Boy that school is really giving me trouble!

[EmeeSu]

I wrote a thread about a week ago about the school wanting orders from the doctor for all the different types of bolus options on Matthew's pump. Well, I called the endo's office and the nurse got on it right away, but the copy she sent me in the mail was not what she faxed the school! Why did she do that???? My copy mentioned any type of bolus. The one she faxed to the school didn't mention it! :mad: So I went around and around with the Diabetes Educator on the phone because I insisted the form indicated the bolus' only to find out they didn't have the same copy as I. Then the diabetes educator called my endo's office. She didn't even ask me if she could! At that point, I just quit arguing because I was so frustrated.

Matthew was going so low in the afternoon. So, I told the nurse's aide to put him on the phone and I told him to do a combo bolus. Bypass them!

ARGH!

I know she is caught in the middle and has to do what the nurse tells her, so I don't blame her. It's just that I am his parent! I can't stand that Diabetes Educator. She talks so condesending to me. I want to tell her off, but for the good of my child, I won't. I am SO trying to be good. :rolleyes:

Thanks for listening!!

[Elias's Dad]

Are there any other resources available in your area (or you think you have the best that's available)? If they're not treating things correctly, maybe a switch is in order. :confused:

[selketine]

I think I posted on your previous post but I get the sense from our own school system that if the parent and child talk on the phone and the child boluses himself a certain way then somehow that is o.k. with them. It is when the nurse or aide has to "approve" the bolus then it gets to be a calculation and they are responsible and so forth.

This seems to be the way the school handles most children who are old enough to give themselves insulin in our school system. Pretty much very little oversight of the actual giving of insulin. I think that works out well enough for older kids - of course no help at all for my son starting kindergarten who cannot calculate nor bolus himself with the pump.

I guess my point being, does it work for you to leave them mostly out of the calculation and bolusing part of his day? The supervising nurse told me I could tell William (when he is older) to give himself X units and he would have to push the buttons on his pump. He could then turn to the "health aide" and ask - "does this look like X units to you?" and she/he says "yes" I guess - and then he can push the buttons to do it.

[EmeeSu]

I guess my point being, does it work for you to leave them mostly out of the calculation and bolusing part of his day?
Carol, I think that when I spoke to him on the phone, it was o.k., or else the nurse's aide was just pretending to ignore...Who knows!

Thanks for the feedback!:)

[selketine]

Well the whole situation IS stupid! I should have said that - I was just thinking about the practical side. Somehow I think there must be rules in place in some schools about who can give insulin or if there is oversight that additional this and that have to be done a certain way. I'm sure the rules are there to protect us and them but they do leave out some measure of common sense.

I just got the impression that the school nurse would be very happy at that point at which William could take care of himself to some extent. I am positive that when he starts Kindergarten he would not be able to read and understand the pump well enough to do boluses without very direct and substantial supervision (not just me on the phone!).

Regardless there is no reason for the CDE to be rude (or for your nurse to have told you one thing and done another!).

[Tamara Gamble]

Your right, it is stupid Carol, shame on them. Hey, missed ya. I don't know Florida law but consider looking up laws in regards to despensing medication for your state, who over see's etc. you may find a loop hole. Also look up the nurses association in your state and see how they wish for things to be handled and what the laws actually are as well as pending issues.

Also ask the doctor for a letter giving you full permission to adjust doses, do combos, the works! Turn this into the school. Then it seems to me that the nurses aide needs to listen to you and your child is not caught in the middle. If the doc won't do this, find one that will. It's bad enough that we have to wrangle with the schools, our healthcare providers should be supporting us, so that we can advocate for our children.

Is it state law in Fla. that the nurse decides what happens or is it more that she has to follow doc's instructions?

Good luck to you and God Bless!

Tami