Type 1 and adult onset

[KeltonsMom]

My sister who is now 51 was recently dx with type 1 D :eek: I was told it can happen but is rare. Well she wants me to go in to get tested she told me there is a blood test that can tell if I am at risk for developing type 1 as well..

So, before I go to see my doctor to ask to be tested what test should I ask to be given?

Now I have hypoglycemia and have had it since I was a kid, and I test my glucose often, especially when I feel low, which is about 30-60 minutes after eating anything and I am usually between 65-55
The past month I have noticed a change, my morning number used to be between 80-110 now it is running between 115-150, I tested 2 hours after dinner last night and I was 198 and feeling like crap, headache, hot, just plain nasty, irritable as all get out.. I drank tons of water and after 30 minutes went down to 150. This morning I was 189..So something may be going on..I also had trace ketones..My 14 year old was dx @ 10 and I know the symptoms when he has them, but now I am more aware of how he really feels when he is high or low.

[Nancy in VA]

Well, that 189 is of most concern to me.

But, while I would be concerned, make sure you aren't coming down with something else that could be causing your "otherwise normal" BGs to go out of whack

[KeltonsMom]

Well, that 189 is of most concern to me.

But, while I would be concerned, make sure you aren't coming down with something else that could be causing your "otherwise normal" BGs to go out of whack

True, I did think of this as well. Physically I am tired, hungry all the time..So I may be coming down with something..I will keep checking numbers and if I see a pattern developing I will then go see the doctor

[BrendaK]

I was just diagnosed w/type 1 this summer at age 30. I was in the TrialNet research study -- they test you for the antibodies (IGA, GADD, something else...) and I had extremely high levels of all the antibodies. So I've been in their "high risk" study for a few years now and get an OGTT test done every 6 months. You sound just like me. My fastings were in the low 100's for YEARS, then within a matter of 3 weeks they went to 180 (fasting). When I was diagnosed, my 2 hour OGTT was 288. And at that point, at home after I ate a lot of carbs I'd be in the 200 range, but would always come back down to normal.

Right now I am on 10 units of lantus a day and that keeps my post prandial numbers and my fasting numbers pretty steady. But as my beta cells continue to quit working, I'll have to go on fast acting soon.

I would DEFINITELY get into the doctor sooner than later. They can test you for the antibodies, do a 2 hour OGTT, and also a C-peptide. But your numbers are not normal.

BTW-- I also had trace ketones before starting on insulin. Never DKA, but it would have gotten to that point if I didn't get treatment.

[KeltonsMom]

I was just diagnosed w/type 1 this summer at age 30. I was in the TrialNet research study -- they test you for the antibodies (IGA, GADD, something else...) and I had extremely high levels of all the antibodies. So I've been in their "high risk" study for a few years now and get an OGTT test done every 6 months. You sound just like me. My fastings were in the low 100's for YEARS, then within a matter of 3 weeks they went to 180 (fasting). When I was diagnosed, my 2 hour OGTT was 288. And at that point, at home after I ate a lot of carbs I'd be in the 200 range, but would always come back down to normal.

Right now I am on 10 units of lantus a day and that keeps my post prandial numbers and my fasting numbers pretty steady. But as my beta cells continue to quit working, I'll have to go on fast acting soon.

I would DEFINITELY get into the doctor sooner than later. They can test you for the antibodies, do a 2 hour OGTT, and also a C-peptide. But your numbers are not normal.

BTW-- I also had trace ketones before starting on insulin. Never DKA, but it would have gotten to that point if I didn't get treatment.
Did you have symptoms of any kind? I thought I might be getting depressed from the two hospital stays that Kelton has had over the past 3 weeks..I am also a little fluffy and could stand to lose about 20 pounds to be at my max weight..I know I am coming up with excuses and should call and make an appointment now..I will do so.

[BrendaK]

I didn't notice my symptoms until AFTER I started insulin. I have always had "bladder" issues/irritation since my last pregnancy. I was even on Detrol LA for a year. Nothing helped. But ta-da, now that I'm on insulin, that problem has definitely calmed down.

When my bs is high, my mouth gets very very dry.

And I was always tired after meals before, especially high carb meals. Now I feel much better.

But I did not have the overt, classic symptoms -- I was not in DKA and my symptoms were pretty mild.

I also have 2 boys at home to raise -- what mom isn't tired all the time?? Especially dealing with blood sugars 24/7 for my 7 year old!!

I hope you can get in to the doctor soon. Please keep us posted.

I wanted to add one more thing about depression -- all of this happened about 2 months after my husband unexpectedly lost his job. Talk about stressful!! I was probably "depressed" about life in general, but there was so much going on at the time, I didn't think to attribute it to blood sugars. Now DH has a new job, we moved, and really like our new area -- and I have better blood sugars. I'm feeling MUCH better now.

[KeltonsMom]

Oh boy, I have bladder issues as well and have had them for about 6 months now:eek: They came on all of a sudden, no infection just leakage :o

After I eat any carbs I am so tired, but worse now..Been having a tummy ache here lately well after my wonderful dealing with kidney stones the tummy ache decided to stick around..

I have an appointment with the doctor tomorrow at 8 am...

[funnygrl]

I was diagnosed at 19. My onset was slow, starting with occasional highs that came down by themself. Then they happened more, were higher, and took longer to come down. I was dx'ed as pre-diabetic, but went to another endo when I saw a HI on my meter a few times where I was dx'ed type 1 and put on insulin.

Interestingly, I was also hypoglycemic from about the ages of 10-18.

[KeltonsMom]

I was diagnosed at 19. My onset was slow, starting with occasional highs that came down by themself. Then they happened more, were higher, and took longer to come down. I was dx'ed as pre-diabetic, but went to another endo when I saw a HI on my meter a few times where I was dx'ed type 1 and put on insulin.

Interestingly, I was also hypoglycemic from about the ages of 10-18.

Interesting..I was told that a lot of people who have hypoglycemia are at a higher risk to develop type 1 later in life..

I am not sure how I feel about all of this..I was devastated when my son was dx'ed...But I think I can handle it if I am dx'ed with it..Not sure tho

[LantusFiend]

Trialnet won't test those over 45. They asked my mother, and she was said, but you don't test those over 45! And they said, well, we'll just throw it away if we don't need it. So she said NO!

T1 in people that age is probably usually misdiagnosed as T2. If you're symptomatic of diabetes, it's worth getting looked into no matter what they end up calling it.

I was misdiagnosed with T2 for all of four hours until it was discovered that I was in DKA!

[KeltonsMom]

Trialnet won't test those over 45. They asked my mother, and she was said, but you don't test those over 45! And they said, well, we'll just throw it away if we don't need it. So she said NO!

T1 in people that age is probably usually misdiagnosed as T2. If you're symptomatic of diabetes, it's worth getting looked into no matter what they end up calling it.

I was misdiagnosed with T2 for all of four hours until it was discovered that I was in DKA!
Well I am 41 and may see about doing this if it is close to where I live in the middle of nowhere.

So type 2's do not go into DKA?

[funnygrl]

Type 2s can go into DKA if they've had diabetes a long time. Since type 2 is progressive, having it a long time leads to full insulin dependence. Contrary to what seems to be common belief among some people, DKA is an issue of insulin deficiency more than it is of high glucose- the high glucose is just a side effect from the insulin deficiency.

Type 2s can have "Hyperosmolar Nonketotic Hyperglycemia" which is an entirely different issue together. Basically, the glucose gets so high the blood becomes very thick (hyperosmolar) and that causes problems.

[KeltonsMom]

Okay all the doctor told me was I have a low level of C-peptides..And has scheduled me to come in again tomorrow for more tests..She would not elaborate what all of this means, she did have a serious look on her face though..

So, can anyone tell me what all of this might mean? I am too afraid to google it..Yes I am a wuss..:eek:

[BrendaK]

Low C-Peptide level means you are not producing a normal amount of insulin. Doctors look at C-Peptide to determine if it's type 1 or type 2. A type 2 that is insulin resistant will have a high C-Peptide because they are producing a lot of insulin and are just resistant to it. Type 1's have a low level, or no C-Peptide at all because they simply do not produce insulin.

Your doctor is doing the right tests, it looks like. And it looks like I might have a friend going through the same thing I am :(.

Did the doc check your blood sugars at all? How have they been today?

[BrendaK]

I forgot to say that my C-Peptide is on the low end of normal. All that means is that I'm type 1, not type 2, which they already knew from my positive antibodies. And it means I'm still producing some insulin. Which I already knew that too.

[LantusFiend]

Yeah, incidence of DKA among type 2s is on the rise because there are more of them who've had it long enough to progress that far. But the vast majority of cases of DKA are in type 1s, and so seeing that my blood was acidic made the doctor realize she might have been wrong- it took them about three weeks to be sure that it was really type 1 we were looking at.

[KeltonsMom]

Low C-Peptide level means you are not producing a normal amount of insulin. Doctors look at C-Peptide to determine if it's type 1 or type 2. A type 2 that is insulin resistant will have a high C-Peptide because they are producing a lot of insulin and are just resistant to it. Type 1's have a low level, or no C-Peptide at all because they simply do not produce insulin.

Your doctor is doing the right tests, it looks like. And it looks like I might have a friend going through the same thing I am :(.

Did the doc check your blood sugars at all? How have they been today?

Here is a run down on my blood sugars for today: Fasting was 132, two hours after breakfast I was 177, before lunch I was 180 and I have yet to test for my 2 hours after lunch..

They did an A1c but this will take time to get the results, it is not a fast machine that most Endo's have in their office..

I am drinking as much water as I can because my mouth seems to be so dry..
Oh, I tested for ketones just out of curiosity and this morning I had a small amount in my urine..But now there are none after 2 quarts of water..

[BrendaK]

Those are not pretty numbers :( By the way, my a1c was 5.7 when I was diagnosed. They caught it so early it hadn't gone too high yet.

[KeltonsMom]

Those are not pretty numbers :( By the way, my a1c was 5.7 when I was diagnosed. They caught it so early it hadn't gone too high yet.

I know, now they are in the high 100's and I am spilling moderate ketones..:eek:

Yes, I am scared:eek::(

[Nancy in VA]

Sorry to hear about the struggles. But, just know that the learning curve isn't nearly like it was with your son. You know what to do. You know how to handle this!

[funnygrl]

If you really want an honest answer, it does sound like you are developing type 1 diabetes.

At dx my a1c was 5.9, and my c-peptide was also on the low end of normal. I haven't had a c-peptide test in over 2 years though. I'd be interested to see what it was now- I'm guessing very minimal.

I just read that 50% of people with type 1 are diagnosed after 20. That puts me in the younger half of people dx'ed, which surprises me.

(((hugs)))

[KeltonsMom]

Sorry to hear about the struggles. But, just know that the learning curve isn't nearly like it was with your son. You know what to do. You know how to handle this!Your right, thank you for posting this..This may be what I need to keep hearing to bring me out of my fear-mode..

My before dinner number was 254..Good thing I am going back to the doctor tomorrow..:eek:

Of course I am like OMG I am the reason Kelton has his diabetes:(

[Nancy in VA]

Of course I am like OMG I am the reason Kelton has his diabetes:(

You are NOT the reason he has diabetes. We all have genes and sometimes they affect who we are and sometimes we don't. He had a gene that probably gave him a disposition. But it doesn't usually work on its own - other factors contributed.

Well, try to get a good night's sleep. I'm sure that pre-dinner number concerned you, but again, you know how to handle this. You're allowed to mourn for what you know is happening, but you can get through this and we are here!!

And if Kelton won't get a pump, maybe you can! :)

[KeltonsMom]

I will do my best at sleeping tonight..

Kelton did have a stomach flu before he was diagnosed...

And yes if he won't go on the pump I will get the Omnipod for myself :D

[funnygrl]

Are you seeing an endo tomorrow?

I see my Endo tomorrow, actually.

[KeltonsMom]

My primary care doc, then a referral to an Endo 100 miles away:rolleyes:

[BrendaK]

Wow -- it sounds like you need to get on some insulin sooner than later. We really don't want YOU to end up in the ER!!! I hope you can sleep tonight. Take a tylenol PM and maybe that will help :o

[KeltonsMom]

Wow -- it sounds like you need to get on some insulin sooner than later. We really don't want YOU to end up in the ER!!! I hope you can sleep tonight. Take a tylenol PM and maybe that will help :o

I have an advil PM that I can take

[OSUMom]

Teddi, I just wanted to post to say you're in my thoughts and in my prayers. It's morning now, and I hope you got some sleep. (((hugs)))

[KeltonsMom]

Advil PM knocked me out, I took the pill at 9 and was drowsy at 9:30 and I think I went to bed at 10.

On a good note my glucose was 114 this morning, but I woke up at 4 am to a 65:eek: and drank some juice and stumbled back to bed

On Edit: when I am 75 I am dizzy and staggering..

[Lee]

Waiting here to see what the Dr says...I wouldn't worry about you being the reason...it isn't your fault ~ it's YOUR parents :p!!! They gave it to you...ok, just kidding about that one. I do hope that your test are ok and that you get the proper treatment to feel better...

[KeltonsMom]

I just now got home..My appointment was at 0820 and they did more blood tests..They wanted to re-run the other tests to make sure it wasn't a fluke..There was an Endo there today, this man is looking at coming in once every 4 months for adults only, which is good..

With the first test results they think it is delayed onset type 1...They want to do a glucose tolerance test next week sometime..But the C-Peptide was still very low..

They are not wanting to make an official diagnosis yet..So, I get to wait, and I go back on Monday to see what they want to do next..

[BrendaK]

Do you know what they did the blood tests for? What did they say about the moderate ketones?

I think the OGTT is a good idea. I would never have been diagnosed without it. My numbers were completely fine at certain times, but the OGTT showed my "true" numbers. Let us know how that goes.

How are you feeling now?

[KeltonsMom]

All I know is they ordered a CBC a full chem panel another A1c and I am not sure what else..Today I have been running low, she used the Acucheck when I was there because I told her I was dizzy and I was 60, so she ran and got me some juice..Which brought me back up.

She also told me not to worry about the moderate ketones, because depending on what someone eats they can spill ketones..I am to call back if the ketones are large..

So far today there are no ketones present.

I forgot to mention they gave me a B12 shot.

[Lee]

Gee - do you have enough going on without having to worry about your health also. I get very frustrated when a doc says lets wait and see - it's my body, lets not! How is your son by the way?

[KeltonsMom]

Kelton is doing good..His numbers are in the lower to mid 100's and I am making him exercise more which he tries to fight me on, but that is okay, I give him choices, he can either exercise or sit on the couch and stare at the wall and do nothing..He prefers to exercise:D

[hold48398]

Hey Teddi,
I am just catching up with all the posts and wanted to tell you that you're in my thoughts. I am glad you have lots of support here from other T1 parents to help you through this. (((((Hugs)))))

[KeltonsMom]

Wow I had an interesting weekend..I found out that if my glucose drops to 60 my face meets the floor and my head feels like it is buzzing..I am thankful both of my dogs started to bark when I almost passed out because Kelton came running into the family room after he told me that Rosie kept nudging him and barking (out of character for her) Kelton grabbed my glucose meter and tested my glucose and that is when I found out I was 60..Finger sticks hurt :eek: I have been using my arms, but was told by my 14 year old that not when I am low (yes I know this) Kelton shoved this nasty cake jell in my mouth and then when I was able to sit up he shoved a juice box in my face, and re-tested me and I was only 65 so he shoved Skittles in my face:D

Now he knows that lows drop me like a rock..

I have decided to give up driving long distances until I know more of what I have and how to control this better..I have been running low all day and I am not sure what the heck could be happening..Saturday I was running high all day (200 on up)

[BrendaK]

Wow -- it's like your pancreas is just FREAKING OUT!!! It doesn't know what to do.

I had lows, too before I was diagnosed. I was able to find a pattern -- I'm ALWAYS lowest after breakfast. Weird because most people are high then. That's why I was so scared to start insulin because I thought for sure I would have a huge problem with lows. But so far so good. Now that I'm on insulin, my pancreas can REST and everything is very even right now. I'm still the lowest after breakfast, but the lowest I've gone has been 59, when exercising after breakfast...

Let us know how the blood tests turn out.
Brenda

[BrendaK]

I forgot to say, too, that when I started testing I realized that if I don't change the lancet every time it HURTS. Then I felt really really guilty about not changing my son's everytime, we were lucky to change it once a day.

So I highly highly recommend the Accucheck Multiclix. Doesn't hurt at all. I think I saw a thread on here where you can get a free one.

[kel4han]

Yikes. I am just catching this post. I am really worried about you! I too, had hypo's all my life really, but more so the last 3 years before diagnosis. It would mostly happen after eating a straight/high carb meal like a bagel, etc. I completely believe that your pancreas can just freak out in the end!

The important thing for you to remember here is that YOU know how you feel. Check that C-peptide, the antibodies and your numbers an hour, two hours, three hours after meals. I am certain you can predict your future based on what you will see and the symptoms at those times. "D" is so unpredicatable, and I totally feel that the pancreas can work well, and then fail, and recouperate for months, if not years.

My dad was Type 1 at age 32. So, after borderline gestational "D" with both my girls, my symptoms of thirst and fatigue especially after meals, just got worse and worse. They checked my fasting every year and it was always normal. What about those post prandials? Finally 6 years after my last pregnancy the Diabetes hit, at age 28. Then Maddison was diagnosed 9 months later. That, to me, means ALOT. I believe type 1's can be pre-diabetic for weeks, months, years. They will tell you that doesn't happen, but I disagree.

Anyway, I don;t mean to freak you out, but you need to trust YOUR feelings. Take the initiative to make sure you get all the right tests done. Keep us posted!

[KeltonsMom]

I had a serious case of kidney stones a month ago and have not been feeling well since..I too feel terrible after eating carbs and am so thirsty that I feel like I cannot get enough to drink..I have to force myself to stop drinking fluids 2 hours before bedtime or I will be up a few times at night to pee..

I am paying very close attention to how I am feeling, and something is not right, especially with all the lows :eek: Of course the highs 2 hours after eating have me worried, I am always above 180 2 hours after meals..My gut tells me what this is, my head and heart can't handle it until I have a doctor tell me my suspicions, then of course I will be a mess for a few days...

I am so thankful that you all are so supportive and understand my fears, I will admit I am very afraid right now, but at least I will know what to do if this is what I think it is..It won't be easy because going on insulin scares the crud out of me..Lows scare the crud out of me as it is..Highs scare me too..:(

[funnygrl]

Insulin is definitely scary at first, but I think it's easier to get the hang of things when it's your own body, as oppose to your kid's. I can't tell you how much better i felt after starting insulin. It was night vs. day. You might just need basal insulin to begin with. I personally started with just bolus insulin. I don't think the whole process will be as bad as you're expecting. Did you give yourself shots at all when Kelton was dx'ed, or will that aspect be new too?

[OSUMom]

My son's friend was told by his doctor he is pre-diabetic (Type 2). He was sent away from the office with a meter and instructions to test his BG - I don't know specifics. His BG ranges are between 70 and 170 and he has low BG symptoms. Now I'm wondering if it could be heading the direction of Type 1 not Type 2. He's same age as my son (19 or 20).

Still thinking and praying for you Teddi!! (((hugs)))

[KeltonsMom]

Are you all ready for the news? OMG I am not sure if I have the courage to handle it myself..

I went to my appointment and found out that my fasting whole blood glucose was over 200 :(

Tomorrow I go in for the Glucose Tolerance Test at the hospital in town, the lab on the Naval Base was closed today.

Thursday I go back for a glucose meter, test strips, Lantus and find out how much Lantus they want me to take..

I had to do some shopping on Base and on my way home I had to pull over, because I got overly emotional, of course a highway patrol pulled over to make sure I was okay..Talk about embarrassing as heck :o Took me a few minutes to calm down enough to tell him what was wrong. He talked to me for 15 minutes telling me that his brother who is 49 was diagnosed a year ago with type 1 and reassured me this was not the end of the world, but that it is good that I am grieving now instead of holding it in.

I do not know how I feel right now, I mean my heart broke for Kelton when he was diagnosed, and it feels selfish for me to feel as though my heart is breaking for me.

I was also told by the doctor to go to the ER if I start to sweat and start to feel very nervous and shaky..

I am to test for Ketones on a regular basis if my glucose is elevated.

I am not afraid of injections, I am afraid of finger sticks, deathly afraid of them. I can do finger sticks on anyone else but myself. I try to stick my fingers and then feel like I am going to pass out all because of fear..Stupid I know and I will have to get over it very soon..

[Nancy in VA]

So sorry to hear that Teddi, but at least you know. I think the "not knowing" is tough and you can run a lot of things through in your mind.

Its ok that you are grieving.

But, just remember - you know what you are doing. You know how to do this because you do it for Kelton. And now you have an extra special connection to him; something that you both share. You can laugh about it and cry about it together!

[kel4han]

Oh Teddi, I am so sorry. I think this is so hard for you becuase you already feel so cheated in life having a child with "D" That is already so overwhelming, and you can't imagine having 2 sets of numbers to manage. You should feel these feelings right now, just because you are an adult, and already grieved for your child doesn't mean that you don't go thru the emotions all over again. I had a hard time with finger pokes too in the beginning, fingers are very sensitive! You should take some time to grieve before pressing on with your crazy life. Maybe a day away with someone you can talk to. I hope you can do that for yourself!

[KeltonsMom]

Kelton is sad for me, but he himself told me that I am not alone and that he will help me when I feel overwhelmed..He is a great kid, and I told him this. I also told him that he needs to remember that he is a kid and I will ask for help if I need it, but I would like for him to help me remember when to test. He told me that he and I can take our Lantus together at the same time.

I don't want him to feel that he needs to take full responsibility for me, I told him he and I will do this together as a team.

I am so sleepy and so thirsty, I may go take a nap later and let Kelton watch a DVD..He doesn't want to leave my side for now..He has finished all of his school work which is good..

I told my husband about all of this and he told me nothing will change, we will just have to get me a diabetic supply bag to take with us where ever we go..

[BrendaK]

I am so sorry, Teddi. You do need to take some time to grieve. There are such different feeling when you're diagnosed AFTER your child. I would always say that I would GLADLY have diabetes myself if Carson's could be taken away. Then when I was diagnosed, I just felt like it was so unfair. I had D and Carson's wasn't taken away, he STILL had it too :(.

Get some rest. It sounds like you are just going to start out on Lantus? That's what I'm on right now and it's worked well for me. I hope the same for you.

I am suprised that they still want an OGTT test. For the trial net study, you were not allowed to begin the OGTT if you fasting was above 160 -- it wasn't safe!!! You obviously have D, why do the OGTT???

[3js]

I`m so sorry to hear this:cwds: I just read this whole thread now, and was thinking it would turn out that you had the flu or something. (((hugs)))

You have been through the mill lately! It must be scary, even though you are well versed in diabetes care.

[KeltonsMom]

I am so sorry, Teddi. You do need to take some time to grieve. There are such different feeling when you're diagnosed AFTER your child. I would always say that I would GLADLY have diabetes myself if Carson's could be taken away. Then when I was diagnosed, I just felt like it was so unfair. I had D and Carson's wasn't taken away, he STILL had it too :(.

Get some rest. It sounds like you are just going to start out on Lantus? That's what I'm on right now and it's worked well for me. I hope the same for you.

I am suprised that they still want an OGTT test. For the trial net study, you were not allowed to begin the OGTT if you fasting was above 160 -- it wasn't safe!!! You obviously have D, why do the OGTT???

I will call the doctor and ask her this...If this is the case then the hospital will not do the test.

[OSUMom]

Kelton is sad for me, but he himself told me that I am not alone and that he will help me when I feel overwhelmed..He is a great kid, and I told him this. I also told him that he needs to remember that he is a kid and I will ask for help if I need it, but I would like for him to help me remember when to test. He told me that he and I can take our Lantus together at the same time.

I don't want him to feel that he needs to take full responsibility for me, I told him he and I will do this together as a team.

I am so sleepy and so thirsty, I may go take a nap later and let Kelton watch a DVD..He doesn't want to leave my side for now..He has finished all of his school work which is good..

I told my husband about all of this and he told me nothing will change, we will just have to get me a diabetic supply bag to take with us where ever we go..

I'm so sorry, Teddi................ your family sounds wonderful and very supportive.

[KeltonsMom]

I took a nap, I had nightmares :eek: I am thankful that my family is so supportive..I emailed my dad and he of course told me to go to China for an herbal cure :D I had to laugh, he means well and I let this slide and then reminded him that it is the same type that Kelton has. He then emailed me back and told me to make sure I take my insulin when I am supposed to and to check my glucose on time and to eat right and to exercise more..He now gets it.

My husband was supposed to work late tonight, but has decided not to so he can come home and cook dinner for me, he is so sweet.

Kelton looked at me a minute ago and told me I look funny and demanded I test..I was 60 again:eek:

[clb1968]

You have such a great little boy.
Sorry that you had to join the club, but remember only super special people are let in.:o

[KeltonsMom]

You have such a great little boy.
Sorry that you had to join the club, but remember only super special people are let in.:o

Thank you..I feel terrible, not emotionally but physically..UGH..So tired

[funnygrl]

(((hugs)))

I'm also surprised they're doing an OGTT.

[Ali]

You will feel much better on insulin. The fatigue is from the the high numbers and the swings. Your family sounds wonderful and for your teenage son it is probably a blessing to feel like he can help you! I was diagnosed as a teen and if I had been able to help someone else it would have made the craziness of my type one for me less difficult to cope with. It actually will probably really help him be more responsible for himself, while looking outward-always hard as a teen. You will do great!! I have had this illness for 36 years and am strong, healthy and happy and plan on another 36. Blessings. Ali

[KeltonsMom]

Yeah the swings are the hardest right now, I am also spilling moderate ketones now and can't drink enough water to get rid of them..I may not be able to wait until Thursday to see the Endo at this rate..Of course I am scared really bad..If I didn't feel so icky I wouldn't be so scared I am sure:rolleyes:

[Lee]

OOOhhhh...call your endo now and try to boost up the appt. That is what you would do for your son, so try and do it for yourself as well...good luck. Let us know what we can do - I have a ton of lancets I can send you ;)

[KeltonsMom]

Darn it the office is closed today :mad: Something going on there and all the doctors are out flying (Naval Base) I am losing weight like crazy, not a bad thing, but considering the reason I do not like it..Grrrr..There were no ketones present this morning and my glucose was only 180 this morning LOLOLOLOLOLOLOLOLOLOL..Pardon me while I have a hysterical meltdown :rolleyes:

Today would be a good day for you all to completely ignore my posts..I am in a weird mood, and I may start babbling like a loon here in a minute..:p

[Nancy in VA]

Well, can you reach a Doctor on call. Since you have insulin "on hand", is it possible for one of them to "prescribe over the phone" enough to start getting your body in control until your appt. Badshoe was able to get a regimen prescribed for his 2nd child over the phone while at Disney!!

[KeltonsMom]

Well, can you reach a Doctor on call. Since you have insulin "on hand", is it possible for one of them to "prescribe over the phone" enough to start getting your body in control until your appt. Badshoe was able to get a regimen prescribed for his 2nd child over the phone while at Disney!!
Actually no, their flight took off a few minutes ago..I heard the huge plane take off and fly over, dang it was loud..I guess this is what I get for living right under the flight pattern of Naval jets..

I do know that if I get all sweaty and nervous I am to go to the ER right away..I am not feeling this, so I guess I can wait until Thursday or tomorrow morning..I will plant myself in the waiting room demanding to be seen..

[BrendaK]

I am so frusterated for you!! If it was your child going through this and the doctor said wait until Thursday, you would not be a happy camper and would probably head to the ER.

When I was diagnosed in the research study, it took me 1 month to get in to an endo and get on insulin. And I was trying so hard to see someone!! In fact, one endo said he wouldn't see for 3 months!! And he knew I was not on insulin. I finally got in to a different endo, but it was so frusterating. It's almost like those doctors WANT you to go into DKA. Why can't he just prescribe a dose of Lantus and see how it goes??

[KeltonsMom]

I am so frusterated for you!! If it was your child going through this and the doctor said wait until Thursday, you would not be a happy camper and would probably head to the ER.

When I was diagnosed in the research study, it took me 1 month to get in to an endo and get on insulin. And I was trying so hard to see someone!! In fact, one endo said he wouldn't see for 3 months!! And he knew I was not on insulin. I finally got in to a different endo, but it was so frusterating. It's almost like those doctors WANT you to go into DKA. Why can't he just prescribe a dose of Lantus and see how it goes??I don't know, it is frustrating :mad: I guess since I am not a kid they think it is okay to wait :confused: I am acting like a kid now LOLOLOLOLOLOLOL..sorry I have been having outburst of serious hysterical laughter for the past few hours..My husband kept hugging me when I kept having laughing fits..I guess laughter is better than becoming a mucous monster with crying jags..LOLOLOLOL..

[Lee]

I am glad that your husband is there for you right now - that makes me feel better, knowing that you have a shoulder...keep testing yourself, don't wait for the shaky feeling...if there is no Dr available, what about off base? They usually make special considerations for when there is no help available. Even though the doc's are on a plane, I bet they can still answer the phone for dosing info...

[KeltonsMom]

Okay I called..lot of good that did me..The Endo will be in on Thursday but if I would like to I can take the drive to LA to see him sooner..Sorry I am not going to drive to LA feeling like crap and I am on restricted travel as it is, because of too many highs and lows, The endo wants to look at all of my numbers and then weigh me and look at my labs and then decide how much Lantus and Novolog to give me..Even though I have 4 bottles of Lantus on hand and 3 bottles of Novolog as well I am not to tinker with dosing myself..Too afraid to do it anyway..:eek:

[funnygrl]

Why'd they tell you go to the the ER if you get sweaty and nervous? That seems like signs of hypoglycemia, which is easily managed at home, not DKA, which would necessitate an ER visit.

[KeltonsMom]

Good question, my lows are hard to treat and this is why the doctors are concerned..Right now they are more worried about the lows than the highs..Not sure if this is true or not but they all told me that lows are more difficult to treat in adults than in kids and teens :confused:

[3js]

It seems so ridiculous that they won`t just prescribe over the phone! It`s not like you don`t know what you are doing. I am sorry you are feeling lousy and scared. ((hugs))

[KeltonsMom]

Will Lantus help with the horrible lows? I am tired of eating candy or drinking juice

[Nancy in VA]

Will Lantus help with the horrible lows? I am tired of eating candy or drinking juice

Well, Lantus isn't gonna help you with lows, but it will start to get your regulated. Right now, your body is going crazy as your pancreas is probably sputtering and trying to manage with the last little bit of energy it has left.

You will feel better once you start to get regulated - lows and highs. I can't imagine having to drink that much juice or eat that much refined sugar - makes me feel ill to think about it.

[BrendaK]

I think it will help. It will let your pancreas rest some, so it's not working so hard trying to keep up. My numbers were similar to yours before insulin -- VERY VERY wide swings. I'd be up to 250, then down to 90 in no time. I really thought I'd go very low from Lantus, but I haven't at all. Things are so much more even now. My fastings are around 105, post prandial around 120 or so depending on the carbs I eat. I go to bed and wake up at almost the same reading.

Try not to eat simple sugars/carbs right now if you can avoid it. That might help the lows. But I know you have to have something if you are low...

[KeltonsMom]

I tried complex carbs for the lows and it sort of helps and then I go high and then crash fast...The only thing that is working now are Skittles and Starburst they bring me up to 114 and hold me there for hours..I am beginning to hate candy but right now it is what I have to do to keep the lows away.

I had an interesting phone conversation with my mom a few minutes ago..I found out a secret that she has been hiding from the family, her brother was a type 1 diabetic and was diagnosed at age 39..All this time I thought it was type 2 at least this is what she had us all believe. Her father was also type 1 and died from complications due to it as well. He too was diagnosed late in life as well...


Now I know there is a family history of it...

Of course my mom was very emotional over the phone and asked me if I wanted to keep it a secret, I told her to tell everyone, that they all have a right to know. I do not want her to keep this as a dirty family secret, it is a disease not something to be ashamed of.

[KeltonsMom]

Okay darnit I want my insulin NOW!!! I had a very scary low at 4:55 I was 54 and didn't feel it :eek:

[kel4han]

You shouldn't be taking insulin if you crash like that. The insulin could be the worst thing for you right now. Insulin is for coming down when you won't on your own. Obviously you are crashing, not needing the insulin. Something sporadic and crazy is going on.......

[KeltonsMom]

You shouldn't be taking insulin if you crash like that. The insulin could be the worst thing for you right now. Insulin is for coming down when you won't on your own. Obviously you are crashing, not needing the insulin. Something sporadic and crazy is going on.......
I know and it scares me :eek: Most of the day I was above 160 then BOOM down I went:(

[funnygrl]

I still had occasional lows right before I started insulin. I'd go high, then crash. Starting the insulin helped cause I was much more even keel, rather than up down up. I started on just bolus though, correcting down highs. Lantus was added about a month later.

[KeltonsMom]

I don't remember Kelton ever going through anything like this, in the beginning he was just high with an occasional low, then again he was in full DKA when he was diagnosed..I am not..I hope

[LantusFiend]

If you think there's a chance you're in DKA, test ketones!!

I think I went hypo a year to three years before dx, but by the time I was diagnosed, my A1c was greater than 16% with a fasting blood sugar of 425; I hadn't been down below 200 in a long time.

[Nancy in VA]

How are you feeling today?

[wkat]

Not sure if this is true or not but they all told me that lows are more difficult to treat in adults than in kids and teens :confused:

That makes no sense. I'm in a group w/ a bunch of T1 moms and I've never heard of anyone having difficulty treating lows, including myself. Very strange information you've been given. I would definitely be testing for ketones, though. That seems more of the concern. Either way, I'm sorry you're dealing with this. You have every right to grieve. This is a loss and will be a major adjustment in your life. That said, everything will be okay in time, and you will still be able to do everything you've been doing. Hang in there.

Wendy
T1 33 years
Son w/ antibodies and intermittent hyperglycemia at this point

[KeltonsMom]

I am spilling ketones now, just small, but steady, the doctor is aware of it and still wants me to come in tomorrow..But if I start spilling moderate to large ketones to go to the ER..

I really do not like waiting...I am usually a very patient person but not when it comes to my health...I am going to drink a quart of water then go to bed for awhile..still very tired

[LantusFiend]

I assume what the doctor meant about adults' hypos is that when the person is making insulin and going hypo, it's harder to treat than when injected insulin makes you hypo, because your body could release even more insulin because of you eating. That's what happens in reactive hypoglycemia. I'm sometimes glad I didn't honeymoon.

[lilituc]

That makes no sense. I'm in a group w/ a bunch of T1 moms and I've never heard of anyone having difficulty treating lows, including myself. Very strange information you've been given.

I guess I assumed they meant when being diagnosed as an adult.

[KeltonsMom]

I assume what the doctor meant about adults' hypos is that when the person is making insulin and going hypo, it's harder to treat than when injected insulin makes you hypo, because your body could release even more insulin because of you eating. That's what happens in reactive hypoglycemia. I'm sometimes glad I didn't honeymoon.Yes, this is what they meant..I have to agree about it too..I went low during my nap and stumbled around looking for a snack in the bathroom :rolleyes: I am SO thankful that my son understands low behaviors, he helped me test and treated me. He laughed at me and told me that he now understands what I went through when he had bad lows. He and I are learning about each other's diabetes..

[Nancy in VA]

Yes, this is what they meant..I have to agree about it too..I went low during my nap and stumbled around looking for a snack in the bathroom :rolleyes: I am SO thankful that my son understands low behaviors, he helped me test and treated me. He laughed at me and told me that he now understands what I went through when he had bad lows. He and I are learning about each other's diabetes..

Note to self: Have juice and snacks on the nightstand when you go upstairs to take a nap

[KeltonsMom]

Note to self: Have juice and snacks on the nightstand when you go upstairs to take a nap Good idea..I will now do the same thing..Actually my husband told me to do this last week, but did I listen..nope :o

[Nancy in VA]

Good idea..I will now do the same thing..Actually my husband told me to do this last week, but did I listen..nope :o

I had to do that when I was pregnant with all of my kids. If I sat up with an empty stomach, I was ill. So, I had to eat before I got out of the bed!!

[KeltonsMom]

When I was pregnant with Kelton I was the same way for 8 months, then everything calmed down during the last month..

[wkat]

I assume what the doctor meant about adults' hypos is that when the person is making insulin and going hypo, it's harder to treat than when injected insulin makes you hypo, because your body could release even more insulin because of you eating. That's what happens in reactive hypoglycemia. I'm sometimes glad I didn't honeymoon.

I guess that makes sense....although I still don't get why this would be different w/ kids or teenagers who are also honeymooning and still making insulin? I totally might be missing something b/c I'm tired and just got home from a PTA meeting.

[KeltonsMom]

All I know is that my hypos are harder to treat than Kelton's are..I eat something to correct and I still drop :eek: It is tiring me out so bad now, I have gone low 5 times today..I am now to the point of crawling into bed and not coming out of it for days..

I do have my appointment tomorrow morning and I hope to have some answers and hopefully my treatment options..

[funnygrl]

Good luck!

[Lee]

Good luc ktoday! I am hoping the doc gets you on some good treatment!!!! NOW! ASAP! Yesterday, hell, maybe even last week!

[KeltonsMom]

Good luc ktoday! I am hoping the doc gets you on some good treatment!!!! NOW! ASAP! Yesterday, hell, maybe even last week!
This is exactaly how I feel...:D I wanted my treatment last week..It is time for me to feel better..I usually have more energy than I know what to do with and now I have none..

I also have to pack and move stuff out of the 5th wheel trailer so that we can hook up and go camping this weekend, but I have a plan..I will pay Kelton to help me :D

[Lee]

Come on, come on, come on....we are anxiously awaiting the results of your Dr's appt...can you, tell, it is all about me today - been hanging out with my 12 yr old to much I guess:rolleyes:

[clb1968]

Remember she is in Ca, it is only 11 am for her.

[KeltonsMom]

Okay...My doctor is very test happy and I am glad she is..I had a CT scan it is shows that I have a non-cancerous tumor that is producing it's own insulin, which is confusing my pancreas..The tumor is called Insulinoma..Now next week I go in for another CT scan with dye to see if this damn thing can be removed...This thing is what is causing the hypo's

I may develop full type 1 diabetes later but I will deal with that when the time comes...Now we can do a happy dance..

[Lee]

Wow! I am incredibly happy that it isn't Type 1 and that it is non-cancerous! I just hope it can easily be taken out...that is what, next week?

[Nancy in VA]

WOW! That's good news

[KeltonsMom]

I have another CT scan next week to see if this can be removed, it is still very dangerous because it produces insulin on it's own and causes hypo's I have to be aware of any symptoms I am having and treat hypos as soon as I feel shaky..They don't want me to test my glucose first just test so I don't get too low.

I was told that since this tumor is producing insulin that it is sending a message to my pancreas telling it to stop pushing out insulin and this is the reason I go high, then the whole process starts all over again with the pancreas pushing insulin and the tumor pushing insulin..YUCK..It is a mess..

There is a danger that once the tumor is removed from my pancreas that my Beta Cells may shut down, in a matter of months or years from now..So Type 1 is not out of the equation, just put on the back burner for now..

This is also a rare tumor that is found in older adults..My doctor told me I am not in the clear as of yet and to be prepared for the type 1 to develop..

Right now until they know if they remove the tumor I have to be very, very careful..

[OSUMom]

Wow this is so very interesting. That is great that you're getting to the bottom of this - and that it's not Type 1 at this point, not cancer, and that you have a doctor that is on top of things. Keep us posted and be careful of your lows!!!! :) Still will keep you in my prayers with the lows you are having.

[BrendaK]

Wow, it sounds like you have a GREAT doctor!!! No wonder they were so concerned about the lows. You are in my prayers :cwds:

[yeswe'rebothD]

Praying for you here as well, Teddi, I know you'll keep us updated!

[clb1968]

Wow, I am keeping you in my prayers. Hopefully they can remove it and not cause full blown type 1 to come on to soon.

[KeltonsMom]

Going to be away from computers this weekend..We are going camping in the desert for some peace and quiet and to dig for gold :D We are meeting friends down there and they told us they have found some gold...Mark made sure we have plenty of juice and whatever else it takes to control my lows..I am really getting tired of them..:(

[KeltonsMom]

Okay had CT scan and now waiting on the results...I had a nice camping trip and walked up mountains collecting buckets of paydirt..Now we have the fun chore of panning out the bad sand down to the black sand and then see if there is any gold in it..Gosh this sounds like work..well it is :D

I will know what the doctors want to do on the 27th...Until then I wait and treat my lows..

Can anyone think of something that will treat lows other than Skittles? If I see another Skittle I will scream..Juice doesn't work, glucose tabs do not work..Honey does but yuck..I am tired of anything with sugar in it..I wonder if gummy bears will work, or regular jello?

[Nancy in VA]

Teddi:

Does juice not get it up or not keep it up? If those other sugar sources will get it up but it drops, try having the sugar, retesting 20-30 minutes later and when its up, eat some peanut butter (protein) to keep it up.

If not, I don't have a lot of other tips for you. I have a friend with 2 children with a form hypoglycemia that can't even be treated with glucgon. They do juice to get it up but then peanut butter crackers to KEEP it up.

[KeltonsMom]

Ah okay, good idea..Juice depending on what kind does bring it up to a safe level then if I do not do anything else it will drop lower than it was originally..Now what is weird is no matter what I eat, even if there are no carbs the stupid tumor pushes insulin and this is the time I drop the most..

I have been skipping meals altogether and this helps with lows, but it is not healthy..

Eating or drinking triggers the tumor to push insulin, which is crazy but makes some sense, I guess..

I will try juice and peanut butter..When it is all said and done I am sure I will not be able to put peanut butter, candy or juice near my mouth ever again LOL..I can't tell you how much I HATE candy right now..:eek:

[rickst29]

Can anyone think of something that will treat lows other than Skittles? If I see another Skittle I will scream..Juice doesn't work, glucose tabs do not work..Honey does but yuck..I am tired of anything with sugar in it....
Smarties work faster than skittles, come in a much nicer size and variety of flavors than the big, chalky-tochew 4-gram sugar tabs. And they're cheap! (Skittles are made with lots of fat for "chewiness", that slow them down a lot.)

But also, there's vastly different kinds of sugar tabs. Most of 'em taste kinda bad, but there's a kind at Wal-Mart which never bothers me: Reli-On "Fruit Punch". (Not "Tropical Fruit", ONLY "Fruit Punch". And only at Wal-Mart.) Yumm! :cwds:

[KeltonsMom]

Smarties work faster than skittles, come in a much nicer size and variety of flavors than the big, chalky-tochew 4-gram sugar tabs. And they're cheap! (Skittles are made with lots of fat for "chewiness", that slow them down a lot.)

But also, there's vastly different kinds of sugar tabs. Most of 'em taste kinda bad, but there's a kind at Wal-Mart which never bothers me: Reli-On "Fruit Punch". (Not "Tropical Fruit", ONLY "Fruit Punch". And only at Wal-Mart.) Yumm! :cwds:

Oh thank you!!

We will go to Wal-Mart tomorrow and get some one the Reli-On Fruit Punch as well as Smarties..

[OSUMom]

Teddi, I'm glad you had a good camping weekend, and I hope you find Gold!! :D

Thinking about you and reading your posts to see how you're feeling.... :cwds:

[KeltonsMom]

Teddi, I'm glad you had a good camping weekend, and I hope you find Gold!! :D

Thinking about you and reading your posts to see how you're feeling.... :cwds:

When I panned some of the black sand and used the large magnet to remove the black sand (it is iron and is magnetic) I did find some gold flakes, now all we need are about 50 more flakes and we will have about 1/2 an ounce :cwds:

Today I woke up sweating and shaky and I tested and was 30 :eek: I treated it with juice and peanut butter and 20 minutes later I was 100..I am taking this a day at a time, and dealing with it..It is still scary, but like I keep telling my family, it could be worse....

[LantusFiend]

Pretzels and white bread for a quick rise. They're even faster than most juice.

[KeltonsMom]

Pretzels and white bread for a quick rise. They're even faster than most juice.
Thanks..I am going to gain weight if I keep having to eat...:D

[KeltonsMom]

My cell phone rang a few minutes ago, and I was very surprised to find out that is was my doctor...She has some news for me but refused to tell me over the phone and wanted to know when I will be back in Ridgecrest, I told her we will be here in Hanford until the 25th..She wants me to come home sooner if possible and come in and see her so she can talk to me.

She didn't sound like her cheerful self and this has me worried..

Unfortunately we are clearing out the house here and cannot go back any sooner, and I told her this and she sighed and told me she will then see me on the 27th.

Now I am nervous..

[BrendaK]

Oh My... She called on a SUNDAY??? And wouldn't tell you over the phone? I'm worried for you too....

[KeltonsMom]

Yeah me too..At this point I want to have a stress-free Thanksgiving, before all heck breaks loose, health wise..

As it is I may be looking at a surgery and time to heal from that..Right now I am not even going to think about it...I may indulgence later and have a nice hot relaxing bath:cool:

[KeltonsMom]

Jeepers..Now I am dealing with some awful highs...:eek: I was feeling weird like I could fall asleep at any moment so I decided to check my glucose..The meter said HI!! OMG so now I am over 500 on the Precision Xtra and over 600 on the Accu-Chek :eek:

Checked ketones too..They are moderate :eek:

I guess since I am not allowed to take any insulin I will drink a gallon of water and see if this helps...Then take a nap..maybe:(

[Nancy in VA]

So sorry to hear about the high. I hope it corrects itself, since you have been experiencing so many lows. I hope you have that Dr's number handy in case you need to call to get a dose for a correction tonight or tomorrow!!

[hypercarmona]

Yikes! :eek: If it were me, I'd be on my way to the ER.
I hope that high comes down on it's own for you. I wouldn't let it linger too long if it doesn't start to come down soon. 600+ blood sugars with ketones can get nasty, fast. I remember vividly what DKA feels like (it's been over eleven years since I had it) and I don't wish that on anybody.

[KeltonsMom]

Okay after 1/2 a gallon of water I am now down to 200..I will be spending the rest of the night in the bathroom..:eek::D

[Treysmom]

I am so sorry Teddy! I'm just reading this post. I hope you have taken the time to grieve for yourself. (((((HUGS)))))

[KeltonsMom]

I am so sorry Teddy! I'm just reading this post. I hope you have taken the time to grieve for yourself. (((((HUGS)))))
Actually it is easier to be in denial..Just kidding..I am taking it one day at a time..and if and when I need to take insulin I will be prepared for it..I am now checking my glucose when I am supposed to, so if I have to add injections to the mix I will have no problem with it..The initial shock was the hardest part..

[KeltonsMom]

UGH my doctor called to reschedule my appointment for Thursday :mad:

[Lee]

Did you threaten bodily harm???? Isn't this the same doc that called you on a weekend and said it was important???

[KeltonsMom]

Did you threaten bodily harm???? Isn't this the same doc that called you on a weekend and said it was important???LOL..I should have..She called right after I had finished my coffee and I was already in a good mood..

She did tell me that removal at this point may not be a good thing, because they need to run another test to see if this is the only thing that is currently producing insulin, and they think my pancreas has stopped all insulin production..

Now what kind of test do you think they will have to give me to figure this out :confused: If it involves large needles I may run and hide somewhere:eek:

[BrendaK]

Wow -- so if your pancreas is not making insulin, then the only insulin you're getting is from this tumor? Wow...did I say that already?

Are the 2 connected? Or is the diabetes just occuring at the same time the tumor decided to produce insulin?

I'll be thinking of you Thursday! How did you make it through Thanksgiving?

[KeltonsMom]

Wow -- so if your pancreas is not making insulin, then the only insulin you're getting is from this tumor? Wow...did I say that already?

Are the 2 connected? Or is the diabetes just occuring at the same time the tumor decided to produce insulin?

I'll be thinking of you Thursday! How did you make it through Thanksgiving?

Wow is right..They believe the two are connected..But then again my pancreas would have shut down even if I didn't have this tumor, because of my hypoglycemia...And of course my mind gets to working and wonders if this has been the reason all along to why I have had hypoglycemia all my life..:confused:

Thanksgiving I ran pretty high for a few days and then dropped like a rock for a few days..Kind of like a not fun roller coaster ride..But I have found that eating a couple of marshmallows with a cheese stick keeps my glucose up when I go down..I got sick of Skittles and Starburst and Smarties so I decided to try something new..

[KeltonsMom]

If I have to see another doctor again I will scream!!!

Okay, I saw the endo who came to the clinic to check me over and to read the CT scan results..Tumor is the size of a pin head and does not need to be removed, however, it looks to be dying (there was a technical term for it but I do not remember what it was) Sooooo..In a matter of months or a couple of years I will be on insulin..All I can do now is monitor my glucose and they will go from there..

The official diagnoses is that I am type 1 (delayed Onset) and the tumor in their opinion has been in my body since I was in my teens..Because of this being there I never became diabetic when I was younger...They told me more stuff but my head is still spinning from all the info they gave me..

I did get my own glucose meter and test strips :rolleyes:

[WestinsMom]

I am glad to hear you got some answers. I started following this thread late but you have been in my thoughts since I read it last week. :)

[KeltonsMom]

Answers are always nice, but now I am more confused than before, but this is okay..Oh I almost forgot to add that I was given a Glucagon kit (just in case) Of course Kelton told me he is too chicken to inject me with it if I go too low, and my husband told me that he too is too chicken to attempt it :rolleyes: I laughed at both of them and told them to get over it and get over it NOW :mad: and if I pass out or start to seize they had better inject me or I will be pissed if they don't..:D

I am still on restricted driving, I am not to drive long distances until this is under better control :rolleyes: (they just want the lows to stop)

[Lee]

Have they thought about getting YOU an CGM???? So, no surgery, shrinking tumor, no insulin - yet...is that good news?

[KeltonsMom]

Have they thought about getting YOU an CGM???? So, no surgery, shrinking tumor, no insulin - yet...is that good news?They will try for the CGMS but I have TRICARE Prime so this should be fun..

No surgery is always good, shrinking tumor is good in a way, but once it has died I will need insulin..

So yes this is good news..I just wish I would stop having lows..or highs..