View Full Version : dd says she likes diabetes
mandapanda1980
01-15-2011, 08:41 AM
This morning, Alli was getting ready to eat breakfast. I'm asking the usual, what would you like to eat? Want some banana with it? To get an idea of how much insulin and pre bolus. She then says I like diabetes. It surprised me and I asked her what she likes about it. She says she likes her pump and getting "this" put in(touches site) and how sometimes it doesn't hurt.
It made me feel good. Knowing that she is so strong and happy about D. I spend so much of my time worrying and trying to make her D experience the best I can. Its so nice to see it in a positive way and remind you that all this that we go through keeps her happy and well. And she is happy.
Sarah Maddie's Mom
01-15-2011, 09:26 AM
I know what you mean.;)
Maddie once told me that if there was a cure she wouldn't want it if meant that she's have to give back her pump. :cwds: I think at the time I was a bit weirded out by the comment, but she was probably 7 and had been D since 4 so it was just part of her, like having brown eyes or liking animals.
lisahackman
01-15-2011, 10:52 AM
Alexa say's the same thing. She loves the friends she has made due to here diabetes and the bond they share. She loves camp. The connections they have she wouldn't trade for the world. She say's she doesn't know if she would take a cure if it came because it would make her "normal". She is only 12. I know she would go for cure in the long run, but I understand what she means. She has had some really amazing experiences because of diabetes that she wouldn't have had otherwise.
obtainedmist
01-15-2011, 10:57 AM
Great thread! I loved it when Molly said, "This isn't so bad". Those comments feel like gifts!
CheriMomTo8
01-15-2011, 05:54 PM
Mauras little friend with d, Timothy, says he likes it when his site change hurts. I thought that was weird at first! But then me told me it's bc he knows it's working and saving him. :cwds: he is 5 and has had d since he was 15m.
mandapanda1980
01-15-2011, 07:40 PM
Mauras little friend with d, Timothy, says he likes it when his site change hurts. I thought that was weird at first! But then me told me it's bc he knows it's working and saving him. :cwds: he is 5 and has had d since he was 15m.
That is so stinkin precious!
danalynn
01-15-2011, 09:38 PM
great thread!
recently when my son was going through a rough patch, our diabetes nurse suggested he decorate a pillow with everything he hates about diabetes then beat the stuffing out of it. I was a little sceptical that it would actually work but he was pretty excited to have something to do with his 'angry energy' so off we went to get pillowcases and a pillow and fabric paint and a rubber mallet to wack it with. we bring it all home and he gets himself set up at the kitchen table with the first pillowcase (you can't just buy one of course).
later I came in to see how it's going and I see "I love.." instead of "I hate.." and pictures of candy for lows and smiley faces and family... I ask him what he's doing and he says to me "well I figured before I made a hate pillow I should make one about all the things I LIKE about diabetes first"... never in a million years would I have asked him to do that and it humbled me to the core. his sisters came in and helped and they all made it so beautiful. I had to leave the room and cry my eyes out :o
he did also make his angry pillow and he does actually beat it up sometimes, but he also sleeps with them both :cwds:
mandapanda1980
01-15-2011, 10:21 PM
great thread!
recently when my son was going through a rough patch, our diabetes nurse suggested he decorate a pillow with everything he hates about diabetes then beat the stuffing out of it. I was a little sceptical that it would actually work but he was pretty excited to have something to do with his 'angry energy' so off we went to get pillowcases and a pillow and fabric paint and a rubber mallet to wack it with. we bring it all home and he gets himself set up at the kitchen table with the first pillowcase (you can't just buy one of course).
later I came in to see how it's going and I see "I love.." instead of "I hate.." and pictures of candy for lows and smiley faces and family... I ask him what he's doing and he says to me "well I figured before I made a hate pillow I should make one about all the things I LIKE about diabetes first"... never in a million years would I have asked him to do that and it humbled me to the core. his sisters came in and helped and they all made it so beautiful. I had to leave the room and cry my eyes out :o
he did also make his angry pillow and he does actually beat it up sometimes, but he also sleeps with them both :cwds:
Oh my gosh, I would have had too walk out too!
It reminds me..at our endos office we have the share tree where you can write on a snowflake what you like or don't like about diabetes. I.e. I don't like the finger pokes or I like getting treats when low. On the "don't like" side there was one that plainly said "I love diabetes". It was like the diamond in the rough :)
Heather(CA)
01-16-2011, 11:22 PM
Seth has told me several times that diabetes cured him, he used to get sick more often before dx'd. I don't know whether it was the diabetes or that fact that mom turned into a bit of a grem a phobe lol:eek::D
great thread!
recently when my son was going through a rough patch, our diabetes nurse suggested he decorate a pillow with everything he hates about diabetes then beat the stuffing out of it. I was a little sceptical that it would actually work but he was pretty excited to have something to do with his 'angry energy' so off we went to get pillowcases and a pillow and fabric paint and a rubber mallet to wack it with. we bring it all home and he gets himself set up at the kitchen table with the first pillowcase (you can't just buy one of course).
later I came in to see how it's going and I see "I love.." instead of "I hate.." and pictures of candy for lows and smiley faces and family... I ask him what he's doing and he says to me "well I figured before I made a hate pillow I should make one about all the things I LIKE about diabetes first"... never in a million years would I have asked him to do that and it humbled me to the core. his sisters came in and helped and they all made it so beautiful. I had to leave the room and cry my eyes out :o
he did also make his angry pillow and he does actually beat it up sometimes, but he also sleeps with them both :cwds:
Oh my goodness this one makes me cry... one of my other sons has been testing highish and the one with diabetes has been saying in alarm why are you testing him - does he have it? At his point I tell him no but I am wondering if it is because he is fearful for his brother, does he not want his brother to go through all he has been through or even is it because he would lose his special status by being the only one? I know that sounds terrible and I think it is more that he is worried and wouldn't wish this disease on anyone else but still being the only diabetic in the family does get you extra attention for sure!
Heather(CA)
01-16-2011, 11:50 PM
great thread!
recently when my son was going through a rough patch, our diabetes nurse suggested he decorate a pillow with everything he hates about diabetes then beat the stuffing out of it. I was a little sceptical that it would actually work but he was pretty excited to have something to do with his 'angry energy' so off we went to get pillowcases and a pillow and fabric paint and a rubber mallet to wack it with. we bring it all home and he gets himself set up at the kitchen table with the first pillowcase (you can't just buy one of course).
later I came in to see how it's going and I see "I love.." instead of "I hate.." and pictures of candy for lows and smiley faces and family... I ask him what he's doing and he says to me "well I figured before I made a hate pillow I should make one about all the things I LIKE about diabetes first"... never in a million years would I have asked him to do that and it humbled me to the core. his sisters came in and helped and they all made it so beautiful. I had to leave the room and cry my eyes out :o
he did also make his angry pillow and he does actually beat it up sometimes, but he also sleeps with them both :cwds:
Oh man, I almost missed this post. I am so glad I didn't:cwds: What a GREAT kid you have there, good mommy too :)
danalynn
01-17-2011, 10:43 AM
Oh man, I almost missed this post. I am so glad I didn't:cwds: What a GREAT kid you have there, good mommy too :)
Thank you :cwds: at times like this I think I learn more from him than he does from me :rolleyes:
but this has shown me that he'll be alright when he's grown up and on his own, he's got the strength of spirit to get him through the rough patches- of course to a parent, that's priceless :cwds:
I believe that all our kids are equally amazing in their own ways (D and non-D), challenges like living with Diabetes just bring their strengths to the surface early on in life. (another positive!! :))
shekov
01-17-2011, 07:50 PM
Last year when we were preparing for our first JDRF walk and raising $$ for a cure dd got very upset.
She said she liked D and didn't want a cure and asked if I'd make her get one.
When we discussed it further, I realized that she's had D for as long as she can remember so it's part of her. She doesn't know what life without D means exactly but she does know that it makes her special. :)
I told her that she would be older if/when they find a cure so she'll get to have D for a long time.
My older kids asked me if I'd make her take the cure if they found one right away. ABSOLUTELY!
After being treated like a VIP at Hershey Park two years ago, Coco told me that she wouldn't want a cure for diabetes becuase she could no longer go to the front of the line on roller coaster :rolleyes:...
MommaRetta
01-17-2011, 10:40 PM
great thread!
recently when my son was going through a rough patch, our diabetes nurse suggested he decorate a pillow with everything he hates about diabetes then beat the stuffing out of it. I was a little sceptical that it would actually work but he was pretty excited to have something to do with his 'angry energy' so off we went to get pillowcases and a pillow and fabric paint and a rubber mallet to wack it with. we bring it all home and he gets himself set up at the kitchen table with the first pillowcase (you can't just buy one of course).
later I came in to see how it's going and I see "I love.." instead of "I hate.." and pictures of candy for lows and smiley faces and family... I ask him what he's doing and he says to me "well I figured before I made a hate pillow I should make one about all the things I LIKE about diabetes first"... never in a million years would I have asked him to do that and it humbled me to the core. his sisters came in and helped and they all made it so beautiful. I had to leave the room and cry my eyes out :o
he did also make his angry pillow and he does actually beat it up sometimes, but he also sleeps with them both :cwds:
Oh wow! I would have had to leave the room too. I am soooo going to do that with my son. He is hating diabetes right now and he has a lot of pent up frustrations. You've got some good kids there!
DsMom
01-19-2011, 10:29 AM
What a great thread--brought tears to my eyes. Daniel once said he didn't want to give up his pump when the cure comes too. And I know he loves it if he can stay up late if we have to clear ketones. After Daniel was first diagnosed, his older brother "wanted" diabetes too--and even had me test his blood. God forbid that should happen, but Daniel does get some special treatment. I try to teach my other kids not to begrudge him those perks--and try to point them out to Daniel to help him in those times that diabetes gets him down. I love the pillow idea and am definitely trying that one. May make one for myself as well!
shekov
01-20-2011, 09:22 AM
What a great thread--brought tears to my eyes. Daniel once said he didn't want to give up his pump when the cure comes too. And I know he loves it if he can stay up late if we have to clear ketones. After Daniel was first diagnosed, his older brother "wanted" diabetes too--and even had me test his blood. God forbid that should happen, but Daniel does get some special treatment. I try to teach my other kids not to begrudge him those perks--and try to point them out to Daniel to help him in those times that diabetes gets him down. I love the pillow idea and am definitely trying that one. May make one for myself as well!
When my kids complain that D dd gets to sleep with me when I'm doing overnight basal testing, or she gets juice boxes and glucose tablets when they don't, I always tell them that if they let me test their bg 8x/day and put a site in their butt every other day, they can have those things too. :p;)
emm142
01-22-2011, 01:02 PM
When my kids complain that D dd gets to sleep with me when I'm doing overnight basal testing, or she gets juice boxes and glucose tablets when they don't, I always tell them that if they let me test their bg 8x/day and put a site in their butt every other day, they can have those things too. :p;)
What would you do if one of them said that they would like those things if they got the positives as well!? :eek::p
shekov
01-23-2011, 01:27 PM
Never even considered that they might say yes!
Bigbluefrog
01-24-2011, 06:53 PM
I remember how upset I was that we gave her the wrong insulin, we had to check her bg every 2 hours for the next 24 hours.
Ambrea wasn't upset by any of the lows, we feed her ice cream all night long....she said it was a diabetic heaven.
It's good that our children see diabetes as something positive and overcome the negatives.