We're Real-Timing!!!

[EmmasMom]

We finally got the new Paradigm 522 Real-Time pump this morning. It came in 3 big boxes that were delivered more carefully than I ever thought possible. I received three phone calls and two emails while it was in transit, which was only between 7pm last night and 9am this morning. They wanted to be really sure that we were here to sign for it since the sensors must be refrigerated immediately. The 10 sensors came in a huge ice chest that could've kept them cold for a month, but better safe than sorry! :rolleyes:

I spent time watching the cd-rom about the sensor and transferring all of the settings to the new pump. Looking at the graphs on the pump just makes me giddy!!! I'm sooo excited!!!:D

Emma's napping, but as soon as she wakes I'm putting Emla on her, switching the pump over, (I already changed her site this morning, so I'm just going to re-prime new tubing and hook back up), and then we're going to put in our first sensor!! I really hope it goes well!! I may leave the Emla for longer than usual just to be sure she's really numb because I do not want any more trauma than necessary!

Wish us luck!! I'll post pictures and an update soon!

[melissabeth]

Good luck! I'm so happy for you guys (and a little jealous:rolleyes: )! Let us know how it goes!

[BrendaK]

Yes, we're all quite jealous ;) . Can't wait to see photos!!!

[Adinsmom]

Good Luck. :) Cant wait for an update.

[Momof4gr8kids]

Good luck, and congrats!!! I hope it goes well!!!!

[hrermgr]

Amy- YEAH! This is the pump Teagan will get so I am pretty eager to hear about your experience with it. Good luck and congrats!

[Ivan's Mum]

hi, being new to pumps and all, can you tell me the full name of this pump so I can look it up on line and read about it?

Thnks

[rickst29]

model 522, or 722, with the R/T "feature" add-on. The 722 pump is bigger (fewer cartridge changes), the 522 is smaller (much more wearable for kids).

Minimed also offers a "stand-alone" R/T without a pump, but I don't know of anyone who has it. If you don't want to get a pump, another alternative, IMO more convenient because it doesn't require the separate glue-on of the Transmitter, is the Dexcom system, although it's impossible to get in NZ at this time. A brand new user is currently talking in this other current and very active thread:

http://forums.childrenwithdiabetes.com/showthread.php?t=2153

But your Sig says you don't already have a pump, so if you're gonna get a pump at the same time, then Minimed is a good choice. But Dexcom costs a lot less to buy (only $250 or $300, although the list price is $800). I own one. In a study which I don't recall, it was found to be better than Minimed at catching Hypos. But YMMV, a lot of people get lousy results from both systems, while a lot of other people have VERY GOOD results with both systems.

Abbott says that their 'Navigator' will crush both Minimed and Dexcom in convenience and reliability. And frankly, I DO believe them, and I'll proclaim myself to be relatively 'expert' in CGMS. I will probably switch when it becomes available.

[TaeandTiff]

Congrats! How much are the CGM sensors gonna cost? We were gonna go to the MiniMed because we liked the real time monitor. I would be interested to now if it is really real time.

[EmeeSu]

Amy, congrats! Sounds like you are very excited. I did a search for the pump and went to the video they showed. It seems that you still can't get away from fingersticks, though. Right? That's what I am waiting for. Is this ever a possibility?

Also, it looks like you have two different things to stick inside her. OUCH. Wouldn't it be great to get an "all in one" insert?? I wonder if that is going to be possible down the line.

Keep us posted!!

[EmmasMom]

Congrats! How much are the CGM sensors gonna cost? We were gonna go to the MiniMed because we liked the real time monitor. I would be interested to now if it is really real time.

The sensors are $35 each, and should last from 3-5 days. (FDA approved for 3 days, but other users have reported 6+) The transmitter with 10 sensors was $999. The next order of 10 sensors will cost $350! Ouch!:eek:

Amy, congrats! Sounds like you are very excited. I did a search for the pump and went to the video they showed. It seems that you still can't get away from fingersticks, though. Right? That's what I am waiting for. Is this ever a possibility?

Also, it looks like you have two different things to stick inside her. OUCH. Wouldn't it be great to get an "all in one" insert?? I wonder if that is going to be possible down the line.



Yes, you have to do finger sticks to calibrate the sensors, and if you have a low or high reading that requires action. The glucose from interstitial fluid is about 10 minutes behind blood glucose, so you need to double check with a finger stick before giving insulin.
We should be able to cut back from our current 10-15 finger sticks a day to about 6... hopefully! Eventually even fewer. Our rep has her daughter on this too and her blood sugars are so well controlled now that they almost only do finger sticks for calibration, (about twice a day). I don't expect our results to be that good w/ Emma since she's still so little, but better is better!!!
It may still be many years before a sensor is good enough to work with out calibration or some finger sticks. The technology is just not that advanced yet, and I'm impatient!!! By the time Emma is 6 or 7 I'm hoping she will be a little easier to manage, I need help NOW! ;)

This does require two "sites" which really stinks, but it is the only option at this time.

hi, being new to pumps and all, can you tell me the full name of this pump so I can look it up on line and read about it?

Thnks

Here is a link to the MM site with all the info about it:
http://www.minimed.com/products/insulinpumps/

[hold48398]

Hey Amy,
I am soooo excited for you!!!!! I hope that it will be everything you hope for and more to help with Emma's BGs - you guys soooo deserve it! Enjoy and let us know how it's going!

[Reagan's Mama]

This is so awesome - thank Emma for trying it out for us!

I am excited to hear future reports on how things are going for you guys.

I would love to be able to have the knowlesge that it will offer for Reagan. It would be a godsend to be able to see what way the bg is trending.

Good luck!

[bkfkmc]

Amy, I am so excited for you! And a little jealous. We got ours on Tuesday, but am still waiting on a trainer to call me. I tried to call Minimed today (as I am impatient and was about to get Braden started on my own) and was told the trainer has between 5 - 14 days to call and schedule training (and also told not to start on my own). I am a little frustrated with MM right now. I asked if I could do a trial before I ordered and was told yes, but no one ever called me back. I called again with again no call back.
I decided to go ahead and order since there is a 30 day return policy for the transmitter. Well, based on the 5-14 day contact period, I may be getting close to this before we are even able to try the first one! Meanwhile, I have already paid for this that is sitting in my refrigerator (I sure hope my fridge doesn't go on the blinks!)
Sorry for the rant. I am so very excited for you and look forward to reading your posts. I only wished we lived closer and you could train me!

[EmmasMom]

Kristi, do you have a number for your local rep? I'd call that person and not the MM number. I'd call and call until you get a time set up.

It's a little bit complicated the first couple of times, so it's probably best to have an actual trainer, but if you read what I just posted on another thread you'd know I already have Emma hooked up. :rolleyes:
My call to my rep went like this... "we got the new pump today and it's completely programmed for the sensor and already hooked up to Emma. I know I'm supposed to wait, but since I've done this before with the Guardian I'm going to go ahead and hook her up. If you don't think thats a good idea please call me within the next hour. Thanks!"
Was that bad of me...;) It worked! She called within 20 minutes and gave me some helpful tips and said "go for it!" I will call her if I have any questions.
I wish I was close to you too! I'd be happy to come get you hooked up!

[lynn]

I'm so excited for you guys. What a blessing.
I laugh at how excited we all get over the new D gadgets. It sounds like when all of my brothers get together and talk about all of the new "toys" they have or want. Never in my wildest dreams did I think I would be joining in the excited expectation of a new computer/electronic device. And certainly not medical equipment. Have I entered the twilight zone?
Lynn

[bkfkmc]

The MM rep I talked to did transfer me to my local rep's voice mail. The VM said that he will be off until Nov. 4th (which is Sat.?) I already have Braden switched over to the new pump and have the info programmed in for the sensor. But when I pulled out the sen-serter, that is when I called MM. It looks like there is more room for error than with the quick-serter. I will call my rep again tomorrow hoping he may have meant Nov. 3rd on his VM since Sat. is an odd day to return to work.

How is it going since you have Emma hooked up again?

Lynn-
I'm right there with you. My Honda Odyssey is almost 7 years old- most would think I would be eyeing a new car-but no- it is a medical device that gives me that twinkle in my eye!! We may break down on the side of the road, but at least I can see if he's trending low on the walk back to the house! Ha-ha!

[jeep_bluetj]

Please keep us all informed (as if you wouldn't :) )

We selected a mm522 for just this reason, but have held off on RT monitoring until we got some positive feedback. But it's the next step, and I'm more than willing to be an early adopter. So let us know how it goes with Emma. GL...

[lynn]

Kristi-
I drive a 1990 Suburban that is currently parked in the garage awaiting repairs. The gas tank is falling off! Am I spending time figuring ways to come up with a down payment and then a few hundred dollars a month for a car payment? No. I want one of these sensors so bad I can almost feel it. I spend my dreams on wondering how to pay for one of those and then buy the supplies every month.
Diabetes has definately made me have different priorities.

[EmmasMom]

I left the Emla on for an hour and a half to be sure she was really numb. It worked like a charm!:) She did her usual fighting before the actual poke, but as soon as it was in she smiled, said, "all done" and toddled off to play. Huge relief!

From that point on things did not go as planned. She immediately started begging for her nightly bubble bath, and I just had a bad feeling... I hate those feelings! For some reason half of the clear dressing on top of the sensor came loose and it looked like it was going to come out :eek:, we managed to get the rest of the newly stuck IV 3000 off of her w/o pulling the whole thing out and dried, re-prepped, re-taped, etc all with her standing in the bath tub. Crisis averted!
Then, not 10 minutes later she says her pump infusion site hurts, so I pull down her jammie pants to look and the thing falls right off!! :mad: Crap! (this has only happened 2 or 3 times in a year, why today!!!) Of course I had just giver her carefully timed bolus to make sure we had a stable number when it was time to calibrate in 2 hours. So now I had no idea how much insulin she actually got and no idea how much of a bedtime snack I should give. On a normal night this would be irritating, tonight it almost put me over the edge, the edge of digging into the Halloween candy!!!

So she went to bed, we calibrated at 2 hours and she was a lovely 144, 5 minutes later 142, 144, 144, 146, 144, 142, 142, 142, 140 and so on. Too good to be true!? So I tested 135, not bad!
I'm certain that I will be looking at this thing every hour all night long. I just cant help it. I'm like a kid in a candy store! Now I just need to invent a baby monitor that displays these numbers at my bedside!! aaahhhh paradise!;)

[jeep_bluetj]

Now I just need to invent a baby monitor that displays these numbers at my bedside!! aaahhhh paradise!;)

I'd probabally do that. Wonder if MM would release thier RF protocols to engineer geeks like me?

Good luck.. Your sucess will likely cause me to spend the $$$. (If I can convince the kid to wear the transmitter).

[Reagan's Mama]

Amy-We have a TV monitor hooked up in Reagan's room that sends a signal to our bedroom. If only you had a remote that could zoom in on her - paradise could be closer than you think! :)

Hope everything is good this morning.

[EmmasMom]

Amy-We have a TV monitor hooked up in Reagan's room that sends a signal to our bedroom. If only you had a remote that could zoom in on her - paradise could be closer than you think! :)

Hope everything is good this morning.

We have one of those too! We bought it the day we brought her home from the hospital... after D dx's, not after birth.:rolleyes: I actually had the idea to try such a thing, but it would never work. The night vision is not great, and since her pump is in a pouch... well, it's kinda hard to see!:p
Jeep, you really need to get to work on this for all of us!!! You could make big $$$ from all of us D parents!

We had a fantastic night, every BG was within 5-10 points of the sensor. I woke up to it's low alarm at 5am, (which I had set at 100 just to be safe), the sensor said 98, I tested 92. Wow! So, a few sips of milk and a temp basal for an hour and every things back on track.
She woke up at 136, the sensor said 129, but I know her blood sugar starts to climb at this time, so I'm just going to watch it and see how well it keeps up.

[kwesty]

Hi Amy:

I have been thinking about switching over to the sensor augmented pump..Unfortunatley we have an Animas pump and our insurance won't cover a new one for another 1 1/2 years. I don't want to pay out of pocket, but if it truly works I am having a problem NOT having the technology. I am very impatient like that!

My son is 5 and at this point my only real concern is the size of the transmitter. I know that your daughter is much younger, but I wondered if you had pictures of what the transmitter looks like?

Thanks!
Kristen
Mom to Zachary, 5 - Dx'd at 3

[hrermgr]

Amy-Sounds like once you got over the bumps, the sensor worked like a charm! It is unfortunate that the sensor can't replace the finger pokes but perhaps someday it will.

As for the reps being behind in training/set up, we were told by our clinic that the end of the year is very busy for Minimed because so many people want to use up $$ set aside in their medical spending accounts AND because people are close to or have met their insurance out of pocket maximums. This means that getting the pump now as opposed to other times during the year makes a scheduling back log.

[Lindeylou]

Good Luck

Hope it all goes well for you x

Lyn
Mum to Charlotte dx'd 03/09/06
Mum to Mitch and Scott non diabetics

[Emma'sDad]

Oh Jeff, the possibilities huh?? I'd love to be a programmer behind that... I'd have a website that you could log in that would display the data in real-time so you could view it from home, work, log on to your PDA and there it is. Droooollll.. :)

[jeep_bluetj]

Oh Jeff, the possibilities huh?? I'd love to be a programmer behind that... I'd have a website that you could log in that would display the data in real-time so you could view it from home, work, log on to your PDA and there it is. Droooollll.. :)

And yaknow, it'd be brain-dead simple to do too. All it would take is being able to easily interrogate the pump/sensor for data. Beyond that it's fall-off-a-log easy.

The i/f to the BD meter is pure serial, wouldn't be too tough to figgure it all out. I'd love to go directly RF, but that'd be way tougher. Hmmm... Maybe I'll hook up an analyzer to the serial link and see if it's obvious what the protocol is.

[Emma'sDad]

Probably straight ASCII

[EmmasMom]

As for the reps being behind in training/set up, we were told by our clinic that the end of the year is very busy for Minimed because so many people want to use up $$ set aside in their medical spending accounts AND because people are close to or have met their insurance out of pocket maximums. This means that getting the pump now as opposed to other times during the year makes a scheduling back log.

So true! and MM plans to be completely caught up on all sensor orders by Dec 1st, so that means many months worth of people that have been waiting for 12 weeks are all getting their sensors and new pumps this month. I don't know how the reps and trainers can keep up with that!! The demand was so high that they couldn't produce them fast enough, but I'm sure they want everything billed before years end. It may mean a long wait for training for many new users. Bummer!

[Pammers]

I am so happy for you, Amy. Green with envy too!!

[Linus001]

Hi Lisa,
I just found this forum today - wow, I didn't even know it existed! I have two children with diabetes - ages 11 and 4. On Tuesday we got my 11 year old son hooked up to the CGMS, and just today I hooked up my 4 year old daughter! Isn't it FUN to see those numbers on the screen? I haven't downloaded the data yet, but its been great to look at my son's screen, and see that he was flat all night long - something I didn't know before! I hope you are having good luck with your CGMS - I had to insert a sensor twice today on my daughter (the 4 year old), and it made me feel terrible. :( But, she was a trooper (and the EMLA cream helped). I'm so glad I found this site! I will watch to see how its going for you!

Debbie

[EmmasMom]

http://render2.snapfish.com/render2/is=Yup6lol%7C%3Dup6%3DzqH%3AxxqUD7qRUrKxzX7BHpUUKx gXPon%3F87KR6xqpxQQPexeaaxeQoxv8uOc5xQQQoa0QoJ0G0e qpfVtB%3F*KUp7BHSHqqy7XH6gXPon%7CRup6aQQ%7C/of=50,346,442

Here's the new transmitter and sensor. Rather than sticking the transmitter to her skin, I just added some extra tape to the cord, (to ensure there was no pulling on the sensor) and stuck the transmitter in her pump pouch right next to her pump.:D
So far it works like a dream, and means I don't have to worry about one more thing sticking to her.
http://render2.snapfish.com/render2/is=Yup6aQQ%7C%3Dup6%3DzqH%3AxxqUD7qRUrKxzX7BHpUUKx gXP0J%3F87KR6xqpxQQPexeaaxeQoxv8uOc5xQQQoa0QoJ0G0l qpfVtB%3F*KUp7BHSHqqy7XH6gXP0J%7CRup6llQ%7C/of=50,536,443

Our pre-lunch numbers were 131 on the sensor and 134 on the meter. I'm in complete shock at how well its working so far. It got a bit behind during her post breakfast spike, but caught right back up when the insulin was peaking.

Here is the actual pump screen. This was about 20 minutes after lunch today. The graph shows the past three hours of blood sugars, the current blood sugar is on the right, and the two up arrows indicate that her BG has gone up over 40 mg/dl in the past 20 minutes.:eek: Typical post meal spike. One arrow would mean it had risen 20-40 mg/dl in 20 minutes and no arrow means its pretty stable. The arrows point down when the blood sugar is dropping, so you always have a pretty good idea of where it's heading and how fast. You can arrow down and see the actual BG number every five minutes for the past 24 hours. Pretty Cool!
http://render2.snapfish.com/render2/is=Yup6aQQ%7C%3Dup6%3DzqH%3AxxqUD7qRUrKxzX7BHpUUKx gXP0a%3F87KR6xqpxQQPexeaaxeQoxv8uOc5xQQQoa0QoJ0G0G qpfVtB%3F*KUp7BHSHqqy7XH6gXP0a%7CRup6lQQ%7C/of=50,590,442

[Because the meter, pump and sensor can all communicate it's been really easy to calibrate, and I can use the number that's already on the pump screen to figure meal boluses w/o a finger stick. I'm not ready to do that yet, but if we continue to have really close numbers I may be able to skip some pre-meal tests!!!!:D

[hartpukas]

Amy ~ It sounds so wonderful, the pictures are helpful, as well. I am intrigued and wonder if this is something we should look into.? Do we need to be on the pump to use this? Also, how do you recommend we go about getting one. I reclal a previous post about that you did - can you direct me to its whereabouts? Thanks so much... Great luck and good job in your progressive d thinking/ knowledge! tgif :)

[EmmasMom]

Amy ~ It sounds so wonderful, the pictures are helpful, as well. I am intrigued and wonder if this is something we should look into.? Do we need to be on the pump to use this? Also, how do you recommend we go about getting one. I reclal a previous post about that you did - can you direct me to its whereabouts? Thanks so much... Great luck and good job in your progressive d thinking/ knowledge! tgif :)

I bumped up my previous post. It's "we're on the sensor" I think.
The Guardian that Emma was wearing then can be worn w/o a pump because it has a separate transmitter, (like dexcom).
In my opinion... get a pump if you can make the investment... first. The readings and graphs and trend arrows make it far superior to the Guardian RT which only displays the readings. And you cant go wrong with pumping! You should also find out when/if the navigator will communicate with a pump in the near future and decide if you want to wait for that technology.
The first thing you have to do is find out if your endo would allow you to use a sensor at all. They are still very new and only FDA approved for 18+, so your endo has to be willing to do it "off label" which means outside of the FDA guidelines. Some doctors will, some wont. Emma is one of only two children at our huge pedi endo clinic that has been approved to use one so far. I guess we're good Guinea pigs!;)

[hartpukas]

Great suggestions all around. I get excited about the pump but we just are not there yet - not sure why.? I think it is b/c, "things are working well lets not rock the boat" kind of thing, I guess? I may be holding out for the technology of a sensor and pump in one and hope that it all coincides with kindegarten :rolleyes: - yea, yea I know it all sounds like excuses, ah? Reading posts from other pumping toddlers is always helpful as it makes me think about it more and more. Thank you again for the great idea(s).

[bkfkmc]

Amy-

I am glad to see that the sensor is matching the meter so closely. That is exciting. And to get to where you can skip a pre-meal check...how great!

I did get in touch with our local rep and we are scheduled for training on Wednesday. It seems like forever...but I must learn patience I suppose. Meanwhile, I am checking your posts regularly for updates. I am glad you are pleased with it so far.

[hold48398]

Oh Amy that's wonderful!! I really hope that the sensor readings continue to track so closely to Emma's actual BGs. That's what we were hoping for with the Dexcom but just didn't get those results... I am soooo exstatic for you both!!!

[EmmasMom]

Here is day one uploaded from the pump.
The first box has the finger sticks as black dots and the sensor line in blue. The little alarms along the bottom are low alarms. The second box shows her basal rates and all bolus insulin and the third box shows all carbs.
I set it to alarm at 100 thinking it might actually catch the low around 70. So far it is dead on accurate any time she's been dropping, within a few points. So it is alarming while she's still in the high 90's... amazing!
Last night she ran slightly low for a couple of hours after dinner. Normally I would've put her to bed and retested at midnight, I never would've caught it. We gave her almost 45 carbs to stop her blood sugar from dropping, so I'm sure it would've been a bad low!

We did have a false low alert this morning where the sensor was way behind, but it re calibrated itself (based on a finger stick) and has been great ever sense. She was running around at her brothers soccer game this morning and it showed 110 and dropping on the sensor, I tested 108.:eek: I still can't believe how accurate it's been so far.
I'm sure we will have our share of crazy readings, but at this point I couldn't be happier!:D

[hold48398]

Amy, this is incredible!! The sensor is spot on. That's great!! Please keep posting..I would love to see if it can maintain accuracy past day two. How many days is your sensor approved for? Thanks again so much for sharing your findings with us!!


PS Has Emma indicated at all of the sensor being uncomfortable? Our nurse practicioner told me that she felt it was very uncomfortable to wear when she tried it out...

[EmmasMom]

The only thing she didn't like was the transmitter being stuck to her side, so I put it in her pump pouch with her pump. She hasn't said anything about the sensor ~at all. I really don't think she can tell any difference between it and her pump site. She will mess with her site if it hurts, and complain about it so I really think it's good.

The sensor is supposed to last three days. When we used the Guardian we never had good luck past day three, but I'm going to try to stretch these to 4 or 5 if I can. We'll see.

BTW. She just woke from her afternoon nap, the sensor said 190, her meter 193. Again, I'm in awe. Hopefully our luck will continue!!:D

[EmmasMom]

It fell off after the bath tonight!! I just wanted to scream!
We've been having some trouble with the IV3000 over the sensor staying stuck during her bath, so I was going to carefully change it out and the whole thing just fell off!!! :( I've got to get some skin tac, the IV prep just isn't good enough for this!

Oh well. I kept her up late so her Emla would have a chance to get really numb and then we put in our second sensor. No pain again! Yeah! The needle on that thing is scary, but she doesn't seem to notice nearly as much as I do.:rolleyes: (it's just like the comfort short)

It was still right on track until the end. The sensor was reading 288 and she was 275 on a finger stick. Pretty good!

[EmmasMom]

I changed these links, so hopefully they'll work now!!


It's day 5 and overall I'm very happy! It's much more accurate than I ever expected it to be and I've been able to make several basal adjustments already. I'm seeing many things you just cant see with finger sticks alone, and preventing lows quite well! The trend arrows and real-time graph on the pump are soooooo helpful. Wow!!!:D
Emma has had the best blood sugars this week that she has ever had, and though we've still had normal fluctuations I can fix problems faster because I know about them right away. The pattern of lows right after going bed it so scary to me, because again, I never normally test an hour after I put her down, so I rarely see this on my own.
There have been a couple of times that it's been more than 20% off of a finger stick, but that is actually pretty rare, and the arrows usually indicate that she's changing fast so I know to test at those times. I'll post my graphs for the past two days with the second sensor so you can see. It's due to be changed tonight, so I'm going to attempt to fool the pump and continue using the current sensor... we'll see how it goes.

http://render2.snapfish.com/render2/is=Yup6aQQ%7C%3Dup6%3DzqH%3AxxqUD7qRUrKxzX7BHpUUKx gXP0Q%3F87KR6xqpxQQPexeaaxeQoxv8uOc5xQQQoa0PlGQnQP qpfVtB%3F*KUp7BHSHqqy7XH6gXP0Q%7CRup6eQn%7C/of=50,499,443

http://render2.snapfish.com/render2/is=Yup6aQQ%7C%3Dup6%3DzqH%3AxxqUD7qRUrKxzX7BHpUUKx gXP0a%3F87KR6xqpxQQPexeaaxeQoxv8uOc5xQQQoa0PlGQnQo qpfVtB%3F*KUp7BHSHqqy7XH6gXP0a%7CRup6laa%7C/of=50,515,443
The down side is, of course, wearing the thing! I have it well taped now to prevent it from coming loose in the tub, but all the tape is irritating her. When I moved the sensor the transmitter wouldn't reach her pump pouch anymore, so now it's in a baby sock and pinned to her diaper or cloths. It works pretty well, much better than sticking it to her tummy. :rolleyes:


Here is one of the many graph options, this one is for meal times. It overlays up to a week of sensor data at a time. Can you say trend!!! At least right now she's doing about the sam ething everyday!!
http://render2.snapfish.com/render2/is=Yup6e0n%7C%3Dup6%3DzqH%3AxxqUD7qRUrKxzX7BHpUUKx gXP00%3F87KR6xqpxQQPexeaaxeQoxv8uOc5xQQQoa0PlGQnQQ qpfVtB%3F*KUp7BHSHqqy7XH6gXP00%7CRup6aQQ%7C/of=50,409,442

[tymaxtess]

Your links didn't work for me, Amy. Glad it is going so well, though!!

[EmmasMom]

OK... I'm having picture problems!! I've attached the last two days, but the other stuff is too big I guess.

I need to find a new server for my pictures!!:rolleyes:

[AmyMcCracken]

Those graphs are SO COOL! I can only imagine how helpful this is.....especially with small children that can't communicate how they feel. Thanks for sharing.

[Momof4gr8kids]

Amy (Emmasmom) that is so cool!!! Thanks for sharing with us all. Jamie

[Adinsmom]

I am green with envy. How is the attachment issue working out? I keep telling my husband if only I could just look at our little guy and know what is going on. Something more then a gut instinct, scheduled testing and luck that is.

[payam7777777]

I need to find a new server for my pictures!!:rolleyes:

I also need a similar space to upload Ali's Bg graphs.
Where do you suggest? My scanned jpeg graphs are 100-120 KB which is larger than the limit CWD allows. Smaller scans have low resolution.

[hrermgr]

We decided to try for the Real Time glucose monitor next year! We already decided to go with the MM 522 and figured, why not try for the monitor, too. We know the monitor is not necessarily covered under insurance, but my DH talked with MiniMed and our endo clinic yesterday and found out that our insurance company had approved 1 Real Time monitor for another patient at our clinic. Our clinic is helping with the paperwork to the insurance company (they offered to check the other patients paperwork and give a suggestions) so we're gonna go for it! YEAH!

With Teagan being so young and not able to communicate her lows, we feel we have a really good chance to be approved. Thanks, Amy, for all of your posts and information on your experiences. You've been sooo helpful! :)

[EmmasMom]

Hey Michelle!

You are so very welcome!!!
I'm so glad you guys will be pumping, you will love it! Hopefully the new smaller transmitter will be out next year which will make the sensor much more user friendly too!

Things are still going very well. We reset her sensor last night, (we are on day 4 for this sensor).
It did get way off track late this afternoon while she was jumping on the trampoline, (her new obsession), but I'm not really surprised by that. It seems that really jarring activity like jumping and landing on her bottom over and over mess with the signal... go figure:rolleyes:.
I made the stupid error of sitting the pump on the trampoline so it would continue to get the signal, so after an hour in the direct sun, (it was over 80 degrees here today) the insulin was shot. So we ended up with highs, followed by a site change, followed by dinner, etc. So there wasn't a good time to recalibrate, (BG needs to be stable for calibration), so I just turned it off until a few minutes ago.
It is now re-calibrated and I'm hoping to get a successful day 5 out of it tomorrow!!!

We see the endo in the morning and I cant wait to show him all of my charts and graphs! I think he'll be pretty impressed! Wish us luck!:)

[bethdou]

Isn't it goofy that it's that hot and it's NOVEMBER? It was almost 90 here again today...and I am supposed to be teaching my kinder-babies about fall! :D Is Lubbock like here - you have about a month of "winter", surrounded by quite a bit of "what the heck is this season" type weather? Then spring lasts about 3 weeks, and it's hot again?

;)

[EmmasMom]

It is so crazy! It's not as bad here as in Phoenix, but we have our share ridiculous weather! Two weeks ago we were having highs in the 40's, now a week of weather in the high 70's and 80's. Bizarre!
I'm just glad that most of the insulin killing heat is over!!

[bkfkmc]

We are now up and running with the sensor! We started yesterday and I am thrilled with it so far. It is amazing how close it is most of the time. It was off one time due to calibration at an unsteady time. This morning it was off 30 pts, but he had been increasing over the hour before waking. So, I saw the trend. Otherwise it has been within a few points either way.
I was also concerned about whether he would wear it or complain about it. So far he has been excited and not had a negative thing to say about it. His bottom is pretty full with the pump site on one cheek and the sensor site and transmitter taped to the other. It hasn't seemed to bother him in the least though. Anyway, just thought I would let you know we are finally hooked up!

[EmmasMom]

:D Wonderful!!!! I really hope it gives you great results!

Emma is still wearing her second sensor, it's day 5, going on day 6 and we still have good results. The adjustments that I have made to her basals and ratios this week are working like a dream! The roller coaster look of the graphs has changed to rolling hills...:) all in range today! Her average today is 140 and not a single reading above 200 or below 110. Unbelievable!!!!!!!! I know this is too good to be true, and we will still have plenty of ups and downs but WOW! This is the best grand I've ever spent!:D

[Reagan's Mama]

I am so happy to continue to hear that it is going well for you guys!

Keep up the great work. I can't wait to hear what your Dr has to say!