Honeymooning?

[Reagan's Mama]

I am realy beginning to wonder if we are honeymooning.

We are 6 months past dx, isn't that a long time?

For the last few weeks we couldn't get out of the 300's. Now all of a sudden we are having tons of 80's and 90's. Meals that would typically make her higher are just moving her 10.

I feel odd asking about it and am by no means complaining. It is just very odd all of a sudden to have almost perfect numbers.

The last 2 nights we have had to treat her in the 90's to get her through the night and we haven't done that for months. She is typically high at night.

What gives? How long after dx was honeymoon for you?

[MrsBadshoe]

My endo has told us that typically honeymoon ranges from 12 to 18 months. Both our children were about the 12 month mark. That was the time period that there insulin needs increased dramatically. During the honeymoon phase your child's insulin needs will continue to ebb and flow which will cause unsustained periods of highs.

Like I've mentioned previously the honeymoon has been described to us as the time your insulin needs are lower then 1/2 your weight in kilos.

Example. Child's weigh convert to kilos and then 1/2 that number is the unit of insulin your child should be using on average. When your child's needs equal or surpass that number you are officially done with the honeymoon phase.

[LantusFiend]

My insulin needs go up and down and all around- I mean, I don't eat the same amount every day. I weigh about 45 kg, and yesterday I injected 13.5 units of insulin total, the day before 17 units, the day before 21. So not a high average. But there are plenty of weeks when I inject 18 or 20 lantus alone, for a total of about 40 units per day.
My endo says that even people who have had diabetes for a long time can have fluctuating insulin needs.
The only real way to know if you're producing insulin is a c-peptide test.

[Riley'sMom]

hi amy-
we are 12 months into this and still honeymooning. we've been through the ups and downs you describe- nights of 300s and then nights of 90s and having to give juice. we pretty much have episodes of both each week. her blood sugars are pretty eratic, although her last two AICs were 7.2 and 7.1. our endo also said this can last 18 months. riley is 27 months old, weighs 23 lbs, and usually only has a TDD of 4 1/2 units. (she also has down syndrome, so she is very small for her age, even though she eats like a horse!). last week i thought it might be ending, but this week her BS are better, so who knows!

[EmmasMom]

We've had some similar issues this week. Emma's not spiking after she eats like she normally does. It's really bizarre to watch her monitor and not see a post meal spike every time she eats! (I am giving insulin before she eats, but that has never stopped the spike before)

I've been giving her extra carbs after almost every meal to keep her in range, this has never happened to us before. Even if she does spike, she comes back down faster than normal, and corrections drop her too much. Very strange. She never had a typical honeymoon, and it seems unlikely almost 2 years after dx's.

She's on a lot of insulin for her size and age, (anywhere from 11-15 units a day currently, she weighs 15kg/33lbs) but she's always needed that much until this week. I guess I may have to adjust her carb ratio, but I keep thinking this is just a fluke and things will be back to normal any day.

She's been very well controlled lately, (4 months with a cgm has made a huge difference!!:D), so I wonder if her little pancreas finally decided to help out.

[Twinklet]

I posted about this below. Emily is 10 months into this and is still most likely honeymooning. Currently her insulin needs are WAY low compared to what they have been. But I know that they'll swing back up in a few days, probably.

[Adinsmom]

"Honeymoon makes it sound like a nice thing." thats what my Mom said after my Aunt (a nurse with D experience) and her discussed the randomness of Adins numbers one day.

[Rachel]

"Honeymoon makes it sound like a nice thing."

I think this is the worst name ever. It is really more like a separation, leading to an inevitable divorce. Wish it were more amicable for us all.:rolleyes:

[Hollyb]

The honeymoon could certainly go on past 6 months but the other thing is... there's a guy on the diabetes discussion forum that says their members report the most unsettled BGs in March and November -- ie change of season. Which struck me, because Aaron's had a crazy run of first persistent low numbers, and then the last two days high. Really hard to sort out!