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View Full Version : Hi all, prayers/thoughts appreciated


yeswe'rebothD
11-30-2007, 12:11 AM
Hey everyone, I'm kinda scarce online during the holidays, but would like to ask for your prayers and thoughts for the next couple of weeks, which will be especially busy.

I didn't talk much about this before, but Grace had a sleep study done last month to check her for sleep apnea. Thankfully she does not have that, but the Dr did see unusual, seizure-like brain activity, so on Monday she will have an EEG to find out if she is having seizures. Unfortunately, the place she's having the EEG done, scheduled her for 8 AM AND wants her sleep deprived at least 8 hours. :eek: oh my. I guess she and I are in for a movie marathon beginning at midnight Sunday night.

We saw Endo yesterday, and the visit was relatively uneventful, but in light of the possible seizures, we are getting a 3-day CGMS done sometime next week to rule out her sugars causing them. This was also her 'annual' appointment, where she has the full blood-work instead of the finger poke A1C, so she finally figured out (after pitching a pretty much full-blown fit working up to the actual poke) that the blood draw didn't hurt all that much. At least she stopped crying right away, LOL. She says next time she won't cry, now that she knows how it feels. I suppose it's helped that she's seen mom get her blood drawn about 8 times in the last month!;)

I'm rushing to get all my medical things taken care of before my insurance drops Dec 31-- I also have a sleep study scheduled for the 15th, an U/S on my thyroid Monday afternoon (it's been enlarged for a while, even when my TSH came back fine), eye check (I'm hoping to get glasses, I need them!), etc etc. I go to the OB/GYN tomorrow, unfortunately alone though. Dh and I have decided that since the hsg was not very helpful in determining why I got pg in the first place, that we will take it as a fluke, and quit using any protection. We just won't worry unless I get pg again, and if it does happen, THEN make a decision. If anyone didn't read my post last week, the hsg test showed that my tubes are still blocked from my tubal ligation, so the Dr cannot tell how I got pg.

I'm going to pursue getting a Paradigm while I'm insured, so that I at least will have a pump and supplies covered now, rather than when I am in desperate need and have to end up paying for one out of pocket. I'm down to about 3-4 months of supplies for my 508.

Anyhow, long-winded me should get to bed! I'll let you all know if anything serious comes up, esp. with Grace's EEG.

yeswe'rebothD
11-30-2007, 12:15 AM
Oh yeah, had to add something the Endo said that I thought was really appropriate lately-- he was talking about my having to juggle my and Grace's D care, and I said, "so you mean I've got six balls in the air instead of three?" He answered, "balls I'm fine with, it's when you start juggling chainsaws that you worry me, and life seems to have handed you a lot of chainsaws lately." I just wanted to hug him! He was my Endo too when I was a teenager.

cgates
11-30-2007, 12:24 AM
Wow! You are awesome!
We'll keep you and Grace (appropriate name) in our prayers.
Please keep us all up-to-date on everything.

--Charles

Abby-Dabby-Doo
11-30-2007, 02:05 AM
Iana~
Wow, you've got a full plate!
From the sounds of your email your holding it together pretty well. I'm a big believer in the power of prayer, and I'll add you to mine.
Thinking of you!;) Please keep us updated on your findings. :cwds:

OSUMom
11-30-2007, 08:57 AM
Know I am praying for you and your family!!!!!!! :cwds:

dvane
11-30-2007, 07:20 PM
We will be praying for you. Ethan had febrile seizures when he was 18 months old. Also had to have an EEG. The doozy was keeping him awake in the car. Let us know how everything goes.

Momof4gr8kids
11-30-2007, 07:30 PM
Good luck, My son Connor had to have an EEG and had to be sleep deprived as well. I gave him coffee unit he couldn't have it any longer to keep him awake. We made it taste like candy, lol.

twodoor2
11-30-2007, 08:26 PM
Good luck with the results. We had my daughter take an EEG, just a couple months before she was dx'd with D. It was for a phonic and motor tic. Well, let's say I had my fill of princess movies!!

WestinsMom
11-30-2007, 09:00 PM
That Dr Draznin is a funny one! I could hear him saying that in my head while I read it.

Do you need any contacts at MM for insurance? Let me know, I have "her" extention...can't think of her name but she is my insurance person there.

Mymommymommy
12-01-2007, 04:48 PM
I"m thinking that her sleeping EEG already happend? i'm not sure. But if it hasn't and you read this,. it will be okay.
My Grace (weird huh?) had to have a sleeping EEG done on Thursday. She had a sizer a month ago so they wanted to check for seizer activity in her sleep. To stay up we were were going to bake =) I got all the stuff ready to go, But i also wanted to go to Kohls for a special 7-12 sale they were having. That ended up working out GREAT! it kept us busy till 11:"00pm (people looked at me like i was the WORST mom in the world, having a 3 year old out shopping at that hour.. oh well) But Grace still wanted to bake so we went and bought some pre shapped christmas cookies, and cooked a few of them, then let her frost them. Grace because she is 3 was able to go to bed at 2 then wake up at 4. we went to bed at 12:20 and woke up at 4:30. It went great, the actual eeg. i was so proud of her just sitting there letting them stick those things to head, she was a real trooper! and i'm sure your grace will be too