still dazed and confused

[meg'smom]

Hi all,
Well it's been a month since my daughter dx and I'd like to be able to say things are getting better..but... I still feel so damned angry, sad and confused. People around me just don't get it, they think it's just as simple as a shot of insulin and all is well. I just want to scream at them. This was a month ago a child with so much ahead of her, now she can look forword to a life of compromise and control. I know things would be better if could just learn to except her (our) new life , but there is always that BUT!!! Anyone have any suggestions to help with my new reality... Thanks

[Kirsten]

(((hugs)))

Kirsten

[Mom2rh]

What you are feeling is normal...if that's any help.

Just take it a day at a time...and come here for support...we're going through it too. You are not alone...there are a bunch of us stuck in this exclusive club no one wants to be in.

[madde]

Hang in there. Things will get better. The new routines/schedules will begin
to fall into place and not feel so foreign to you.

As time goes on, you WILL feel more comfortable with things. Experience with diabetes seems to bring about a feeling of ease. You will adjust, you will make it work.

And if you ever have a question or concern, that is what all these wonderful people here are for. We understand. We get it. Someone here will be able to lend a kind word of understanding or help you get things into perspective.

I have learned so much from reading this forum.

Much hugs to you and your family.

Take care.

[thebestnest5]

Your post sounds so much about how I felt after Livia was diagnosed. I am so sorry you are going through this. I went through a grieving process...and I let myself feel sad, hurt, disappointed, and angry. I went through the "bargaining" stage....and jumped back and forth between stages of grief. I leaned on my faith...but at times, I just wanted to tell God that I was going to hold my breath until he took diabetes away. I remember getting the diagnosis in the Ped's office and the Ped was talking. I was barely listening the thought that was running through my head was "...I am not doing this! God, I'll walk to the hospital and this "diabetes" needs to be gone by the time I get to the hospital door...OK, they can just tell me she doesn't have it after they admit her and run some blood tests...I don't want this...this can't be happening...no, not her, not now....why isn't this stinking disease cured already...."

It does get better. I can't believe how "normal" our life is now. In the beginning, it felt like the "new normal" would always have a dark cloud hanging over it....but it doesn't. I can't believe how our family has adapted and adjusted...kids are amazing! The only thing that's different is that when I see the kids playing and giggling uncontollably...I will stop what I'm doing just to thank God for realizing that our life is just as happy as "before". When Liv was first diagnosed it didn't seem possible to have the level of happiness we had "before". It's there; life is wonderful! Right now, when I hear the kids say, "...this is going to be the best Christmas ever..." I know they are right.

Come here and read, ask questions, post...it helps a lot! :cwds:

[Danda]

Hi all,
Well it's been a month since my daughter dx and I'd like to be able to say things are getting better..but... I still feel so damned angry, sad and confused. People around me just don't get it, they think it's just as simple as a shot of insulin and all is well. I just want to scream at them. This was a month ago a child with so much ahead of her, now she can look forword to a life of compromise and control. I know things would be better if could just learn to except her (our) new life , but there is always that BUT!!! Anyone have any suggestions to help with my new reality... Thanks

My DD was dx 28 august. Four days before her dx, a friend of mine told me her 3 year old son was dx with cancer. When my DD was dx I was hoping they get it wrong. After that I decided if I watch over her every minute(impossible) she will be OK. Then came the moment when I had a breakdown for a low of 58 and I scream and crye that nobody get it and nobody care about her than me. DH was so great about all this, he just let me have my moment(talk about more than half an hour) and just hold me in his arms. I was still sobbing when I realise that my dear friend and her child do not have the choice to have 1 shot, or two or 5 shots/day and know they will be fine. She was doing chemo and radiations and chemo and they will not know if her son will be OK. If he will be able to have surgery to remove the cancer. If and how he will be in 3 months, 6 months or 1 year. At list I knew: I count the carbs, I give the shot and the Numbers will be OK.
Speaking about "People around me do not get it", I also was ignorant about what it take to care about a child with diabetes. All I knew was they have to take insulin by injections. I had to "Get IT"(the carb counting, BG checking, worry at 1am, 3am and sleepless nights, and everything else) b/c my DD "get it". So this is no longer an issue for me. I happily explain(4 time if necessary to the same person) that my DD body do not produce insulin, so we have to give her shots and we have to know what she eat and how much. So I finish the short explanation with "Please ask me if she can have whatever she want to put in her mouth, Her life depends on this." Usually people replay: OHH! Is hard work to do this." At list they get IT :is hard :)
I'm three months in this "new normal" and I still get angry for a moment or two, but I remind myself that out there are parents of children that deal with things even harder than diabetes. And I spoke with people who are 5-6 years in this "new normal" and they said they still have moments of anger or sadness or still ask "Why this happened? Why my child?".
Personally I find this site of great help. Here people do "get IT". I hope you will also find help and solace here in this very "exclusive";) but WONDERFUL and AMAZING club.

Take care, Danda