Minimed CGMS, sensors for kids

[5miraclez]

Has anyone heard anything on this? I was talking to our dietitian about wanting to get me and my daughter on the CGMS. She said I should get on it but to wait for my dd. She said they will be releasing shorter sensors in about 90 days. That was something I was worried about on my dd since she is so skinny anyway. I was just wondering if anyone else had heard anything or if I should just go ahead and try to get the regular ones.

[payam7777777]

Has anyone heard anything on this? I was talking to our dietitian about wanting to get me and my daughter on the CGMS. She said I should get on it but to wait for my dd. She said they will be releasing shorter sensors in about 90 days. That was something I was worried about on my dd since she is so skinny anyway. I was just wondering if anyone else had heard anything or if I should just go ahead and try to get the regular ones.


There ARE quite a handfull of rumors going on here and there about MM's next generation sensors comping 'soon'.
I'd go for the existing one. It IS the longest/thinnest between current con mons though. But preventing one single low in a yesr is enough reason perse to get the conmon ASAP. IMNSHO!








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We're on the Sensor!!!
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[Momto4]

I haven't heard that they would be shorter, only that the transmitter would be smaller. The needle would still have to be long enough to reach the interstitial fluid. B/C my daughter's # have been really good so far with the pump, we are going to wait for the smaller transmitter to come out. We looked at it and decided it was just too much on her little body. I really think (or maybe I am just the ultimate optomist) that they will be here early spring. But that is just my feeling from talking to reps, etc. I have no inside knowledge :) - but wish I did!

[Angelsaroundher]

My 9yr old has to be watched like a hawk - her BS drops out of the sky with minimal activity and sometimes by the time she vocalizes that she's low, she's down in the 30's. I've wanted to get one of these units on her but have been told they're not accurate enough for children. I would love to have one on her if at least while sleeping at night - that's the scariest time. Comments?

[rickst29]

I think there's a few more using Dexcom,but there's also a few using Minimed WITH GREAT SUCCESS on young children here, and on the more CGMS-focused Yahoo message board 'group' named 'diabetescgms'. I strongly recommend that both of you (5miraclez, and Angelsaroundher) join that Yahoo group and start reading.

With a child, there's two special things:

(1) What Site to use-- the really successful location seems to be upper butt cheek, children's frontal abdomens and sides just don't have enough fatty tissue to get good readings. Stay away from hip bones, use a "meaty" spot.

(2) Handling the pain on insertion-- With Dexcom, several of use the EMLA-like 'Topicaine' anesthetic gel (Lidocaine 4%) for about 75 minutes before punching the Sensor in. With Dexcom, there's no harm to Sensor life. And at least one adult, Candy Foster, has been using it with Minimed, without any problems. It's cheaper than EMLA, I think it works better. And for our own 'rmcculley2000' (Becky takes part on yahoocgms too, under the same name), it was critical for solving pain and fear and ANGER with her child, who was starting to run away and cry whenever she came around with a new Sensor.

[rmccully2000]

Yes, the topicaine did help, although he never really cried, just complained that he didn't want to put another sensor on. I have a love/hate relationship with it (similar to my feelings about insulin :) ) but I keep in mind that everything is first generation and will improve with time.

Becky,
Mom to Mason, 6

[EmmasMom]

My 9yr old has to be watched like a hawk - her BS drops out of the sky with minimal activity and sometimes by the time she vocalizes that she's low, she's down in the 30's. I've wanted to get one of these units on her but have been told they're not accurate enough for children. I would love to have one on her if at least while sleeping at night - that's the scariest time. Comments?


I don't think there is much difference in accuracy between children and adults as long as you have a good site. I have had mostly phenomenal results on my 28 month-old daughter, and she doesn't have much "meat" to work with.;)
She's always had unstable numbers that require constant testing, and she has no obvious symptoms of hypoglycemia. Life has been pretty scary around our house since her dx's!
The key to this fabulous technology is using it to help you predict future problems. I have my daughters low alarm set at 100, so even if she's dropping very rapidly I can catch the low around 70. The good news is I usually get an alarm while she's still in the 90's, (of course the down side is getting a lot of alarms, but it's worth it!)
I rely heavily on the trend of the graph and the rate of the drop or rise, (as indicated by arrows) to decide if it's time to test and treat. I have been able to cut back on finger sticks, and achieve better control at the same time. Amazing!:)
There are some downsides, but after 6 weeks of using it 24/7 I can't imagine ever going back. The extra insight is so helpful, like getting glasses after years of very blurry vision. It's not as good as lasik, and it even feels like big, clunky nerd glasses sometimes... but heck who cares I can see!!!:p

[MLH]

We are starting on the minilink in 1 1/2 hours (can you tell I am a little excited). I will ask my MM nurse about the shorter sensor. He is fantastic and will tell me.

Any words of advice out there for me? I am afraid to get to excited, because I realize I will probably be getting even LESS sleep than usual,and I am concerned about the learning curve.

All advice will be greatly appreciated!

Thanks!!

[Budapest]

We are somewhere around day 14 with our CGM. We are using the second sensor on our 2.5 yr old and so far we are very pleased. With good calibrations it is right on the ball. The predictive alarm of the new Guardian warns of problems before they happen.

Insertion is not as bad as we thought it would be. So far we inserted both sensors while he was sleeping. Although he did wake up, didn't cry. This is a big achievement b/c he fusses considerably about infusion site changes -- although I think that that is mostly psychological and less so pain related.

[MLH]

We are up and running and so far so good! This is amazing. I can't believe the accuracy!:D

The nurse told me Medtronic is still working on ways to improve the sensor. For what it is worth he said there are many things in the pipeline, but nothing new in the near future as far as he know. :)

[Cheryl in CA]

This is all great to hear! We get our MM kit for my 3-yr-old tomorrow! Keep posting all of your experiences, please? I'm learning from all of you!