http://forums.childrenwithdiabetes.com/ Children with Diabetes Forums en Wed, 19 Jun 2013 16:12:54 GMT vBulletin 60 http://forums.childrenwithdiabetes.com/images/misc/rss.jpg http://forums.childrenwithdiabetes.com/ http://forums.childrenwithdiabetes.com/showthread.php?t=73703&goto=newpost Wed, 19 Jun 2013 15:09:17 GMT As I mentioned last week, my 9 year old is about to start pumping. It has not yet arrived, and we have not attended the training yet... My question... As I mentioned last week, my 9 year old is about to start pumping. It has not yet arrived, and we have not attended the training yet... My question to all of you who are pumpers is:

We are going on a vacation to beach in mid July. We will most likely only have the had the pump for maybe a week, two at most by that time. I don't know if we should stick with her shots for vacation since that is what we know and are used to, or if we should just jump right in and begin pumping for the whole trip.

I guess my concern is that because we are newbies, and will be over a thousand miles away from home/her doctor, should we play it safe and stick with the shots? I have read that many have said the beginning can be difficult with the pump just because you have to figure the adjustments to get them to level they need to be at. I just don't know if this is the time/place that we should be doing that if there are problems? The other part of me thinks that since I will be with her for a week straight, it would be a good time for us to learn how and what will work for her?

Thanks for your help :) ]]> Parents of Children with Type 1 justice1315 http://forums.childrenwithdiabetes.com/showthread.php?t=73703 http://forums.childrenwithdiabetes.com/showthread.php?t=73702&goto=newpost Wed, 19 Jun 2013 13:29:49 GMT Has anyone had any trouble with the Mio infusion sets? We have not tried the 9mm yet (Medtronic is sending some) but the cannula gets crimped a lot... Has anyone had any trouble with the Mio infusion sets? We have not tried the 9mm yet (Medtronic is sending some) but the cannula gets crimped a lot on us and last night the tubing was not working. I am getting very frustrated. All the highs Kaylee has are from infusion sets!! (well most .. lately anyway!!)

Crystal ]]> Parents of Children with Type 1 http://forums.childrenwithdiabetes.com/showthread.php?t=73702 http://forums.childrenwithdiabetes.com/showthread.php?t=73700&goto=newpost Wed, 19 Jun 2013 04:12:28 GMT We received the Dexcom G4 this morning, and in no time, had it on and running. DS didn't even flinch when I inserted the sensor...phew!

About an hour after he'd had it on, (back of arm) he goes, "Hey, Mommy, I don't like this thing! Take it off!" My oldest son convinced him that it's a "laser shooter" that he can blast stuff with. So for the rest of the afternoon he was running around, contentedly "blasting" things.:D

I think the greatest advantage I can see, so far, to having this little device is the fact that I can, (as I am doing *right now*), sit on the couch downstairs, while he is in bed, upstairs, and hold the transmitter, watching his numbers...Nightime/Bedtime has always been a tricky thing with his numbers. Not having to test him every hour in a 4 hour window, just to know how he's trending...well, that is just SO wonderful! And the comfort of knowing it has the alarm...I'm thinking I might sleep the best I have in 9 months tonight.

Thankful for another tool that seems to help in simplifying things for him (and us). ]]> Parents of Children with Type 1 Thornbird http://forums.childrenwithdiabetes.com/showthread.php?t=73700 http://forums.childrenwithdiabetes.com/showthread.php?t=73699&goto=newpost Wed, 19 Jun 2013 03:19:57 GMT My little one is three and has a teeny tiny wrist. Any recommendations for SMALL medical id bracelets? The only ones I can seem to find can be... My little one is three and has a teeny tiny wrist. Any recommendations for SMALL medical id bracelets? The only ones I can seem to find can be ordered with a small chain, but still have a ginormous metal id tag. ]]> Parents of Children with Type 1 cgnauck http://forums.childrenwithdiabetes.com/showthread.php?t=73699 http://forums.childrenwithdiabetes.com/showthread.php?t=73698&goto=newpost Tue, 18 Jun 2013 21:36:10 GMT First, thank you to everyone for the responses to my original post. I am feeling a bit better-it varies from day to day. I wake up feeling very... First, thank you to everyone for the responses to my original post. I am feeling a bit better-it varies from day to day. I wake up feeling very depressed about it and feel it gets better from there. I feel like I am so confused about this whole thing-will I ever feel like I "get it"? the nurse calls everyday for the #'s and says it is fine and changes things here and there but I still feel so confused. My daughter has been having lots of lows-like everyday. They took her off of the lantis for now since I guess she is in the honeymoon period. she still has lows and it is so nerve wracking. We have a pool and she is very active otherwise. so we have been trying to play around with the swimming and yesterday I didn't even give her any insulin with lunch and by bedtime she was 56. I don't really know what I am asking here.. maybe some reassurance that someday it will be a bit easier and make more sense? I have heard it gets even harder after the honeymoon period and that scares me a lot...
Also, I know I am supposed to be doing bloodchecks after 2 hours of no eating but it seems like with snacks and everything I have to be like a drill sergeant to get that to work out , to get a true blood sugar..Meanwhile my 7 year old and 22 month old also need attention and I am headed back to work Monday. I really really hate diabetes and want to scream that from the rooftop at this point...
thanks for listening.. :( ]]> Parents of Children with Type 1 Melanie1216 http://forums.childrenwithdiabetes.com/showthread.php?t=73698 http://forums.childrenwithdiabetes.com/showthread.php?t=73697&goto=newpost Tue, 18 Jun 2013 20:49:38 GMT Daniel started his pump today! He really likes it so far. He said the tubing seems to be no big deal. He is using 9mm quick sets right now and said... Daniel started his pump today! He really likes it so far. He said the tubing seems to be no big deal. He is using 9mm quick sets right now and said it was painless inserting and the site feels fine now, he has it on his lower back right now. He was a little high this morning from taking 1/2 dose of lantus last night but it has come down and he actually had a mild low so we know the site is good! I am sure we will have some tweaking to do on the basal rates... But so far he is doing great!:) ]]> Parents of Children with Type 1 http://forums.childrenwithdiabetes.com/showthread.php?t=73697 http://forums.childrenwithdiabetes.com/showthread.php?t=73696&goto=newpost Tue, 18 Jun 2013 18:19:00 GMT Has anyone heard if Animas has submitted the Vibe to Health Canada for approval yet? I am hoping so. I would like to try it out with the dexcom as I... Has anyone heard if Animas has submitted the Vibe to Health Canada for approval yet?
I am hoping so. I would like to try it out with the dexcom as I haven't had any luck with my enlite sensors used with my Veo.
Darlene ]]> Parents of Children with Type 1 D A Morisse http://forums.childrenwithdiabetes.com/showthread.php?t=73696 http://forums.childrenwithdiabetes.com/showthread.php?t=73695&goto=newpost Tue, 18 Jun 2013 14:59:27 GMT Michele'sMom posted this video link in General Discussion. I think it is worth posting again.

http://www.tudiabetes.org/video/tudi...-gary-scheiner

Gary insists 100-120 grams of carbs are needed everyday just to feed the brain and nerves plus more to fuel the muscles and activity.

He says one has worse control with a low-carb diet as the conversion of protein to glucose is dependent on too many variables and too unpredictable.

He thinks that less than 80 carbs a day is not even enough to just fuel the nervous system.....dietary protein is meant for other uses...muscles, bones, growth , enzymes, etc. not as an energy source.

As for the effect of larger doses versus smaller doses of insulin...he says doses say, 10 times larger (20units vs 2 units) take longer to start, peak and finish, but that is the only difference.

Definitely worth the hour you will spend listening to this. ]]> Parents of Children with Type 1 Helenmomofsporty13yearold http://forums.childrenwithdiabetes.com/showthread.php?t=73695 http://forums.childrenwithdiabetes.com/showthread.php?t=73694&goto=newpost Tue, 18 Jun 2013 05:11:40 GMT Please help -- anyone. My son was over 400 for awhile due to an unbolused dinner with my parents tonight (had some lows and pump wouldn't take it). My DH tested ketones (0.0) and changed site. Gave a shot to cover the high and misread the syringe (!!!!!) and gave him 26 units Novolog instead of 2.6. Only realized this about 30 mins ago after giving a number of juice boxes. Called the after hours line and they said give glucagon via syringe and see what happens. He's back up to 125 just now 15 mins later. But 26 UNITS -- am totally scared. What would you do?? Go directly to hospital? I want to but nurse on call said wait. ]]> Parents of Children with Type 1 momof1CWDinohio http://forums.childrenwithdiabetes.com/showthread.php?t=73694 http://forums.childrenwithdiabetes.com/showthread.php?t=73693&goto=newpost Tue, 18 Jun 2013 02:13:32 GMT My 10 yo daughter was diagnosed a week ago with Type 1 diabetes. We are all still learning the ropes. My question today is regarding the meds... My 10 yo daughter was diagnosed a week ago with Type 1 diabetes. We are all still learning the ropes. My question today is regarding the meds carrying case. I have tried two and neither seem to be big enough, any suggestions??

Thanks:) ]]> General Discussion dumer http://forums.childrenwithdiabetes.com/showthread.php?t=73693 http://forums.childrenwithdiabetes.com/showthread.php?t=73692&goto=newpost Tue, 18 Jun 2013 01:26:23 GMT Our physician is suggesting that our 7 year old have an aide at school to assist with diabetes care. I am wondering how this should be stated in her... Our physician is suggesting that our 7 year old have an aide at school to assist with diabetes care. I am wondering how this should be stated in her 504. Any advice on the 504 or aides in general? Thank you! ]]> Parents of Children with Type 1 cem http://forums.childrenwithdiabetes.com/showthread.php?t=73692 http://forums.childrenwithdiabetes.com/showthread.php?t=73691&goto=newpost Tue, 18 Jun 2013 00:51:43 GMT Is there some kind of law or something that states how old a child can be to test their own blood sugar in school with supervision? I know school is... Is there some kind of law or something that states how old a child can be to test their own blood sugar in school with supervision? I know school is almost over, but the nurse is only in part time this week, from 10:30am-2pm. Lately he's been feeling low at times even though his number is ok out of the time. His endo is going to fax a note to the school giving him permission to test himself with adult supervision, not to treat with insulin (ther nurse is there at lunchtime). She's giving me a hard time saying I need to find out from the health dept if there's a certain age a child must be to test himself. I couldn't find anything anywhere about needing to be a certain age, only that it depends on the maturity and ability of the child. Gavi can change the lancet and test himself without a problem. ]]> Parents of Children with Type 1 rakgyk http://forums.childrenwithdiabetes.com/showthread.php?t=73691 http://forums.childrenwithdiabetes.com/showthread.php?t=73690&goto=newpost Tue, 18 Jun 2013 00:45:19 GMT Hi, planning trip to colorado/utah this august. plan on doing some white water rafting. wondering how rafting people manage pumps any rafters in... Hi,
planning trip to colorado/utah this august. plan on doing some white water rafting. wondering how rafting people manage pumps

any rafters in this community

hubby want s o hik e down the grand canyon. we are not up for this.notgoing to happen ]]> Parents of Children with Type 1 fredntan2 http://forums.childrenwithdiabetes.com/showthread.php?t=73690 http://forums.childrenwithdiabetes.com/showthread.php?t=73689&goto=newpost Mon, 17 Jun 2013 23:30:16 GMT I am going to tell you about my situation just in case you find yourself in a similar situation. My son uses the Medtronic insulin pump. During... I am going to tell you about my situation just in case you find yourself in a similar situation.

My son uses the Medtronic insulin pump. During the last month or so, I have been "chasing" basal rates and bolus ratios constantly. I would get them straightened out for a day or two and they would change again. Keep in mind that I keep a very detailed spreadsheet of all of his numbers so that I can see patterns easily to make changes. There were no patterns...ever. I thought I was just one of the lucky ones that would spend years adjusting doses until my son was much older and things settled down a bit or that I was completely crazy.

Nothing really struck me as overly concerning because most of his highs were in the high 100's or low 200's and lows became less frequent. But the past few days have been very exhausting. He's been hitting the 300's frequently and I have changed sets, used different kinds of sets, used different parts of his body, increased basal rates and boluses, checked everything, nothing worked. Finally, I caught a correction that did next to nothing. It is difficult for me to catch a correction that simply does not work because it is usually in combination with a bolus for carbs which complicates every thing. I changed the set and again, the correction did next to nothing. We resorted back to a needle and that corrected him beautifully.

To make a long story short, I called the company at 1 a.m. and they helped me to run tests on the pump (basically, you kink the tube and force 5.0 units of insulin through it to see if it sounds the "no delivery" alarm. It flat out failed the first test, but the company runs a the same test a second time to confirm the first test. It passed the the second test by a hair so "technically" it was functioning as it should. Based on that finding, the company would not "offer" to send a new pump to me, but since I was truly concerned that the pump was not working (which it was not and probably has not been for a while) and I thought the pump may be a danger to my child (and it was)...I told the company that I would not use the pump and asked them to send a new one.

A new pump is on its way to us via overnight mail. The customer service was fantastic, but to say the least...I am disheartened that I now have no faith in how well any insulin pump is going to work.

The point of my story...if you are confused about levels and are at a loss as to where random highs and lows are coming from...trust yourself and call the pump company. It may just confirm that you are not crazy. ]]> Parents of Children with Type 1 Turtle1605 http://forums.childrenwithdiabetes.com/showthread.php?t=73689 http://forums.childrenwithdiabetes.com/showthread.php?t=73688&goto=newpost Mon, 17 Jun 2013 23:12:47 GMT How did I miss this until just now?

My DS's endo just told me they'll test him for celiac at his 1 year diagnosis anniversary appointment. ("happy anniversary!" :()

Ugh. I can't even handle thinking about this. DS is already allergic to dairy, eggs, and peanuts... if he gets celiac, what will the poor kid eat?? Plus, he's already a picky toddler. Lord, have mercy.

My question to anyone who knows, is: is there some sort of known time frame as to when Celiac disease will usually occur after D diagnosis? Like, does one usually get it within X amount of years? I Googled this a bit but couldn't find anything too helpful. ]]> Parents of Children with Type 1 Thornbird http://forums.childrenwithdiabetes.com/showthread.php?t=73688