Can't keep her sugar up????

[Mojo's mommy]

Good morning to all,

I posted last week about how it was driving me bonkers how my 5 year old daughter would not eat and we were getting into food battles continually....Well .....first of all I would like to thank you all for your wonderful support in answer to my post and secondly I am hoping to shed some light on what may be going on!!!!

I could not keep my daughters sugar up yesterday no matter what I did. She was 2.3 after her very sugary cereal , snack on the way to dance and then she informed me that she had 3 hersheys kisses from her instructor before the began their class,, well I figured she would be off all day because of it, took her sugar and I was shocked she was 2.3. Gave her a full juice pack and a snack and she only came up to 6.1. Took her for lunch at Wendy"s and even allowed her to have a frosty. Well , that did not work either.

The evening continued as the day had and post snack before bed she was 4.1 , now this was after a chocolate chip waffle,cheese and a popsicle. Well I paged the doc on call at Children's and she had no explanation what so ever!! I was told to use mini dose glucagon...this worked but was an extremely expensive solution. Has anyone else experienced what I have explained here.

I should add that I am 100 % positive that I did not give her too much insulin, in fact I gave her only half of her usual dose at dinner which was 1 1/2 units oh "N".

Very confused and stressed

~Teri~

[BrendaK]

We've run into low blood sugar problems before right before Carson would get the stomach flu. The food wouldn't absorb into his system and sugars would be low a day or so before we even knew he was sick.

We have also very successfully used the miniglucagon dosing when Carson has been sick with low blood sugars. I'm just curious as to why this was such an expensive solution for you??? Is glucagon more expensive where you live, or does your insurance not cover it? We always have glucagon wherever we are and have prevented some ER visits by using the minidosing.

I hope you are able to figure out the low sugars and I hope your daughter isn't getting sick!!!

[Mojo's mommy]

the glucagon is $100.00 to buy from the pharmacy. Don't get me wrong the cost is not of any concern , I just would not want to have to use it on a regular basis as it has to be thrown out after 24 hours and another purchased in case of emergency.

~Teri~

[rileysdteam]

We have had the same problem with Riley. No matter what we would feed him, his blood sugars would be low. He could drink 2 juice boxes have fruit snacks and cereal or toast and peanut butter and then still be low. This is crazy and frustrating isn't it. We talked to the Dr. and he said that this is what we could expect from growth spurts. Fun stuff, these days usually only lasts a couple of days for us.

[Mik's Mom]

Hello,

This has happened to my daughter several times as well. At school a few weeks ago, she went to 42 and it took the nurse and myself over 90 mins to get her bs up over 70. No matter what we gave her to eat or drink, it would go up slightly and then back down again. I called the endo and was told that her pancreas was probably producing some insulin and as the nurse gave her the normal does of insulin to cover her lunch, she had too much insulin in her system and that it should get better within a couple hours.

It did get better, but it was a very scary 90 mins!

[mischloss]

She could be starting on the honeymoon phase since she is newly diagnosed. You should have seen my son's dosage and ratio for carbs drop, drop, drop when it kicked in. He was on like 10 units of Humalog in the hospital (ratio like 1:10) and then when we got him home, his BG was getting lower and lower. We had to keep calling the doctor and they kept lowering his dosages and upping his ratio! At one point his ratio for dinner went to 1:50 (still is) since at night he would drop very low if given his prior ratio. So this is all normal (as normal can be for D, right?). The only thing I can tell you is be in constant touch with the endocrine "after hours and evening numbers" if you need to and alert them to any variation in her BG! It will get easier, I promise! ;)