PDA

View Full Version : Any non-pumpers?


A&Ds Mommy
01-15-2007, 04:13 PM
Just wondering how many of you have children that aren't using pumps.

Dylan isn't on a pump and I wonder when the endo team will suggest he goes on one. Is there a certain age? insulin regimen they need to reach/be on?

allisa
01-15-2007, 04:17 PM
We are not yet on a pump...Ty had NO interest and since it IS his body, I wnated him to on board for it....he wants it now and are in the process of research/etc....hope to be on pump by spring.....

Numbers & A1C have been okay without pump

MrsBadshoe
01-15-2007, 04:17 PM
I think with most of us we heard about the technology and asked our endo about it. All endo's are different as what they require you to do or the regiment you need to be on. Some endo's won't let people in certain catagories go on the pump at all...certain age, certain length of time with D, etc.

My first on the pump was 1yr DX he was 10 yrs old and we were on NPH, novolog prior. I've heard that some Dr's require being on lantus for a certain amount of time prior our Dr had no such requirements and is very pro pumping.

Lots of parents with younger babies and toddlers enjoy being able to have the pump right away as it makes D easier to manage in unpredictable lives of the little ones.

Kaylee's Mommy
01-15-2007, 04:26 PM
Kaylee's endo requires at least 6months on shots first.. so you know what you are doing.. but Kaylee was able to get a pump faster.. she was approved for the pump by 3months and pumping at 6months post dx.. it took a while to get to classes and insurance approval and such.. some endo's do it on a case by case basis.. Kaylee just needed so little insulin, especially for correction that it was hard with syringes.. she wasn't sure about the pump.. but being only 3yrs old I made the decision for her.. definitely the best choice we've made.. she's all for it now and loves her pump:) and all the great accessories:)

Deannas mom
01-15-2007, 04:35 PM
My daughter was DX last July. She is 10 yrs old, will be 11 on the 25th.:) She is still on MDI (Novolog and Novolin NPH). on our last endo apt. which was two weeks ago, Deanna told her Dr. that she was ready for the pump. Our endo is pro pump, somewhat, she wants deanna to first go to lantus and novolog, so we can start doing basal/boulus (I know I spelled that wrong) right now we are on a sliding scale, and deanna is on a strict meal schedule. We are having great control with MDI. her last A1C was 6.3! we know going on the pump will not give us any better control, but it will give Deanna more freedom, Ie. sleeping in late, eating when she wants, what she wants etc. Im scared to go to the pump actually, you know the saying, if its not broke don't fix it. :rolleyes: Deanna's numbers are great, shes hardly ever over 200. But it is her life, and she wants to have the freedom that you get with the pump. We will get the same control with the pump, not right away, starting on the pump is a ruff road, but she has made up her mind. and I support her choice. we are hoping to be on the pump by this summer.

Mojo's mommy
01-15-2007, 04:45 PM
We are not on a pump and I'm still not sure if we will ever make that step. Courtney has had "D" for 2 years now. She shows no interest in it at all when mentioned. I think as she gets older she may realize that it might be beneficial to her. Hopefully! Until then we have no choice but to hunt for an unpoked arm,leg or bum for the next however many years!:(

lynn
01-15-2007, 04:48 PM
Nathan is three and a half and was diagnosed last February. I brought it up at our last appointment in December. I expected to have to convince the doctor somewhat. At least discuss the idea. They give us a paper to fill out prior to the appointment and one of the things to put on it is anything we would like to talk about. I wrote that we are interested in a pump. The nurse set us up with the first class before we ever saw the doctor. He saw that we were set and gave a little schpeel about it. That was it.
If you want to try the pump then I would suggest you bring it up.
Lynn

Adinsmom
01-15-2007, 05:03 PM
Adin was Diagnosed at the end of August 2006. We are MDI.

Haley'sMom
01-15-2007, 05:11 PM
We just started pumping on Dec. 19th. Haley wanted to. She wanted the flexibility. And, I wanted it too. She was diagnosed in July. Nobody offered it to us, though. I had to ask for it. I asked the doctor if she could get a pump and they agreed that it was a good idea. I called the pump company and asked what they needed and we went from there. The process of getting a pump and getting hooked up was only about 2-3 weeks. Prior to pumping, we were on NPH and Novalog. And, we had just started using Novalog.

georgia
01-15-2007, 05:18 PM
my 3 year old was diagnosed in june 2006 and we are on MDI. Our endo said we'd discuss the pump around 6months, our appt is in feb. i kind of have mixed feelings about a pump. I figure we'll be dealing with this disease for a long time and eventually we will pump but I am no in a rush to do so. She takes her shot pretty well, and I am not sure about her being hooked up to a machine right now. I think when we do go to pumping we probably will like it, but I am not quite ready for it.

Mama2H
01-15-2007, 06:03 PM
We are currently struggling with our Endo trying to get Hailey the pump. At the last appt they wanted her on MDI for a year :O before they would even consider the pump. I went through my big schpeel about all of the benefits that I have read on here :cwds: and they said they would re evaluate at her next appt if Hailey was taking her shots better. They said they wanted her out of the honeymoon first which of coarse I countered with the information about the pump helping extend the honeymoon. Of coarse I believe Hailey has been on too much insulin to be considered honeymooning.

wendyc
01-15-2007, 06:28 PM
Abby was diagnosed at age 4, in June '05. We were on a Lantus/Novolog regimine. She went on a pump in Feb. '06, while still in honeymoon.

She did well with the shots, and we had fairly good numbers, but we had done a lot of research and really thought the pump would work well for not only her, but everyone involved in her care.

We asked our endo for the pump and she felt we were ready. Our practice is very pro pump, but they don't push you into it. They let you go at your own pace and let you decide if you are ready. It is a lot of work in the beginning, but the rewards do pay off.

Boo
01-15-2007, 06:32 PM
My son was diagnosed at age 8 almost 3 years ago. He has no interest in the pump. We have talked to the endo about it (but only when I brought it up), and they would be in favor of it. However, he is the one that would have to wear it 24/7 and as much as I'd like it, I don't want to force him to do it. With our endo clinic. it seems to be the parents/patients that make the initial push. They do like you to have at least a year of MDI experience first.

Ellen
01-15-2007, 06:43 PM
My daughter was DX last July. She is 10 yrs old, will be 11 on the 25th.:) She is still on MDI (Novolog and Novolin NPH). on our last endo apt. which was two weeks ago, Deanna told her Dr. that she was ready for the pump. Our endo is pro pump, somewhat, she wants deanna to first go to lantus and novolog, so we can start doing basal/boulus (I know I spelled that wrong) right now we are on a sliding scale, and deanna is on a strict meal schedule. We are having great control with MDI. her last A1C was 6.3! we know going on the pump will not give us any better control, but it will give Deanna more freedom, Ie. sleeping in late, eating when she wants, what she wants etc. Im scared to go to the pump actually, you know the saying, if its not broke don't fix it. :rolleyes: Deanna's numbers are great, shes hardly ever over 200. But it is her life, and she wants to have the freedom that you get with the pump. We will get the same control with the pump, not right away, starting on the pump is a ruff road, but she has made up her mind. and I support her choice. we are hoping to be on the pump by this summer.

Hi. We'd love to have you join our pump support group in Boca Raton this Thursday night at 7:00 p.m. (I've been attending this group for 13 years :-). It's a very warm, empowering and loving group. It's facilitated by Dr. Wendy Satin Rapaport - a psychologist whose focus has been on diabetes for decades. She's a gem.

Here's the notice:

University of Miami
Diabetes Research Institute
Insulin Pump or would be pumpers support group Meeting!!!
Thursday, January 18, 2007.(3rd Thursday)
7:00 p.m.
WHITEHALL Nursing Home

HAPPY NEW YEAR
..
In the spirit of New Years Resolutions, even the New York Times is reporting the debate over whether we actually have free will…in making our decisions and following through on them. Do we actually have “veto power” over what we sense ourselves doing?
Meanwhile, let the world debate..you, too, if you wish…but do not forget that there are some themes that are timeless in aiding our success.
STRUCTURE
Employ “external” feedback systems and rewards,i.e.weight watchers, weighing in at doctors or nutritionists offices, appointment times with trainers or friends to exercise, using frozen dinners for portion control, making a commitment to another person of your intent to diet or exercise.
SELF-AWARENESS
Do a diary of what habits are in the way and which positive ones you want to begin to create. Become aware: eating associated with stress , alcohol, or fatigue; having a drink everyday when you come home (try alternating exercising before you come home or going straight to the bedroom to lie down when you walk in and having family members snuggle next to you); straining for perfection or extremes in dieting rather than “lifestyle.”
SLOW DOWN..LIVE IN THE PRESENT…FOCUS…CHOOSE ..Be RESILIENT (not devastated by backward slides)

I look forward to seeing you. I, Dr. Wendy Rapaport, will be facilitating the group. You can reach me at 561-4778595

A&Ds Mommy
01-15-2007, 07:39 PM
Thanks everyone for your quick responses. I guess DH and I really need to do some research and see if it is worth us asking about at this point. He does do well with the shots and has been eating on the schedule he is on for the diabetes since he was a year old (just the routine/schedule we already had in place).

May I ask what MDI stands for?

Oh, and Dylan is on Novolog and Lantus.

dvane
01-15-2007, 07:54 PM
Ethan ws diagnosed 11/06 and is 2.5yrs. We were told we had to wait a year however, I think we are going to let him make that decision when he is old enough. He does great checking his own b/s so when time comes for him to do his own injections he can decide.

JanetM
01-15-2007, 08:04 PM
Interestingly, it was our endo and nurse who first suggested the pump, after only about a month dx, there was no "waiting period" for any reason. Our daughter was 13, just turned 14 at the time. Is your endo a pediatric endo?

MamaC
01-15-2007, 10:32 PM
Tom does not pump (8 months since DX) and when I talked to him about it yesterday, he said he's thought about it and doesn't want it (he's 14). That may change when he leaves the honeymoon and has to take more injections daily - he's only on one shot at this time. Right now he's on a fairly strict schedule for eatig and sleeping but we do work around it sometimes when the BG readings are right.

MDI - multiple daily injections?

Becky

wendyc
01-15-2007, 11:44 PM
May I ask what MDI stands for?

Oh, and Dylan is on Novolog and Lantus.

MDI=Multiple daily injections.

If you are on Novo/Lantus you're a MDI'er. It has been refered to as "pumping without the pump," because you are doing what the pump does just with needles, and the Lantus covers the basal.

hallenbeckfamily
01-16-2007, 12:22 AM
We are not pumping yet. Dr is very for it but wants us to wait 6 mon after dx. Chris is very excited too get the pump he askes me ALLLL the time if its time for the pump yet. Jennifer

Momof4gr8kids
01-16-2007, 12:47 AM
We do pump now, but haven't always. Our insurance required we wait 6 months. I wasn't even sure I wanted it until around the 6 month mark Julia started school, and even though I had thought about bringing it up to Julia's endo I just wasn't sure. Julia has wanted one since summer camp back in July. She saw some kids using them, and got to look at one that a rep had. The first appointment right after school started, I asked about it, and started in on the big desision of which one. By October I had decided, and started the paper work. I was really nervous waiting for it, and almost called the whole thing off. I am glad I didn't. It is more work in a way, but we get control like we've never had, and specially with the way Julia's insulin needs are always changing. The pump just makes it so much easier to correct, and we have been able to correct numbers that we could before, without lows at least. It is really something that both the parent and child need to be on board for unless the child is to young to decide. It takes a lot of energy, and isn't something you should rush into, or feel preasured to do, IMO at least.

caspi
01-16-2007, 04:14 PM
Our endo doesn't recommend the pump until the patient is at least 10 and 1 year post-dx. Since Cam is only 8, we'll see what happens when the time comes. However he has said he has no interest in it and doesn't have any issues with the shots. He's on Humalog and Lantus.

Oh, and I also didn't know what MDI stood for until today - LOL!!! Guess we're part of the MDI'ers! :)