4blondies
11-21-2005, 03:54 PM
I have been to numerous site and have seen/talked with my son's endocrinologist many times but still have gotten no solid concrete answers or even an inkling of an idea as to what is going on. The only commet I get is well, what's going on with your son you have a right to be concerned because it' definately isn't normal.
Here's what has been going on:
This all started when he had his 5yr old well child appt. to get ready for kindergarnten and his pediatrician asked e if I had any concerns/questions. I said yes I do. My son has been complaining of feeling dizzing, to the point where I can't leave his side because he gets scared. I have also noticed that he gets so thirsty that he freaks out on me if he hasn't gotten enough to drink or that what has has drank doesn't help...sothus he pee's more often because he's constantlydrinking. She ordered a 2hr post prandial... it came back at 165, with a fasting of 50 and a creatine level of .4. Upon further testing we've found that his urine osmolarity & sodium levels were fine (to rule out diabetes insipidous). His endocrinologist did a thyroid test along with an antibody test and they both came back fine, however he had a fasting sugar/insulin test that came back at 139 for glucose and insulin was not traceable. We repeated the serum insulin with a c-peptide & BG level and two hours post meal his BG was 150, insulin was 36 (high: range is 5-24) and c-peptide was 6.8 (also high:range is 2.3-5.4). This was with a fasting of 243, 1hr of 198 and the two hour at 150 with all of the other levels. If you didn't know that my son was only 5 and 35lns at 43" tall (he's lost 5lbs since all this has happened) you'd think he was a type II with insulin resistance. However, when at home with our own Glucometer, we get fatsing BG's that are anywhere form 43 to 243... most of the time he's 104-139 fasting. 1hr post meal he's always into the 200s, or on occassion he'll be in the upper 170s-190s. The funny thing is his A1C is only 5.4, which means his average is 115. It must be from the lows that he gets sometimes?? His endocrinologist is thinking MODY... however he's ot doing much other than he wants a fasting BG, insulin & c-peptide again. My son's teacher & nurse at shool want to know what is goign on because often he'll end up in the nurse'soffice not feeling well (complains of abdominal & eye pain). He did this to me the other day complained of not feeling well, so at 4:50pm I took his Blood Sugar and it was 213! 4hrs after a meal with no snacks. (all he has for lunch is a PB&J sandwich on whole wheat) with 100% grape juice (6oz) and peanut butter crackers. Am i crazy and everything is normal??? I just feel this endocrinologist isn't really taking us seriously. He's at a well renouned children's hospital... and yet my own son's pediatrician think's he's type II. But the endo. says no because of the age & weight. I am angry, confused, sad.... with almost no help with what's going on:(
Here's what has been going on:
This all started when he had his 5yr old well child appt. to get ready for kindergarnten and his pediatrician asked e if I had any concerns/questions. I said yes I do. My son has been complaining of feeling dizzing, to the point where I can't leave his side because he gets scared. I have also noticed that he gets so thirsty that he freaks out on me if he hasn't gotten enough to drink or that what has has drank doesn't help...sothus he pee's more often because he's constantlydrinking. She ordered a 2hr post prandial... it came back at 165, with a fasting of 50 and a creatine level of .4. Upon further testing we've found that his urine osmolarity & sodium levels were fine (to rule out diabetes insipidous). His endocrinologist did a thyroid test along with an antibody test and they both came back fine, however he had a fasting sugar/insulin test that came back at 139 for glucose and insulin was not traceable. We repeated the serum insulin with a c-peptide & BG level and two hours post meal his BG was 150, insulin was 36 (high: range is 5-24) and c-peptide was 6.8 (also high:range is 2.3-5.4). This was with a fasting of 243, 1hr of 198 and the two hour at 150 with all of the other levels. If you didn't know that my son was only 5 and 35lns at 43" tall (he's lost 5lbs since all this has happened) you'd think he was a type II with insulin resistance. However, when at home with our own Glucometer, we get fatsing BG's that are anywhere form 43 to 243... most of the time he's 104-139 fasting. 1hr post meal he's always into the 200s, or on occassion he'll be in the upper 170s-190s. The funny thing is his A1C is only 5.4, which means his average is 115. It must be from the lows that he gets sometimes?? His endocrinologist is thinking MODY... however he's ot doing much other than he wants a fasting BG, insulin & c-peptide again. My son's teacher & nurse at shool want to know what is goign on because often he'll end up in the nurse'soffice not feeling well (complains of abdominal & eye pain). He did this to me the other day complained of not feeling well, so at 4:50pm I took his Blood Sugar and it was 213! 4hrs after a meal with no snacks. (all he has for lunch is a PB&J sandwich on whole wheat) with 100% grape juice (6oz) and peanut butter crackers. Am i crazy and everything is normal??? I just feel this endocrinologist isn't really taking us seriously. He's at a well renouned children's hospital... and yet my own son's pediatrician think's he's type II. But the endo. says no because of the age & weight. I am angry, confused, sad.... with almost no help with what's going on:(