How did you find CWD?

[Mikker]

How did you find the CWD community?

[CC'sMom]

Google search a few days before my daughter was diagnosed. Best website I ever found!

[Becky Stevens mom]

I'd gotten some handouts from a friend years ago after Steven was dxd, the ones for teachers. At the bottom they said Childrenwithdiabetes so when we finally got internet I checked it out:) Really wish I'd had it after he was diagnosed. Imagine what it was like for people before there was CWD :cwds:

[Liongirl4]

Looking back, I see I joined 8/14/07, Samantha was diagnosed 8/1. I think I found it by accident..just searching on the web. Thank God I did!! Can't imagine life without CWD.

[LantusFiend]

I found it pre-dx by googling my symptoms. I was like nah, can't be, I'm too old for that!:rolleyes:

[GinaB]

At the hospital when he was diagnosed he got a blue backpack full of info and stuff and it has the CWD website, one touch and Animas printed on the outside.

I'm so glad I found this website. Reading the post on this forum have not only helped educate me to a detailed level you don't get from the doctor but it has saved my sanity more than once.

[Danielle2008]

I found it from a google search.

[Jake'sMama]

handouts at dx and then by word of mouth from others already here.:cwds:

[wvchinacat]

Willow was dx 2 days I think - I needed someone to talk with and my DH was not working . . .(although he is Type 1) he was not nearly as emotional as I was and I really needed the support. 18 months later I still use this site more than any other D site out there. I have been to almost all of them that I can find with a google search and always end up back here . . .:D

[Jen_in_NH]

Google :) For some reason, this is the only diabetes site I found. I've heard others around here mention other sites, but I've never looked.

[StillMamamia]

From the local diabetes association's website. They had a link to here.

[shekov]

Google :D our first day home from the hospital.

[Mikker]

We found CWD from our own efforts as well, but I would really love to see more in the category of "from the hospital at the time of dx".

As a community, what can we do to rectify this situation?

[MamaC]

Googling. Looking back later, I saw there was a pamphlet from the dietician listing this site, but no one ever verbalized it to me.

[Flutterby]

We found CWD from our own efforts as well, but I would really love to see more in the category of "from the hospital at the time of dx".

As a community, what can we do to rectify this situation?

I agree, it appears the majority has found it on their own.. Having the flyers hand outs at the endo's office, or part of the Bag of hope, or hand outs in the hospital is a good idea. Since we weren't in the hospital at dx having it at the endo's office would have been helpful.

[Connie(BC)Type 1]

My answer isn't there!!! I found it via a chat I miss, "Melissa's"

[CassiesMama]

I found out from someone I play warcraft with. Who would have thought?

[liasmommy2000]

I really don't remember. I think I may have heard about it on the ADA board. But I really didn't post here for a while as it didn't seem very active. Then I had trouble logging into the ADA board at work, I always got an error. So I started posting here instead.

I think it was also mentioned in the multitude of information that we brought home from the hospital, but I didn't notice it until after I had already found it.

[Stanca]

After our daughter was diagnosed and we brought her home from the hospital, my husband did a lot of searches on the Internet. He found it along with many others. It has been very helpful

[momandwifeoftype1s]

I found out from our ADA Advocate for school issues, who also recommended getting in touch with momtojess.

[AlisonKS]

Tony was diagnosed when we were living in TX, far away from any family so while his life was literally being saved my mom was searching for diabetes and found this site. My late aunt had type 1 but it had been awhile since anyone in our family had it so she didn't know what treatments, etc are.

[McKenna'smom]

Unfortunately, with everything that was going on after McKenna's dx and with all the stuff I was reading, I don't rememer how I found CWD. However, I am very glad I did.

After reading posts about adrenaline crashes, I was able to predict that my DD would have one after a school dance last Friday night. Sure enough, right before bed, her sugar dropped to 58. :eek: If I hadn't read about it here, I wouldn't have been able to catch it. Thanks!

[dragonfly]

Thank God for google. I knew there had to be a group like this out there so I hit up my trusty google and there you were!

[MamaChrissa]

Google search! :cwds:

Ive been on message boards for years, indeed since I was pg. I knew there must be a message board for parents of kids with D. :cool:

[hawkeyegirl]

We received a flyer in our Bag of Hope. :) I joined the night we got home from the hospital, so two days after diagnosis.

[Sarah Maddie's Mom]

I stumbled into CWD after 4 years alone in the cold and I was immediately at home ... I think I was about to lose my mind :o but the parents here saved my sanity ;)

Thanks, Jeff :cwds:

[lynn]

The CDE who taught our classes after diagnosis mentioned it in passing. I scribbled it down in the margin of my notes and went home and checked it out. I didn't find the forum immediately, but the rest of the site is priceless in the amount of information provided. Then the form just added layer upon layer of real-life help and learning.

[Kalebsmom]

I found it on my own, but the endo now has booklets about CWD at her office. I am not sure if she hands them out at new dx or if they are only on the table. Either way, I have seen people take them.

[caspi]

We found a flyer in our Bag of Hope we received in the hospital at dx. I logged on within a day of two of returning home from the hospital. I am so grateful that I received that flyer!! CWD was such a huge help to us in the first few months! :cwds:

[Marcia]

CWD was listed as a resource on paperwork from the hospital at diagnosis. I am so glad I came here. Thank you, Jeff.

[sisterbeth43]

I heard about it at a support group sponsored by our then all voluntary JDRF. We didn't even have a computer at the time, but I wrote it down and as soon as we got the internet I started chatting (after having my teenage dd show me how to sign in).

[kierbabi09]

I used google, I was looking for teens with diabetes and I found CWD somehow. Boy, am I glad that I did:)

[tesa]

I also found it on my own as soon as we got home from the hospital. I was gathering any kind of info that I could and thankfully happened upon CWD! I have made so many great friends from here that have helped me through our "almost" first year! :cwds:

[ehsmum]

Hi all, I'm new, just found this site today. I found it via the disboards while I was researching taking my newly diagnosed son to Disneyworld.

My son Harry is 8 years old and was diagnosed 2.5 weeks ago. We're still pretty overwhelmed and just trying to sort it all out.

Looking forward to meeting you all and getting some great advice :).

[sugarmonkey]

I found it through a google search. I think it was about a year after dxd. Wish I'd found it sooner.

Thanks for setting this site up Jeff.

[123src]

I found this site through Google. Wife with type 1, and 6 year old son Dx'd one week ago yesterday. Just looking for some advise and other's experiences and wisdom.

[TerpSteph]

I did a search after Matt was diagnosed and originally went the the ADA forums. Someone there recommended CWD as another source and the rest is history. I remember bgallini (who helped me greatly with our effort to get SAT accomodations) and Sean's Mom from those ADA boards. :)

[Bill]

Although we had seen the web site listed in materials we received from our D-team, it wasn't until I did a couple google searches for more information on D that I started to poke around here more. CDW is the best resource around :)

This site should be nominated for a web recognition award given its impact on all of us.

[Mom2Will]

I found this site by typing in Will's symptoms :( Found it again in our Bag of Hope from the hospital. Was told again at our first endo appointment from the PA to check it out for support. Told once more at the meeting with the dietitian. At an appointment with our pediatrician his nurse practitioner told me the site was a wealth of information. The PA, dietitian and the nurse practitioner all have children with diabetes.

[joan]

Last summer my son was getting ready to be a counselor in training at a d camp. I googled the d camp to get some info. and this forum came up. The discussion was not positive and it upset me. Was my son going to the right place? Was he going to be safe? I was worried. When he came back he was such a changed person in a positive way. He loved camp and believed it was really important for kids. He had a great time. He was safe and he could not believe how organized it was. After he came home I thought if I could ever add something positive to the forum I would and here I am addicted. I love all the responses and I love learning from everyone. Despite the fact we have been dealing with d for 15 years (son 17) I continue to learn and thanks to all of you.

[JeremysDad]

Google for me too. I wanted to find out more about what my family will be facing. I have posted on several boards over the years and seeing the number of articles and posts on the CWD board, I knew it was well used.

[busy mom]

Recently through Google search as well. Wish I would find it sooner to know what to expect. We are into our 5th year now.

[kyles_mom]

I found this site (probably through google) while we were still hospitalized. I'm forever grateful....so much information especially in the beginning. I highly doubt we would have started pumping when we did, which has been a godsend! At first it's overwhelming.......hard to believe we are almost 2 years in :cwds:

[BeerMargaritaMom]

Bunch of drunks sitting around the pool at FFL forced me to join seeing as it was my third year attending the conference! DQ Mom, Ugly shoe...and more that I can't remember their user names. Love you guys. Thanks for bringing me into your online world.:D

[frizzyrazzy]

Bunch of drunks sitting around the pool at FFL forced me to join seeing as it was my third year attending the conference! DQ Mom, Ugly shoe...and more that I can't remember their user names. Love you guys. Thanks for bringing me into your online world.:D
drunks? who you calling drunks??
hic.
(it was fun meeting you too)

[Sarah Maddie's Mom]

Bunch of drunks sitting around the pool at FFL forced me to join seeing as it was my third year attending the conference! DQ Mom, Ugly shoe...and more that I can't remember their user names. Love you guys. Thanks for bringing me into your online world.:D

"Ugly shoe"???

Too funny!

Bennet - avert your eyes!!

[Mikker]

Now that this poll has been ongoing for a bit now, it's a little disheartening to see that nearly 75% of CWD'rs find their way here on their own, or by word of mouth.

For us, it has been the single most important tool in learning to adjust our son's T1D regime, as well as learning to cope emotionally. In my book, hospitals, cde's and our endo's are overlooking a fantastic support resource for their patients.

Let's help inform them! I was previously unaware, but very nicely done CWD brochures and business cards are available for distribution at:

http://www.childrenwithdiabetes.com/feedback/cards.htm

We recently received a number of them and our local endo offices, hospital CDE, and school district head nurse were very receptive and willing to pass them along to newly dx'd families. I would also note that not a one of them where previously aware of CWD.

[kyles_mom]

thank you mikker, I just ordered some cards and brochures. I agree that this is the best resource for parents of newly dx kids (and not so newly dx too). Almost 2 yrs in and I still return for information. Maybe not as much as in the beginning, but every time I check back in I learn something new.

[suz]

I saw a recommendation from the ADA message boards.....

[Ivan's Mum]

since august 2006 - there was so little traffic going through here back then! he'd been DX'ed in June of that year so I spent a lot of time on my dial up internet connection finding all the things we DON'T have in this country. I wondered what this weird 'carb counting' talk was and all the IOB - I:C (thought that was a frowning face) etc was.

Ahhhh, how times have changed.

[Ivan's Mum]

I've also put in a request Todd but hope they send more than 100 because I'm happy to ship them off around NZ so everyone can get help 24/7 if needed.

[giddyup_go]

Right after my daughter was diagnosed (she was still in the hospital) an on-line friend of mine from an unrelated forum told me about this place. Lisalotsamom...mom to 7 kids, two of whom now have been dx. She has helped me more than she'll know with the emotional aspect of all of this.

I've since told other parents about this site as well as educators. This is a great place to learn from other parents who have been there & done that. :)

[KHM]

First through a search engine---I looked through resources and said hello but I've not been much of a forum kind of person before. When we continued to have trouble stabilizing my daughter's bg, her teacher told me about CWD which she had discovered when her mother was thrown into by Type 1 by chemotherapy for pancreatic cancer :(

CWD has been more helpful to me in these last few weeks than any other resource. So grateful.

[Droz]

Google I love this site its great

[megdef98]

Our son's Endo suggested we visit the forums. I posted for the 1st time yesterday and was very hurt by some of the responses I was sent. I even had my thread closed by Jeff. Fortunately, I had some Moms in "my situation" that sent me private messages of encouragement. I believe I will let my Endo know about my experience and that he needs to warn others that they are not always welcomed with open arms:(

Meg
"Gehrig's Mom"
Being Screened Since August, 2009

[Sarah Maddie's Mom]

Our son's Endo suggested we visit the forums. I posted for the 1st time yesterday and was very hurt by some of the responses I was sent. I even had my thread closed by Jeff. Fortunately, I had some Moms in "my situation" that sent me private messages of encouragement. I believe I will let my Endo know about my experience and that he needs to warn others that they are not always welcomed with open arms:(

Meg
"Gehrig's Mom"
Being Screened Since August, 2009

Perhaps the remedy is to suggest that your endo actually diagnose a child with Type 1 diabetes before referring them to CWD?

[lauraqofu]

I found this website through Google when I was searching my daughter's symptoms last weekend trying to decide whether I should take my daughter to the ER or wait until her doctor's office opened and make an appointment. After reading through several diagnosis stories, that were exactly what she was going through, I took her to the ER and within hours we were in the PICU an hour away from our tiny hometown hospital.

The educators at the hospital also recommended the site a useful resource.

[Jeff]

As I responded privately to megdef98, due to serious problems in the past, the policy here is that questions about diagnosis are left to the family and their physician. I provided links to several resources for Meg in a private message, including various clinical trials for newly diagnosed kids designed to preserve islet mass.

[megdef98]

As I have stated earlier, I am not seeking a diagnosis. Also, it was so kindly pointed out to me that this was a "public forum" and anyone can have an opinion. I also really don't need to see anything I wrote quoted to me.I typed it, I know what I meant by it.

Meg

[Sarah Maddie's Mom]

As I have stated earlier, I am not seeking a diagnosis. Also, it was so kindly pointed out to me that this was a "public forum" and anyone can have an opinion. I also really don't need to see anything I wrote quoted to me.I typed it, I know what I meant by it.

Meg

The reason people quote other posters is to identify to whom they are addressing their comments. It's not personal. It's how a large forum like this works.

[Tuff]

Through George Canyon (country singer with type 1 diabetes). He promotes this site when touring the country (Canada) with Animas! :D

[Kaylee's Mom]

I was searching the internet ... I have seen info at the endo about CWD but it has never been mentioned. This site has been so great and supportive .. they really need to tell parents when in hospital ...

Crystal

[actualreality86]

From a friend who wrote me a supportive letter and then listed the website. Though I've just started the forums, I've been on the chat for many years since I was 13. I'm 24 now.

[Miike]

I began looking for information on pumps around 10 years ago. I used to chat a lot but the chat has been less busy.

[FloridaMom]

I found it through someone who has a CWD. However, the next time I was at our endo's office, I saw information about this site. So really it's both.

[MamaBear]

I found it myself with Google. On our first horrible scary night home from the hospital, I couldn't sleep,got online and searched for some kind of support group. I couldn't even tell you what exactly I typed in,but it led me here.

[Caleb's*mom]

My son's endo told us about CWD

[lotsoftots]

I found this site while I was sitting at my daughter's hospital bed one day after she was dxd..I was doing a search on anything d related and I found the chat room..I still remember talking to Beth and Chris that day and a few others..they will never know how much they helped me that night!!!!

[DsMom]

Was listed on some info we received at the hospital at dx--but was so overwhelmed I never really checked it out until a couple of months ago. BIG mistake that I waited. All that time, I had so many questions I didn't feel my endo could answer--and this was the place I could have gone!! Still have tons of questions and am so grateful I finally checked it out. People here are the best!:cwds:

[Timmy Mac]

none of the above.

I found the CWD site on an advertisement on a bottle of sugar free syrup. A few clicks later, I found the forum :D