretty much fried and it doesn't feel like that is going to be changing any time soon. Connor has been doing absolutely great though. He hasn't complained about having to do any of the finger pokes, shots, carb counting, none of it. He has also been really helpful about eating mainly free snacks or pre-packaged snacks. I'm going to go on over to the parents forum and see what other wise bits of wisdom you all have to offer. :) ]]> Introductions My2Boys http://forums.childrenwithdiabetes.com/showthread.php?t=46449 http://forums.childrenwithdiabetes.com/showthread.php?t=46424&goto=newpost Mon, 02 Nov 2009 13:32:15 GMT My name is Brenda and my four year old son was diagnosed about 11 months ago. It has been quite the journey. I have been reading forums on CWD... My name is Brenda and my four year old son was diagnosed about 11 months ago. It has been quite the journey. I have been reading forums on CWD since almost the beginning but just never posted. I have found some great information on this site. Thanks to those who share! ]]> Introductions 2boysmom http://forums.childrenwithdiabetes.com/showthread.php?t=46424 http://forums.childrenwithdiabetes.com/showthread.php?t=46397&goto=newpost Sun, 01 Nov 2009 18:09:17 GMT Hi everyone!
I've been reading this forum for almost 2 years but finally thought I'd join this group of special people.
Hubby and I have been married for 22 yrs, together for 31, high school sweethearts. We have 2 daughters aged 20 and 15 and our son Michael who just turned 9 was diagnosed on 12/17/07. He had been sent to the principals office to be scolded for taking too many bathroom breaks and his teacher called to tell us about it. I had noticed he was taking a bottle of water to bed with him and getting up in the middle of the night to use the bathroom so we took him to the doctors thinking maybe he had a bladder infection. The look on our peds face and her words are engraved in my mind. She said to go home, quickly pack a bag and be prepared to spend the next 4-5 days in the hospital learning about diabetes. After many tears and many months of trying to convince ourselves that he was misdiagnosed and that this honeymoon period would last years we have finally faced the reality that this is part of our lives and although not curable (yet) we can and will live with it.
He is currently using humalog and lantus and we count carbs. Last week we took the pre-pump class and we're very excited to get one. Right now we're torn between the MiniMed and the Ping. Both have advantages and disadvantages so I've been reading alot and gathering opinions.
My hope for this forum is to learn from everyone and to maybe pass along a tip or trick I've learned along the way.
*hugs*
~MM~ ]]> Introductions Mom2Michael http://forums.childrenwithdiabetes.com/showthread.php?t=46397 http://forums.childrenwithdiabetes.com/showthread.php?t=46373&goto=newpost Sun, 01 Nov 2009 00:06:31 GMT Hi all!! :cwds:
I'm a new mom of a Type 1. My 5 year old son was just diagnosed on October 20, 2009. My husband and I had noticed the excessive thirst, weight loss, and tiredness but we didn't think much of it. It wasn't severe and he had a pediatrician appt. within a couple of weeks after that so we figured unless it got really bad, we would just wait until the appt. to talk to the doctor about it. So when we took him in and told them about the symptoms the nurse and the Dr. gave each other this "look". Just that look of something is wrong with your child but they won't tell you what. Immediately after that they checked his blood sugar and it was 479. :( They sent us straight to Children's Hospital where we endured a lifetime of information in a matter of days. While we were there we couldn't wait to just go home and get on with our lives. But now that we're on our own, it's like where do we go from here? We're slowly getting back into the grove of things and are hoping to take it one day at a time. Our son has been an absolute trooper though. He hasn't complained about his "ouchies". I know that right now he doesn't understand the full extent of Diabetes. He just knows that his pancreas has a boo boo and just like mommy and daddy's kisses make his boo boo's better, a cure and insulin will make his pancreas better.
I hope to get to meet many of you soon over in the parents forum and get to talk with many other of you moms and dads of Type 1's. :cwds: ]]> Introductions http://forums.childrenwithdiabetes.com/showthread.php?t=46373 http://forums.childrenwithdiabetes.com/showthread.php?t=46134&goto=newpost Tue, 27 Oct 2009 23:36:18 GMT We were very surprised to learn of my daughter's diagnosis of Type 1 diabetes. No one in our family is diabetic. Weight loss, thirst, hunger, loss of energy were the reasons that we called the doctor to see what was going on. After the blood tests, we were called early the next morning and told to go straight to the pediatric ward for direct admission.

Three days later we left the hospital with an arsenal of pamphlets, books, gadgets and prescriptions.

She currently tests her levels every 3 hours through the day and once through the night. This week her levels have been quite good. She uses the Novolog insulin pen for daytime injections and the Lantus right before bedtime.

The devastating news was hard for us. Day by day we are learning a little more, and day by day we are making diabetes part of our life.

My name is Mary. ]]> Introductions MaryMom http://forums.childrenwithdiabetes.com/showthread.php?t=46134 http://forums.childrenwithdiabetes.com/showthread.php?t=45996&goto=newpost Sat, 24 Oct 2009 17:08:04 GMT Mom of 2 IDDM here just started really using this site, and I am amazed at how great this site is. I have searched for a great network support place... Mom of 2 IDDM here just started really using this site, and I am amazed at how great this site is. I have searched for a great network support place that I felt comfortable with and am glad to say I have finally found it.
I have 2 wonderful sons that were diagnosed at 14 months and 2 years of age with IDDM and my world was turned upside down when not only one but 2 of my children were diagnosed. I went from "What did I do to deserve this - To What can I do to make my children lives better?"
It took me a long time to realize and get over the shock and to not think about "self" but to concentrate on my kids. Our Endo told me at one appointment recently how much diabetes affects the entire family and not just the person/child that has the disease. And she is totally correct. How many times do us parents go without sleep b/c we are up every 2 hours checking on that little one's BS in the middle of the night. IT is mentally and physically exhausting.
Having diabetes is all they know, it's how we as their parents chose to treat and handle the disease and teach them also as we learn.
Do I want my children to have this, no I don't but they do and we choose to live with it. We control diabetes, not the Diabetes controling us. It has taken a long time as I said for me to grasp this concept. Only with the guidence of our wonderful Endo family.
I just wanted to share this little info with all of you today. ]]> Introductions Terrie http://forums.childrenwithdiabetes.com/showthread.php?t=45996