View Full Version : hiya im new.
kim03
02-25-2007, 06:20 AM
hi everyone im new here im kim from scotland,
i have a 17 month old daughter that was diagnosed with type i deabetes a few weeks ago,im finding it all so hard and im still kindof in shock. bethany screams when me and my husband give her the insulin at bed time but is ok with the finger pricking. shes only on 3 units of insulin once a day at the moment but i think she will be going on to 2 injections a day this comming week which im gonna hate i know its whats best for her but just finding it all hard. im not even too sure about what foods she can have and the whole carb thing. she used to love her milky bar chocolate cant beilve that she cant have sweets etc as she used to.
sorry for blethering on :)
x
Jackie UK
02-25-2007, 01:44 PM
Hi Kim
Have you been told about carb counting and what she can or cant eat? Actually some chocolate now and again isn’t too bad because is very slow to absorb and small amounts dont spike the BG levels up, which is why chocolate should never be given to treat a hypo, expect when there is nothing else available. We used to use chocolate, tiny pieces a few chocolate buttons etc before we went to the park or on a walk. Though not if the blood sugar was already low.
You will find stages of grieving. Grieving for the loss of your child's health. Have you had anyone to talk to about the diagnosis? Even though there is no reason why she will not be healthy in the long run keeping her that way takes a deal of time and effort and it will take time to come to terms with this. There are parents with very small children on the UK mailing list who would be able to talk you through the problems of dealing with very young children at diagnosis
I just wanted to let you know that although this message board is not used that frequently by UK parents, there is a Children With Diabetes UK email support list. Which I run. E-mail lists help provide support and news to people living with diabetes. It is very busy and active with over 130 UK members. Lots of parents with children ranging from babies to 18 years olds. Many of the children are now pump users, so a good place to ask about insulin pumps if you are considering this as a therapy. Lots of children on Mixtards and Novorapid and Levemir or Lantus regimens. There are several parents with children who are the same age as your daughter. We also have four Scotish families two have insulin pumps for their children.
Here is some information here about how to subscribe to the email list and details of how the email list works.
http://www.childrenwithdiabetes.com/uk/
You can subscribe to the list from a link there, or go to the main CWD on line website and find mailing lists, look for the heading "Geographical Mailing Lists" then you will see a link to the UK parents email support list. Make sure it is the UK parents list.
If you have any problems subscribing, I can manually subscribe you to the list. To remove yourself from the mailing list, should you need to, there is a link at the bottom of every mail from the support list. Click and you will be unsubscribed immediately.
Any problems subscribing let me know.
jackie.jacombs@childrenwithdiabetes.com
Jackie Jacombs UK Parents List Manager.
__________________
Jackie, mum to twins Sasha and Beckie 12 yrs, Sasha Dx'd diabetes 1999 age 4, both twins coeliac, also mum to Danni and Nikki, Sasha, pumping Paradigm 712April 2005
hi everyone im new here im kim from scotland,
i have a 17 month old daughter that was diagnosed with type i deabetes a few weeks ago,im finding it all so hard and im still kindof in shock. bethany screams when me and my husband give her the insulin at bed time but is ok with the finger pricking. shes only on 3 units of insulin once a day at the moment but i think she will be going on to 2 injections a day this comming week which im gonna hate i know its whats best for her but just finding it all hard. im not even too sure about what foods she can have and the whole carb thing. she used to love her milky bar chocolate cant beilve that she cant have sweets etc as she used to.
sorry for blethering on :)
x
theo'smummy
02-25-2007, 03:57 PM
:) Hi kim
I know exactly how your feeling my son was diagnosed at 18 months old .He was started on 2 injections a day and is now on 4 .He is now nearly 3 and will be starting on pump therapy this week.
There is light at the end of the tunnel i know it doesn't seem it now.We were devasted when theo was diagnosed as he was really poorly when we first found out ( i have never been so frightned).Does your area have a support group ? i have found comfort from my support group although theo is the youngest child on my DSN books .It is nice to find someone with a child similar age to me.:) :)
kim03
02-25-2007, 07:10 PM
:) Hi kim
I know exactly how your feeling my son was diagnosed at 18 months old .He was started on 2 injections a day and is now on 4 .He is now nearly 3 and will be starting on pump therapy this week.
There is light at the end of the tunnel i know it doesn't seem it now.We were devasted when theo was diagnosed as he was really poorly when we first found out ( i have never been so frightned).Does your area have a support group ? i have found comfort from my support group although theo is the youngest child on my DSN books .It is nice to find someone with a child similar age to me.:) :)
hiya hun!! thank you for replying it feels so good to here from other mums that are going through the same its hard to find someone to chat to about it all because no one seams to really know what its all about im only just learning myself :)
how do u think ur lil one will get on with the pump ive heard of it on the net etc but not really sure what it involves do u still need to have injections with it?
my daughters diabetic nurse said that bethany has 2 choices one to go on 2 injections a day and have very strict feeding times etc where she will HAVE to eat every meal etc or she can go on 4 injections a day at every meal and the meals can be a bit more relaxed. i think we'r gonna go for just 2 as bethany screams the house down and i dont like to see her like that maybe when shes a lil older wel do 4 but saying that by the sounds of things dont think we can say that coz it all depeneds on her we might have to do 4 sooner agghh h i just dont know its all so confusing lol. i know il get used to it all but just finding it hard.
take care!!!
hope the pump goes well
kim03
02-25-2007, 07:14 PM
Hi Kim
Have you been told about carb counting and what she can or cant eat? Actually some chocolate now and again isn’t too bad because is very slow to absorb and small amounts dont spike the BG levels up, which is why chocolate should never be given to treat a hypo, expect when there is nothing else available. We used to use chocolate, tiny pieces a few chocolate buttons etc before we went to the park or on a walk. Though not if the blood sugar was already low.
You will find stages of grieving. Grieving for the loss of your child's health. Have you had anyone to talk to about the diagnosis? Even though there is no reason why she will not be healthy in the long run keeping her that way takes a deal of time and effort and it will take time to come to terms with this. There are parents with very small children on the UK mailing list who would be able to talk you through the problems of dealing with very young children at diagnosis
I just wanted to let you know that although this message board is not used that frequently by UK parents, there is a Children With Diabetes UK email support list. Which I run. E-mail lists help provide support and news to people living with diabetes. It is very busy and active with over 130 UK members. Lots of parents with children ranging from babies to 18 years olds. Many of the children are now pump users, so a good place to ask about insulin pumps if you are considering this as a therapy. Lots of children on Mixtards and Novorapid and Levemir or Lantus regimens. There are several parents with children who are the same age as your daughter. We also have four Scotish families two have insulin pumps for their children.
Here is some information here about how to subscribe to the email list and details of how the email list works.
http://www.childrenwithdiabetes.com/uk/
You can subscribe to the list from a link there, or go to the main CWD on line website and find mailing lists, look for the heading "Geographical Mailing Lists" then you will see a link to the UK parents email support list. Make sure it is the UK parents list.
If you have any problems subscribing, I can manually subscribe you to the list. To remove yourself from the mailing list, should you need to, there is a link at the bottom of every mail from the support list. Click and you will be unsubscribed immediately.
Any problems subscribing let me know.
jackie.jacombs@childrenwithdiabetes.com
Jackie Jacombs UK Parents List Manager.
__________________
Jackie, mum to twins Sasha and Beckie 12 yrs, Sasha Dx'd diabetes 1999 age 4, both twins coeliac, also mum to Danni and Nikki, Sasha, pumping Paradigm 712April 2005
hiya hun!!! thank you for ur reply means alot so glad ive found people to chat to that understand what its like etc. i do feel really sad abouth the fact that shes got D everyone says to me that she will lead a normal life but i just cant see how she will be the same as the child in school that has a bag full of cola bottles lol just feel like shes gonna loose out on so much shes my only child and ive only ever wanted one ive looked forward to spoiling her etc and i can still do that but just a bit different to how i might have sometimes.
sorry blethering on a bit here. :):):)
ok hun will have a look at that site and join is there more people to chat to on there from the uk doesnt seam like theres all that much here. :)
well thank you again
love
kim
xx
theo'smummy
02-26-2007, 06:47 AM
hi kim
he is looking forward to going on the pump we are really excited.he won't need any more injections now which is a relief as he hates them to.i really had to fight to get him the the pump but eventually the fight paid off. I pop here from time to time so if you need a chat im here .