Any other Aussies here?

[T_Adelaide]

I was wondering whether any States have regular get togethers for kids with diabetes? There doesn't seem to be anything like that here in Adelaide, although the Children's Hospital here does have a few kids only events during the year.

[ramrummy]

Hi,
We are from Sydney and I have 3 boys. The youngest is 7 and he is the one with T1. When he was diagnosed last year, we were given an automatic registration for him to the Jelly Bean club through Diabetes Australia. They have a picnic each year and camps. Have you contaced them. Also our Children's Hospital has groups. Hope that is of help.

[mickjen]

Hi i am from the goldcoast, i have a 7year old girl T1,we have been on a camp once at the sunsine coast.

regards
mick dad to kaarina
dx 3/2004:)

[T_Adelaide]

Thanks to both of you. :) The Children's Hospital here have a couple of things on each year for the kids & there is a camp organised by them & Diabetes SA too. Since I originally posted JDRF have started to do more in SA too. They had a family day a couple of months ago.
Libby has her name down for the camp in Nov, although I must admit she's not keen to go.:rolleyes:

[chiefsgirl66]

Hi all, my name is Jo and I am from Adelaide, my Daughter is 11 years old and has had diabetes since she was two and is now on the pump since about July.

Hey T_Adelaide we meet again on another forum. I want to find a forum so I can talk to other parents of kids with diabetes.
How is Libby? Jessica is doing sort of ok, has a few highs but not as many as when she wasnt on the pump.

[T_Adelaide]

How is Libby? Jessica is doing sort of ok, has a few highs but not as many as when she wasnt on the pump.

Hi again Jo :) Libby's good .......... now that school is back! In the holidays we find it so much harder to get decent levels. Her basal rates increase, & she eats & tests erratically. At least on school days it follows a pattern! We see her Endo on Wed so that will be interesting.

[chiefsgirl66]

Hey we will be there tomorrow too. Our appointment is at 1.40pm with Dr Fairchild, what time will you be at the hospital?
Jessica has been all over the shop too, being back at school helps heaps. I have to keep reminding Jessica that sometimes the pump cannot keep up with all her eating. I think I will have to put a padlock on the pantry lol.

[Kitcher]

Now we have both girls. Sahara is 8 1/2 and diagnosed on her 1st birthday and Meika 7 newly diagnosed 2 months now.
Perth here wife would love a chat and a whine about it all.

[T_Adelaide]

Hi Kitcher! I'm sorry to hear about Meika's diagnosis, I live in dread that one of my teens will become diabetic- neither would cope at all well! I suppose on the positive side you are an expert, & Meika can see it's not the end of the world.

[Basil]

Hi. My name is Basil and I am currently completing my PhD in information systems. I am looking at information needs, behaviours and sources of informal carers. I am looking to recruit persons who provide unpaid care services for a child with diabetes under the age of 15 years. Please see below for additional information and feel free to email or phone me if you are interested or have any questions.


Information Needs, Behaviours and Sources of Informal Carers
Recruitment of informal carers of children with diabetes

A study at Melbourne University Department of Information Systems is seeking informal carers who are:
• Over 18 years of age
• A family member, relative or friend who is unpaid for his/her caring duties, but may be employed in other work.
• Caring for child between the age 2 and 14 years with a diagnosis of diabetes.
• Involving in the caring process regularly and providing one or a combination of practical or emotional care.
• Willing to volunteer to participate in a study investigating the information needs, behaviours and sources.

The aim of the project is to understand the information needs of informal carers, the reasons for which they need information, how their information needs arise, their information behaviour patterns and sources. I hope that the information obtained from this study will help information providers and developers provide and deploy more effective information systems that target informal carers and the persons needing care, and to evaluate how well existing information systems are fulfilling the information requirements of informal carers as well. This information will benefit carers’ lives and more importantly the lives of children with diabetes.

Participants would be asked to contribute to this study in two ways:

• The participants will be given a log file (activity diary) in which they will record tasks/activities/ events that they do or that come up every day in relation to their role as carers. The log sheets will take approximately 75 minutes to fill out over a period of one week.
• The participants will also be asked to participate in an interview of about 45 minutes.

To participate in this study please contact the researcher below to receive more details:


Basil Alzougool
The University of Melbourne
Tel: (03) 83441544 or email b.alzougool@pgrad.unimelb.edu.au

[MyAlCoLoMa]

Hi guys, my name is Michelle and I'm in Adelaide also. My 12yo daughter Alysha was diagnosed nearly 3 years ago (wow, time flies!!) and has been pumping since July this year. Just thought I'd say hi! :)

[miss_behave]

Hey Michelle
I'm not a parent, I'm an 18 yr old Aussie with diabetes. Just wanted to say that theres not much activity on this board, you'll notice this thread is from 2006. I recommend you go to the Parents of Children with Type 1 board, they're very friendly and theres parents from all over the world there :cwds:

[prima0006]

Hey There -
I'm not an Aussie by any means, though my cousins lived in Tasmania for 30 years. Anyway;), this past summer I met the founder of Hypoactive.org at th DESA CONFERENCE ( Diabetes,Exercise, & Sports Associations) Colorado Springs. Her name is Monique Henley and her website is http://www.hypoactive.org/ The website is for type 1 diabetics and their families who are interested in sports.
If you look under LINKS, you will find info on many Australian Diabetes Orgs. Maybe members on those links know of children's groups.I hope this helps.

[twotypes]

Another Aussie new to the forum. We have a 12yo son and his mum (30 something?....:).) whom are both Type 1.
Have lived in several major and minor cities in NSW and can definitely say that there is very little support and educational services that are available in this state. Westmead hospital in Sydney seems to be up to speed with things but if you live rural, things can be very difficult.
Anyway, its nice to chat to people about all this stuff in a forum like this as there is a wealth of info that we can all benefit from!
Keep smiling!

[AusKaren]

Hi!
I am in Brisbane - Caitlin went on a few camps when she was younger - up at the Sunshine Coast - but she is nearly 16 now so it is not cool to go - unfortunatley!

[xXTwilightLoverXx]

Hiya!
Im Courtney and I'm12
ive had type 1 for
just 2month's
looking Forward To getting
a Insullin Pump in Future

:D:rolleyes:
I'm From Gold Coast.

[aussiemum]

I am a Melbourne mum of two gorgeous boys. Kai is almost 3 and a month ago diagnosed with T1 and my strong boy!! I am very proud of him. I also have Jett who is 9 months healthy, and a pure delight!
I would love to chat with other parents like me! I am still new to this horrid disease so excuse me if I sounds so negative ... lol I am not normally like that! :)

[miss_behave]

Hiya!
Im Courtney and I'm12
ive had type 1 for
just 2month's
looking Forward To getting
a Insullin Pump in Future

:D:rolleyes:
I'm From Gold Coast.

Hey Courtney!
I'm 19 and also from Australia. I have been pumping for several years and I love it and wish I'd started sooner! Hope to see you around the kids/teens boards :)