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maddison-hope
07-11-2007, 04:22 PM
Hello all

My DD, Maddison is 15 months old and was diagnosed with Type 1 Diabetes on Saturday. :(

I am slowing coming to terms with this but it's very new and slightly confusing and overwhelming. :confused: I guess I'm hoping that someone will tell me it'll be ok and she'll lead a normal life.

I've been a member of various forums before and found them a great resource of information so with any luck it'll be the same here.

Cath
(Maddie's Mum)

Amy C.
07-11-2007, 05:48 PM
Welcome to this forum!

I am sorry you have to be here. There are many parents of young children who post here, so you will get lots of advice. You are welcome to try it or reject it, as not everything works for everyone.

Your daughter will be OK and she can lead a normal life. Your family will eventually find balance with a new "normal" that accommodates diabetes. Give yourself time to mourn the life you had -- because it will now be different.

Diabetes management is not rocket science. A parent can learn and do what needs to be done for the child to be healthy. There is a lot of waiting, noticing patterns, and learning in store for you.

When my son was dx'd 10 years ago, I read every single page on the Children With Diabetes site. I am not sure that is possible now, but I sure learned a lot in a short period of time.

There is a lot of technology out there to help you be your daughter's pancreas. Your task is to be the best pancreas you can be and also be a mother to a wonderful daughter.

kel4han
07-11-2007, 06:24 PM
Hi there, I have a MaDDison too! I am so happy you found us. I guarantee if you have questions, concerns or just want to cry that this place is where you need to be. You will learn more here than in any book from all the experienced parents.

WestinsMom
07-11-2007, 06:25 PM
What a lucky day! :( I am glad she is okay though, and that is the important part that you have to remember. It could be worse! (At least that is what my dr told me when Westin was diagnosed.)

The technology currently in use and on the horizon is amazing. So much is changing so quickly.

I think you will find this forum of great help. I just started watching it over the last couple of months, thanks to a friend. I wish I had started hanging out here sooner! :)

susie
07-12-2007, 03:57 AM
Hiya great to see u have joined this site, have u found the cwd support group yet, we are a friendly bunch:D

I replied to you on the dibb forum and hope maddison is ok.

My son was dx when he was 2 now 9 and it hits parents as well as the child, if u wanna chat i am on pm or email me on aarcal@aarcal.wanadoo.co.uk

Susie

Link
07-13-2007, 02:05 PM
my first post as well, and what a great place! I will surely be reading here a lot...

our daughter was diagnosed 10 days ago... so very close to yours, but she is 7 years old.

So far the initial shock is gone and well... long live lifestyle change! keep positive and since all of us are going to be eating better at least we are all going to be healthier together... that's one way to look at it.

Jackie UK
07-14-2007, 10:27 AM
Hi Cath and parents of other newly diagnosed children. Oh and Hi to Susie who is already a list member.


I am sorry to hear that Maddison has been diagnosed with diabetes. Its very hard dealing with such a small child. Do you use diluted insulin? Or Mixtards or a basal bolus regimen? No doubt she probably only needs a small amount of insulin at the moment. How are you finding this?


Are you in an area of the country where there is very good support in the clinic?

Things do get a bit easier, but most of the time things just change as a child grows rather than become easier. There are lots of children on the email support list I manage who play competitive sports at very high levels and have made remarkable achivements in many areas. As long as there is careful planning then there is no reason why Maddison should do the same things as other children.


I just wanted to let parents/carers know that there is a Children With Diabetes UK email support list. Which I run. E-mail lists help provide support and news to people living with diabetes. It is very busy and active with over 135 UK members. Lots of parents with children ranging from babies to 18 years olds. Many of the children are now pump users, so a good place to ask about insulin pumps if you are considering this as a therapy. Lots of children on Mixtards and Novorapid and Levemir or Lantus regimens.

There are several parents with toddlers with diabetes.


Here is some information here about how to subscribe to the email list and details of how the email list works.

http://www.childrenwithdiabetes.com/uk/

You can subscribe to the list from a link there, or go to the main CWD on line website and find mailing lists, look for the heading "Geographical Mailing Lists" then you will see a link to the UK parents email support list. Make sure it is the UK parents list.

http://www.childrenwithdiabetes.com/mailinglists.htm

If you have any problems subscribing, I can manually subscribe you to the list. To remove yourself from the mailing list, should you need to, there is a link at the bottom of every mail from the support list. Click and you will be unsubscribed immediately. Or I can remove you from the list if there are problems.

Any problems subscribing let me know.

>jackie.jacombs@childrenwithdiabetes.com


Jackie Jacombs, UK Children With Diabetes UK Parents email List Manager.
__________________









Hello all

My DD, Maddison is 15 months old and was diagnosed with Type 1 Diabetes on Saturday. :(

I am slowing coming to terms with this but it's very new and slightly confusing and overwhelming. :confused: I guess I'm hoping that someone will tell me it'll be ok and she'll lead a normal life.

I've been a member of various forums before and found them a great resource of information so with any luck it'll be the same here.

Cath
(Maddie's Mum)

theo'smummy
07-20-2007, 07:44 PM
awww my son was dx @ 22 months so i know how you are feeling .
It was a shock to us aswell. Theo is doing really well now he started on an insulin pump in march and he has had no hospital addmissions this year so far.(last year he had 26 with dka every time )
He has adjusted well and is now very proud wearing his pump and shows it to random people in the street .

Hope you find all you need here


lisa x

mum to theo aged 3 dx@22 months pumping paradigm 515
mum to sol aged 5 non d

theo'smummy
07-20-2007, 07:47 PM
forgot to say
you will get your head around this , it took me a while but finally i came to terms with it and i keep reminding myself to think positive .i pop back now and again on these boards so if you ever need a chat just mail me,




lisax

mum to theo aged 3 dx@22 months pumping paradigm 515
mum to sol aged 5 non d

cariad
07-23-2007, 07:01 PM
Hiya
sorry to hear about your dd poor thing is only a baby :-(
My ds age 3 was diagnosed 1/6/07 its hard I know we are still coming to terms with it. Where in s.wales are you? I am in cwmbran gwent.
kate xx