Getting up at night-non "D" [Archive] - Children with Diabetes Forums

kel4han

08-13-2007, 04:54 AM

Here I go again. My 10yr old daughter has been getting up every night to go pee. She used to wet the bed until age 9 and of course I questioned that. I guess I should be happy she now wakes to go pee at night, but I dont think this is "normal".....of course, she does NOT drink alot before bed, and no soda especially after 4pm. She has been very thirsty, but we live in AZ for goodness sakes! She wet the bed for the first time in about a year on Saturday. I used to poke her fingers for bedwetting, but since she confessed to me that she wet the bed, I hate to go the psycho mom route and go there again. I have done the sugar urine stick thingys, I forgot what they are called......so please let me know if your child non "D" wets the bed and what age?

kiwikid

08-13-2007, 05:16 AM

My eldest 2 wet the bed until they were about 11-12. They both stopped at the same time when I bought them new beds, so around that age somewhere. My next child has never wet the bed - and she never wore night naps either . Just one of those lucky kids.
Maybe your 10 yr old is extra exhausted because of the heat, and is just sleeping really well? :cwds:

sparkyjt

08-13-2007, 07:42 AM

My oldest is 11 and still wets the bed. I've always heard it can be genetic. It also could be something stressful going on in our daughter's life maybe. Definitely worth getting her checked out but I wouldn't worry too much about it being D. By the time Reese starting wetting the bed before diagnosis, she had many other symptoms besides thirst and was in DKA.

Kaylee's Mommy

08-13-2007, 08:57 AM

my older daughter wets the bed, but she's only 5.. we have to wake her every night and send her to the potty.. she stopped for a while and then started again, and yes, I , too, would check her LOL.. just a natural reaction..

my neice wet the bed forever, turned out she had a very very small bladder, and at the age of 9 or 10 had surgery, because even the bedwetting drugs didn't help.. her bladder was the size of a toddlers, no wonder she couldn't hold it through the night..

if my oldest continues on much longer with the bed wetting I"ll speak to her dr.

sometimes kids just sleep to soundly!

coni

08-13-2007, 12:18 PM

Bedwetting in older children can be genetic and totally unrelated to blood sugar levels. Typical ages for the bedwetting to stop are 9 and then again around 12. Some people (although very few) continue to wet the bed until young adulthood. It has to do with a hormone that is released at night. You can get medication to control it if it is an issue for the child. One medication is taken only on the night you wish to prevent the wetting, but it has side effects. Another medication, desmopressin (spelling?) can be taken without side effects. (I think it's actually the hormone, but I'm not sure.)

You can find information on the net or talk to a pediatrician if you have concerns, but if it were me, I wouldn't take blood sugar readings, etc. from the non-D child unless you really, really suspect high blood sugar. Just think of how afraid it might make the kid, perhaps unnecessarily.

sam1nat2

08-13-2007, 01:59 PM

talk with your ped. If this is something she never outgrew, it is most likely a hormone problem. Yes, it does have a genetic link. It is not something serious at all. Basically most of us have a hormone that concentrates our urine at night, some people, it takes longer for this hormone to kick in.

I used to rep a drug for this and the results people had were amazing. In fact, when ds started wetting the bed, I immediately took him to the dr for this drug, even though I thought it was strange it just started happening. Wasn't expecting a D diagnosis.

Talk with your ped, limiting fluids doesn't always work. Often one round of the drug is enough to kick start their bodies into producing the needed hormone.

Ellen

08-13-2007, 03:33 PM

The fact that she was dry all night and is now getting up to urinate at night and is thirstier is worth checking out. Has she lost any weight? If she's willing, I'd check bg after eating.

One of my children tried the DDAVP nasal spray for primary nocturnal enuresis and it gave the child headaches.

kel4han

08-13-2007, 03:42 PM

She's not losing any weight, if she was that would be a whole 'nother story. I have talked to her Ped but they just suggested the whole waking them at night, an alarm, etc etc. It used to happen several times a week, then once a year, then here and there in spurts. I knew there are alot of other kids that do this too, makes me feel better to hear it again. :rolleyes:

Josh's Mom

08-14-2007, 06:22 PM

Bedwetting still at 11 years old was the main reason we took Josh to a doctor ... wanted to rule out physical issues such as infection or diabetes ... they prescribed desmopressin ... within an hour, we got the phone call that Josh had Type 1 D ... He's been on the desmopressin since diagnosis ... and it works great!!!

Mama2H

08-14-2007, 07:04 PM

We took H to urologist's and one other specialist, all of the medications that they prescribed either made her sick to her stomach or sleepy all of the time and with the exception of recently the alarms didn't work either. We even had anatomical testing done on her which was VERY tramatic! We actually just won the battle with nocturnal enurisis last month *woooohoooo* No matter what we did before it never worked but out of the blue this time it did :D I have been sooooooo happy not to have to buy goodnights anymore. If you want to read my *happy happy joy joy* post on it, the link is in my siggy to my blog.

Mama2H

08-14-2007, 07:06 PM

Oh wait, I just reread your post and she *used* to stay dry and now doesn't. I would definatly try to talk her into getting a finger poke after dinner and maybe sneak one in after she goes to sleep.

kel4han

08-14-2007, 07:45 PM

Well, we went thru the finger pokes back in June. She was an emotional mess, mood swings etc. (she is almost 11) Just completely unreasonable. I saw that as high blood sugar,then she wet the bed one night, and I HAD to poke her finger. It took both my husband and I to hold her down, screaming, I was so upset. BS was normal of course. But a few days later I checked her in the early AM as she slept, and she was 106...after fasting all night. I was so happy it was only 106, but I know that could almost be borderline for a morning fast as well. Then there is the variance in readings. I dont know.

So, now fast forward 2 months to now,and I just dont know! She has no other symptoms, but thirst. But we are in AZ. Its hot. I promised her the last finger poke that I was okay in my heart that she was ok, and I would not poke her anymore. I guess if she has another problem I will go for the ketostix first as promised. I think I worry so much because this "D" for us is so genetic....my dad, my aunt, then me, then Maddison. Its hard to ignore bed wetting now becuase of this. :eek:

munsonklein

08-14-2007, 11:44 PM

Sarah's first symptom (and her only symptom for 6 months) was getting up to use the bathroom during the night, not even actually wetting the bed. She was 9 years old and had been dry at night since she was 2 (always had a bladder of steel!). I thought she was getting up more because she was starting to go through puberty. She didn't lose weight until just before she was dx'd in severe ketoacidosis. In hindsight, there were a few other subtle signs a month or 2 before, like not finishing her dessert, but who goes to the dr for that? It was summer, we were all thirsty, she'd always been thin, and there's no Type 1 in the family, so it wasn't even on my radar. She almost never gets up during the night now- only if she's fallen asleep without going first.

It could be your daughter's in the very early stages, and is having a slow onset. Some kids seem able to mask it for a long time, and don't develop ketones til they're really sick. Given your family history, I think it's smart to keep an eye on it. Have you tried alternate site testing? A forearm isn't as sensitive as a finger, maybe she'd accept that more easily.
Cathy

kel4han

08-15-2007, 01:39 AM

munsonklein, my whole worry is a slow onset, because both Maddison and I had a s-l-o-w onset over the period of about an entire year. My husband thinks I am crazy, but moms have special radar. I try not to think about this too much, but you know, the bed wetting incident sparked it once again so I thought I would ask everyone here, although I already know the answers to nocturnal enuresis, etc. I think posting here I am trying to hear from others that this can be normal in some kids. But, everytime I am sure she is fine by forcing her to test her BS, a few months roll by, no problems, then something happens like this, to spark my concern. Uhhhhh. The doctors cant do anything until there is a need for insulin anyway. I know what to look for, and I caught it in Maddison when she still had an A1c of 8.5% so I guess I just need to keep a watchful eye. I appreciate everyone's input.

munsonklein

08-15-2007, 01:17 PM

That's the frustrating, heartbreaking thing about this, isn't it? Even if you do catch it early, there's nothing that you can do to prevent it, cure it, or make it not as severe. But at least you can avoid ketoacidosis and a stay in the PICU. Hopefully your daughter is just going through one of those periods of growth and change and will be fine. My own endo told me that non-diabetics blood sugar does swing around more than we've been led to believe, which his practice discovered while they were all trying out CGMs in order to decide whether to recommend them to patients. You're doing the right thing, watching her and waiting, and that's all that can be done right now. Just wish there was a saliva test or something for blood sugar, so we didn't have to draw blood all of the time!
Cathy

kel4han

08-16-2007, 01:17 PM

Back to my worries, Last night Hannah came in with a tummy ache. This morning she told me she must need glasses becuase her eyes are blurry. My heart skipped a beat. I went numb, I had to ask..."what did you say? I'm sorry I didnt hear you"

I told my husband of my worries, he reminds me that I promised to let this go last time. No more finger pokes. I am just wondering if I am crazy, wouldn't this worry you too? She is not obviously ill, or out of character.....that would be something I wouldnt let slide of course. I have made her fearful in the past, poking her fingers...she is a drama queen with no pain tolerance. I cant poke her finger, I dont want to scare her, I dont want to go against my word of letting my worries go. But, I am consumed with worry now after this morning's blurry eye comment. I wonder if she is asking me if she is okay in her own 10yr old way?

Mama2H

08-16-2007, 01:46 PM

Can you ask her to pee in a cup. That way you can test her urine. If it freaks her out just tell her you want to make sure she doesn't have a bladder infection.

coni

08-16-2007, 01:50 PM

kel4han - It does sound like more than just a bedwetting issue, doesn't it? I would be tempted to check her urine too. Hugs to you...I know I'd be worried.

kel4han

08-16-2007, 02:03 PM

Momof4gr8kids

08-16-2007, 02:32 PM

Yes, I think I will have to check her urine for sugar, even though I promised.....I am here at work literally sick to my stomache as I hear her words ringing in my ears that her eyes are blurry. Literally sick, and I wonder if it is a moms intuition, or if it is just me freaking myself out. I am sure its just me, I can already feel my heart racing at the thought of asking her to pee in a cup :eek:

Since my husband has type 1, and now our daughter, we have a son that I worry about. He wet his pants during the day, and has not done that in so very long. I checked his bg a few times to see even though he had an appointment through trial net for an OGTT this week. I think to worry when you have a family history is natural. I checked 2 fasting numbers and both were over 100, but not high enough to take him in. I will be very interested in his results through trial net. The nurse that did his OGTT thought that there were something like 170 carbs in the gunk they had him drink. I am not to sure of that, I was thinking closer to 60, or 90. Joey has shown a long history of glucose intolerance, and so since starting these trials it has actually lessened my worries. I don''t know that it would do the same for you, but it might be worth thinking about, or talking about with your hubby.

Take care, Jamie

caspi

08-16-2007, 02:36 PM

Yes, I think I will have to check her urine for sugar, even though I promised.....I am here at work literally sick to my stomache as I hear her words ringing in my ears that her eyes are blurry. Literally sick, and I wonder if it is a moms intuition, or if it is just me freaking myself out. I am sure its just me, I can already feel my heart racing at the thought of asking her to pee in a cup :eek:

First of all, I want to tell you how impressed I am with how you are handling all of this. Of course, D is always in the back of our minds with our non-D children, and I'm sure they also think about that as well. It's such a tough situation to be in - not wanting to overact and scare our kids - but on the same token, with your experience and family history, and above all your INTUITION (I'm a big believer in mother's intuition), I would definitely recommend looking into this further. Sometimes as parents we have to go back on promises we may have made our kids if it's in their best interest.

I honestly do not believe you are over-reacting and the fact that you are so aware of not wanting to over-react may be keeping you from doing what probably needs to be done -- gosh, I hope that made sense! :eek:

All of that said, as you know, there's not much a doctor can do until insulin is required. With such slow progression in your family, that's going to be the tough part of all of this....

{{{HUGS******

Mama Belle

08-16-2007, 02:38 PM

Is she a sound sleeper? Is there any chance you could poke her finger about an hour after she goes to sleep (during deep sleep)? When I turn my daughter's lancing device down very low I can't even feel it, so maybe that would be an option. That way you wouldn't have to freak anyone out by asking her to pee in a cup. If you think this might be an option, you could time it where you give her some carbs a bit before bed, so you could see how her BG responds. Just a thought.

kel4han

08-16-2007, 02:48 PM

Mama Belle, I thought of doing that last night when she came into my bed for the tummy ache. I was laying there, freaked out, trying to smell her breathe, resisting every urge to poke her finger. My husband thought I lost my mind, LOL :rolleyes: I will have to think about what I should do a little more today. Maybe I can convince her I poked the wrong finger by mistake at night......LOL. Probably not. :D

Mama Belle

08-16-2007, 03:02 PM