Does your Pediatrician communicate with your Endo?

[Sarah Maddie's Mom]

I have always felt that there was a gaping hole in Maddie's health management and have sought recently to fill it by moving Madie's Endo care from Yale to a smaller pediatric endo practice within a general pediatric practice. I did not switch Maddie's primary care to this new practice.

My DH took a call today from our ped who seemed rather miffed that we had switched from Yale to what could be considered to be something of a competing practice ( though my pediatrician's group does not have an endo on the team, so not really competing). Maybe I should have called her when I made the switch, but I didn't think to and I've had my hands full with other family health emergencies.

Now, our pediatrician has never calls me to check up on Maddie, she's been D for almost 6 years or acknowledge that she received her latest A1c from Yale (and Yale did send them to her). I just brought Maddie in once a year for a check up and maybe twice a year for ear-ache or a bad case of poison Ivy.

I guess in a round about way I just asking, "does your pediatrician talk with or communicate in any meaningful way with your Endo?" and to vent how annoyed I am that our Ped is suddenly getting all proprietary with Maddie and her care.:mad:

[Nancy in VA]

My pediatrician doesn't communicate with my Endo. My Endo sends a summary of each quarterly appt to my primary care.

[JacksonsMom]

When Jackson was first dxd I know the endo called the pediatrician to give him a report. I don't think there has been much communication since then because the last time I went to the pedi I had to give them a bunch of current info about Jackson and D. This was for a sick visit. However, during the visit (Jackson had ketones and was sick) the doctor called the endo to give a report on Jackson and make sure there they did everything they should do.

[Sarah Maddie's Mom]

I guess I'm just annoyed that after 6 years of being not really there, suddenly the pediatrician is cranky because (and I may be reading into this) I made a change to try and get my kid better care and didn't get her permission.

At Yale Maddie never saw a Dr. She was nothing but a data point for their research. Just A1c, height weight and a review of her numbers with CDE. With the new practice Maddie is examined by the pediatric endo and then we meet for an hour with the CDE. In other words her whole physical being is examined not just her A1c. More than we got at Yale and more than our pediatrician could provide.

It's not like our Ped was working in any way with Yale to manage Maddie's health care, so why she should care that I switched I don't know.

[JacksonsMom]

I guess I'm just annoyed that after 6 years of being not really there, suddenly the pediatrician is cranky because (and I may be reading into this) I made a change to try and get my kid better care and didn't get her permission.

At Yale Maddie never saw a Dr. She was nothing but a data point for their research. Just A1c, height weight and a review of her numbers with CDE. With the new practice Maddie is examined by the pediatric endo and then we meet for an hour with the CDE. In other words her whole physical being is examined not just her A1c. More than we got at Yale and more than our pediatrician could provide.

It's not like our Ped was working in any way with Yale to manage Maddie's health care, so why she should care that I switched I don't know.

It's odd, why does she care that you switched to get better care for your daughter? It sounds like you definitly made the right decision for her and that's what matters.

[Darryl]

You did the right thing. Your instinct was telling you that her doctor was not attentive to her. I too have little tolerance for doctors who don't think of their patients except in terms of revenue.

We also switched pediatricians, mainly becuase dd's original pediatrician was oblivious to her symptoms and did not conduct a blood sugar test before we walked in, having already self-diagnosed her condition, and asked for the blood sugar test.

We have been fortunate to find a new pediatrician who is also T1, and who supports us tremendously with anything we want or need. He answers emails 7 days a week at no charge between 11 PM and 2 AM. He even emails me every month to ask how dd is doing if he hasn't heard from me in a while. We have no regrets about making the change to a doctor who truly cares and neither should you!

[mom2kenny]

I guess we are lucky ther. Kennys dr is a pediatritian with a degree in endo

[MamaC]

The ped and the endo work about 30 feet from each other. The beauty of an HMO. One will often order tests/take appt's in place of the otherduring vacations, though we always make sure our schedule works to get the quarterly with the endo.

[dqmomof3]

We don't even have a pediatrician. We have an FNP that we go to when needed, and I love her - she actually used to work for our endo, so they know each other well and like each other. Jayden gets a physical most years - we skipped this summer, I think - but usually we need a sports physical or something that gets us to see our FNP.

I think I'm going to start another thread on pediatricians and endos so as not to hijack this one! :-)

[buggle]

It sounds like you made an excellent choice to switch. Our endo doesn't communicate with our pedi, as far as I know. Our pedi called the diabetes center when she diagnosed Brendan and arranged for him to go there immediately. But, I don't think they communicate any now.

We have a great, completely approachable endo. She gives out her phone number on her desk and she answers email quickly -- even on her days off, evenings and weekends. She's great about trusting us and gives us backup when we need it. I stopped dealing with the CDE after only a few weeks and we didn't want to do the classes with the dietician and CDE after the initial classes. Our endo was completely cool with that. So at least at this point, we like minimal contact. As Brendan gets older or his management more complex, we may feel differently. The important thing is getting the support and input that you need for your family. If your current provider isn't doing it, then everyone should not be afraid to switch. We didn't have a commitment ceremony or something. :p

[lynn]

I think it is odd also that the ped. finally wants to be involved. What does it matter to him?
Yes, Nathan's ped. and endo. communicate regularly---they are brothers!

[mom2Hanna]

I have always felt that there was a gaping hole in Maddie's health management and have sought recently to fill it by moving Madie's Endo care from Yale to a smaller pediatric endo practice within a general pediatric practice. I did not switch Maddie's primary care to this new practice.

My DH took a call today from our ped who seemed rather miffed that we had switched from Yale to what could be considered to be something of a competing practice ( though my pediatrician's group does not have an endo on the team, so not really competing). Maybe I should have called her when I made the switch, but I didn't think to and I've had my hands full with other family health emergencies.

Now, our pediatrician has never calls me to check up on Maddie, she's been D for almost 6 years or acknowledge that she received her latest A1c from Yale (and Yale did send them to her). I just brought Maddie in once a year for a check up and maybe twice a year for ear-ache or a bad case of poison Ivy.

I guess in a round about way I just asking, "does your pediatrician talk with or communicate in any meaningful way with your Endo?" and to vent how annoyed I am that our Ped is suddenly getting all proprietary with Maddie and her care.:mad:


Your ped needs to get over herself. I know our ped gets Hanna's info from Yale, I was there with my son and checked to make sure they were getting it. My ped refers to CCMC and I gave him an earful (in the nicest way possible LOL) about how horrible our experience was there. I didn't know there were any smaller practices in the state, where do you go now?

[Amy C.]

I can't switch endos without a referral from the pediatrician.

My endo sends a report of each visit to the pediatrician. My son rarely goes to the pediatrician, so I don't if they talk all that much.

[TerpSteph]

We're Kaiser Permanente members and our primary care physician does talk with the ped endo. We fax Matt's numbers to both of them and they consult before making any adjustments. We really love our primary doctor. She's a family practitioner who has been taking care of my kids since they were born. :)

[Brensdad]

Our pedi may be the greatest pediatrician in the world. He does communicate with Emma's endo in Denver and her neph. in Dallas. He's smart enough to handle most problems here locally, and humble enough to tell us when he doesn't know.